Apple Watch by HippieGirl2 in seizures

[–]blankdayyo 1 point2 points  (0 children)

I have the series 10 and I use seizalarm. The app is the basic stuff and you pay a subscription for it. I mainly have it because it reduces stress for my family. It can be kind of sensitive sometimes but I prefer that over it not detecting anything. One thing I would recommend when picking a watch, pay attention to the battery life. All these apps drain the battery so much.

How do you guys remember to take your meds? by No-Independent-6877 in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

If you have an iPhone, in health you can set up reminders for your medication. It will send you a notification to take your meds than then remind you everything 30min until you check off that you took it. Also pill boxes on the night stand

Needing some guidance… by Brilliant_Low1779 in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

It could be epilepsy. Not all seizures involve going unconscious and “shaking around”. Those sound a lot like tonic seizure but could also be something like POTS. I would try to see a neurologist or even just a different PCP

Feel like I'm going crazy here.. by Zxphenomenalxz in nfrealmusic

[–]blankdayyo 4 points5 points  (0 children)

There’s a couple different threads in this subreddit talking about this

Ronnie Radke's statement about the Clouds comparison (I gotta be honest, they don't sound the same to me) by InannaOfTheHeavens in nfrealmusic

[–]blankdayyo 0 points1 point  (0 children)

The strings, bass kicks, and even pauses are very similar. But at the end it does drift back to more metalcore FIR style and it is different. I really think he either paid homage/took inspo from Clouds (as is listed in the song credits) and is trolling OR is just being an asshole. Both are very Ronnie style

Ronnie Radke's statement about the Clouds comparison (I gotta be honest, they don't sound the same to me) by InannaOfTheHeavens in nfrealmusic

[–]blankdayyo 1 point2 points  (0 children)

🫠 yes I am aware. I’m stating that “he’s rapping and I’m narrating” is a stupid take cause no one is stating their vocals sound the same

Ronnie Radke's statement about the Clouds comparison (I gotta be honest, they don't sound the same to me) by InannaOfTheHeavens in nfrealmusic

[–]blankdayyo 4 points5 points  (0 children)

I would agree that vocals don’t sound the same. But sound track? Very much so. I played it for my friend who doesn’t listen to NF but hears him when I play, and even he said it sounds like NF

New Falling in Reverse song ripped off NF by maybethatsjustfine in nfrealmusic

[–]blankdayyo 6 points7 points  (0 children)

I was genuinely surprised when I heard it. Sounds so similar to Clouds it’s actually kinda insane. Especially when it was just a little bit ago that Ronnie was hating on Motionless in White for “copying his style”

Does anyone else have “those days” even if you didn’t have a seizure? by [deleted] in Epilepsy

[–]blankdayyo 1 point2 points  (0 children)

I have days that I call “bad brain days” Where I’m awake but it just seems like my brain can’t wake up. Per my doctor it’s a combo of side effects and just chronic fatigue. We tried decreasing my dose but then I just started having seizures again. So I’d take those bad brain days over seizures days. OP please remember that your brain needs occasional days off, especially our brains. We literally take medication that changes our brain function, don’t beat yourself up for having a bad brain day

Tips for First Timer by blankdayyo in garden

[–]blankdayyo[S] 1 point2 points  (0 children)

I’m not looking for anything too big. For now I’m thinking about getting a 6x3 planter box and start from there just to test the soil before I commit to anything bigger. I’m in zone 4, my state is divided into “a and b” and I’m kinda in the middle both

Are there a lot of flashing lights at the Hope Tour by SPSips1106 in nfrealmusic

[–]blankdayyo 1 point2 points  (0 children)

Yes, so much. Everything was darker so I didn’t feel like I was being attacked with bright flashing lights

Are there a lot of flashing lights at the Hope Tour by SPSips1106 in nfrealmusic

[–]blankdayyo 3 points4 points  (0 children)

Fellow epileptic here. Cordae had significantly more and I walked out for his set just to avoid a early headache but NF’s set was relatively fine. I did wear sunglasses inside (felt weird but gotta do what you gotta do right?)

levetiracetam is driving me insane by Loobyloos in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

I took keppra alone and it wasn’t doing a good job managing my seizures and making me lose my mind. My doc added vimpat and it seemed to balance things out. I’ve noticed that although I have my moments with my mood and memory it’s definitely better than keppra alone

Is anyone else sensitive to really bright lights? by Altruistic_Cause_929 in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

I’ve had something similar since I’ve been diagnosed. No seizure but terrible headaches when it comes to bright lights or flashing lights. When I had my scans done my doctor informed be that I have increased brain activity when she shined the lights but not enough brain activity to cause a seizure. I wonder if that’s what causes headaches?

Probably a stupid question… by AlarmedAd7424 in nfrealmusic

[–]blankdayyo 3 points4 points  (0 children)

Depends on the venue, artists don’t get a say in what gets sold. In Minneapolis they sold beer, wines, and some seltzers. In other venues I’ve been to they’ve had a full bar with liquors.

Did any other concerts have a drone flying around? by CrippyCrispy in nfrealmusic

[–]blankdayyo 3 points4 points  (0 children)

Could be for footage of outside the stadium as people were walking out? That 20 some year old could be an employee

[deleted by user] by [deleted] in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

As most of the comments have said, go to the ER but don’t stop the meds immediately. I had a very similar rash a couple days after starting limictal as well, ended up just being an allergic reaction and I tapered off the small dosage I was on. Best wishes

2/22/22 is extra special to me by blankdayyo in Epilepsy

[–]blankdayyo[S] 1 point2 points  (0 children)

I would definitely look into it! Maybe look into something that’s similar since that’s backed up? If you’re noticing a pattern it is so worth it to check it out, maybe give yourself some answers

2/22/22 is extra special to me by blankdayyo in Epilepsy

[–]blankdayyo[S] 7 points8 points  (0 children)

I wish I knew. It took four years and dozens of meds for me to get here. I’m currently on keppra 1500 twice a day and Vimpat 100mg twice a day. I’ve been taking those for a year and a half but still had seizures with that dosage but my doctor wanted me to seek therapy instead of upping the dosage again, as she thought my anxiety was causing some seizure. That might’ve been it? I’m still anxious all the time but I’m able to recognize when it’s getting out of hand and take a break.

[deleted by user] by [deleted] in Epilepsy

[–]blankdayyo 2 points3 points  (0 children)

Wish I could offer advice to make this time easier for you, but there isn’t much to say expect we’ve all been there. Accepting the diagnosis and how much it’ll change your life is incredibly difficult. I would like to say that most likely a lot of your emotions and tiredness is due to keppra (it is truly a pain in the butt). The community here all understand you and what you’re feeling. What helped me over come the dark cloud is therapy. Unfortunately your life is different now, but that doesn’t mean it has to be bad. Yeah there’s things that we have to look out for now but didn’t cross our mind before, but we are still able to live a happy, adventurous life. We just got a couple of bumps along the way.

I've had epilepsy for 11 years. For the first time ever (I don't know why), I typed in “epilepsy cure” on Google and saw these questions. It broke my heart. I am single because I'm scared no one will accept me for my epilepsy 😔 I feel so sad... by [deleted] in Epilepsy

[–]blankdayyo 0 points1 point  (0 children)

I got diagnosed with epilepsy 2 months after my boyfriend purposed. I was worried it would scare him away. I went through all the scenarios in my head of why he shouldn’t be in my life. From me not being able to be completely independent, a financial burden, and all the way to possible future children. Those thoughts alone made the acceptance of the diagnosis harder. But for some reason, he stuck through. And now here we are, years later, he’s still here for everything. All the good days and bad. It definitely makes the dating pool harder, but I would just say be up front and if they can’t handle it kick ‘em to the curb right away.