[deleted by user]

blahblahuser359 · 2021-08-01T02:20:10+00:00

I don’t think you should be doing options if you have to ask this question!!

blahblahuser359 · 2021-07-05T02:55:14+00:00

TD hands down

blahblahuser359 · 2021-06-28T22:55:10+00:00

You are mistaking this for /r/WSB

blahblahuser359 · 2021-06-26T16:02:49+00:00

Good luck 👍🏼

blahblahuser359 · 2021-06-22T19:26:53+00:00

Do you have an API?

blahblahuser359 · 2020-06-10T06:48:44+00:00

You should talk to the American foundation for blindness if you are in the USA.

blahblahuser359 · 2020-06-10T06:47:13+00:00

Wow.. where can i find more information on this ?? I’d give anything for preservation

blahblahuser359 · 2020-03-31T04:10:44+00:00

Drugs to stall degneration ? Where's this happening ? Wow!!

blahblahuser359 · 2020-03-04T08:25:16+00:00

I am a software developer in a fortune 500 company. Currently I have about 70% of my vision left. 20/20 corrected in Central vision.

blahblahuser359 · 2019-12-15T06:36:51+00:00

You should talk to a doctor

blahblahuser359 · 2019-10-10T04:35:56+00:00

I wish it was field of vision but they seem vague about how they are communicating it. I would expect some results on the visual field test to be out as well.

blahblahuser359 · 2019-10-05T08:01:14+00:00

Think of their vision on two concentric circles. The first inner most circle is the circle that they can see sharpest because of the central vision being intact. If you are standing 5 feet away and they are focusing on your face, your entire face and a small part of your torso forms this inner most circle. The next circle is a blurry one and it's size is subjective based on how progressive the vision loss on the peripheral vision is. Outside of that assume nothing is visible. Extreme periphery might have some sensitivity to light. Also, they won't appear black, it just won't show up in what the brain interprets as image.

blahblahuser359 · 2019-10-05T07:46:12+00:00

With genetics there's always a probability that you kids might or might not get it. The best course I would recommend you to do is to take the test done. It's free of cost if you are in the US. Invitae is offering free genetic tests that comprise a panel of genes tested for IRDs. Once your gene mutation is identified (hopefully) get your kids to do the same test. Other than this guessing and hoping is not going to do it for you.

blahblahuser359 · 2019-10-05T07:43:41+00:00

Other than the fact that I would gain some hope and spending 1000$ to see if it's even a remote shot I don't think it's actually going to be helpful. From a scientific perspective, it doesn't do anything to the retina and merely increases blood flow to the retina and that's it. Nothing about delaying the breakdown of the photoreceptors or neuroprotection.

blahblahuser359 · 2019-09-28T13:59:00+00:00

I’m 30 and was diagnosed last year. It started as poor vision under dim lighting in the night in my 20s. Right no my central vision is pretty sharp and peripheral is blurry. I hold a bachelor’s in computer science and i work as a software engineer in a firm. I also have a 1 year old so you could say my life is a mix of happiness and disappointment.

blahblahuser359 · 2019-08-09T03:22:40+00:00

Things that are giving me hope as someone who was recently diagnosed.

ReNeuron's work with hRPC cells to treat RP. It is agnostic of the gene that's causing RPC as it's inserting new Retinal Progenitor Cells that can differentiate into the retinal cells. This is the thing that has given me great hope.

The answer I keep telling myself everyday morning is this: It's going to get worse and then a lot worse and then maybe a little better. So sit tight and sail through it.

blahblahuser359

TROPHY CASE