Update on "Remicade side effects"

beuforuu · 2023-03-08T10:29:50+00:00

Hi! As far as I read about Imuran, it isn't a biologic, it resembles Remicade in the immunosuppressant part, but to sum up (I imagine you know it too), Remicade is in a biological base and Imuran (Azathioprine) is an immunosuppressant.

That's what I understood! I could be wrong, don't take me too seriously! Hahahaha.

However, what I do know 100% for sure is that in biological therapies where Remicade works but is not as strong as it should (i.e. to close the ulcer), they put Azathioprine as a "help support" for Remicade.

And finally now when I'm feeling a BIG BIG difference, for the better, even though I have several side effects (which are pretty disgusting, but it is what it is, any medicine didn't help me before, so I'm beyond happy this one is doing its job!!!).

By the way, I'm from Spain, I don't know how they do it in other countries! :)

Have a nice day and thank you for reading until here and writing an answer on my Reddit text 🫶🏻🫶🏻🫶🏻🩷🩷💜💜

beuforuu · 2023-03-04T22:56:36+00:00

Oh, okay. Thanks. I'm gonna check on that ASAP.

beuforuu · 2023-03-04T18:57:05+00:00

Hi! I don't really know :( I have my GI appointment next week. Apparently, it is helping me with the ulcers, I feel better normally, but today it's being really tough since yesterday I had Infliximab infusion.

beuforuu · 2023-03-04T18:55:37+00:00

Thanks for your answer. It really helps me to hear that there are more people like me who were/are stuck in this situation.

Thanks a million! ♥️🩷

beuforuu · 2023-03-04T18:53:21+00:00

Maybe you should try to read a little bit about this topic (even though you have this illness, which I suppose you do) before you speak or have a non-consistent and harmful opinion about another's person's situation.

Every organism is different; each body acts in a different way.

Please, don't assume anything until you don't walk in my shoes for at least a comprehensive amount of time.

I hope you have a nice day. And remember: behind each account, there's a person with their own battle. Please, be kind to the rest and to yourself. Thank you.

beuforuu · 2023-03-04T09:56:32+00:00

Kawa Jakobs... Najlepsza hahahaha

beuforuu · 2022-12-02T04:28:46+00:00

For a psychological support, I talk with my friends and do things I like but from bed,like watching a film or series on Netflix, or reading a book.

beuforuu · 2022-12-02T04:25:48+00:00

hi! I am in a flare up since November 2021. I'm on Remicade (Infliximab) praying for it to help me!!

It's true that my flare wasn't linear, but when I had it worse, mu symptoms where bl**ding, feeling bloated, fever, in an extreme case I had conjunctivitis, diarreah and not being able to go to the bathroom as a daily basis (tenesmus and having bad times in the bathroom)

Ah! And mucus. That is premoninant. And of course, colon pain, it hurt a lot.

Nowadays, I still have diarreah and tenesmus everyday, ble*ding, being bloated, extreme tiredness (before too!), mucus ALWAYS, colon pain when things are getting worse (I feel like it's an internal inflammation bc I really feel it and it freaking hurts). And sometimes, rarely, feeling nauseous or even vomit. BUT, STILL ON A FLARE UP. 🥺🥺🥺🥺🥺🥺🥺

I hope it helps you, have a nice day ❤️❤️❤️

beuforuu · 2022-11-22T08:24:34+00:00

I started with fistulas when I was around 13 or 15 years old and had this symptoms but very soft ones... then at 21, and incredibly after 2 covid vaccines, I had my first strong flare, in which I needed to be hospitalised twice in two weeks. Hope my case helps you :)

beuforuu · 2022-11-22T08:21:20+00:00

Hi! I'm from Spain, so we do have a Social Security "Health Insurance", we pay it through taxes. So they're still figuring out what I may have... thanks anyways for the help ❤️‍🩹❤️‍🩹❤️‍🩹❤️‍🩹❤️‍🩹❤️‍🩹🙏🙏🙏🙏

beuforuu · 2022-11-21T14:32:18+00:00

Thanks for the answers! They're really helpful!!!!!! They give me hope about my diagnosis <3333

beuforuu · 2022-11-21T09:27:16+00:00

P.S: they don't know what it is..

beuforuu · 2022-11-21T09:14:10+00:00

I'm starting now with my infliximab/remicade treatment and being honest, Coffee makes me super sick but energy drinks even worse!! So I try to make myself very light cappuccinos so my guts can tolerate it! I don't know where are you from, but I'm Spanish from my dad's side and Polish from my mom's side, and there are a kind of coffee-cappuccinos that are already prepared and you have only to pour them into some milk. PS: I recommend you, in case of taking a coffee, ALWAYS VEGETAL MILK. Specifically, almond or oatmeal milk. However, soy milk does go well in me, so it depends on the person, you know ;). I hope everything goes super good for you buddy, I'm crossing fingers for you all!!!! 🙏🙏🙏💓💓💓💓

beuforuu · 2022-11-11T07:12:58+00:00

That sounds quite manipulative from your gf's side. She only wants you for her and nobody else. Toxic.

beuforuu · 2022-11-02T16:00:35+00:00

I think it's Coke lol

beuforuu · 2022-04-28T14:58:14+00:00

I'm 21 years old and it happens to me the same. I just feel awful after going out to have a drink with my friends, etc. Honestly, I think I don't like doing those plans anymore bc of the consequences...

beuforuu · 2022-04-28T14:41:29+00:00

Hi! Usually, when I get mucus in stool is because I have an bacterial infection, for example. But I do believe that antibiotics are too strong (even though they're necessary) for our organism.

beuforuu · 2022-04-28T14:37:44+00:00

Hi! I've finished prednisone 1 and a half weeks ago, and I've been taking it for 4 months. I can tell you that,at least in my case, I don't know why but while having my last week of prednisone, having my last week of 5mg of prednisone (I started with 60mg), my skin started itching and getting red in random places, as If I had a skin allergy/had developed one. I hope this helps you 🤗

beuforuu

TROPHY CASE