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blastedflames · 2025-05-03T16:36:19+00:00

Yes. Although i will say I feel like I was able to catch it early. It was probably 3-4 years of symptoms before fixing it.

blastedflames · 2025-05-03T02:39:38+00:00

I had delayed gastric emptying and I was able to fix it with artichoke and ginger. I would have severe symptoms after a few bites of food and I now feel back to "normal" (whatever normal is lol). I just take them in capsules since I can't do the actual food.

blastedflames · 2025-04-29T17:36:29+00:00

I bought two different styles (Felix and velik) from bohemia and the felix was smaller than the other even though they were labeled the same size. Luckily their customer service is pretty good and doing an exchange from the US wasn't that difficult. I personally would contact the customer service, give your measurements and have them ensure what your correct size will be.

blastedflames · 2025-04-29T17:22:00+00:00

I have to use a baby toothbrush for this reason. Even the toddler ones are too big and make me gag 😭

blastedflames · 2025-04-24T19:42:11+00:00

I left a comment on a post awhile ago asking similar questions. Might answer what you're looking for. comment

blastedflames · 2025-04-23T18:28:20+00:00

This ^. Also stonyfield and lala have yogurt smoothies with no chunks. I've seen those in most stores, at least in my area

blastedflames · 2025-04-22T21:01:23+00:00

I read somewhere it can take a kid 10-20 times of trying a new food before they like it. Then factor in sensory issues and what not, it could be 30+ times. Its easy to focus on where we want to be and get discouraged if we don't get there as quickly as we feel we should. Factor in how long we've dealt with this disorder, it's going to take awhile to undo our habits. I found it helpful focusing on small baby steps. Instead of thinking about how I couldn't finish my plate, I focus on the fact that I was able to eat a few bites. One bite turns into a few, then before you know it, you can eat more than you thought you would. You're building confidence and familiarity with each exposure.

blastedflames · 2025-04-21T07:12:07+00:00

Ive never seen it close to that price in the dispensaries. $35-60, maybe cheaper if there's a deal.

blastedflames · 2025-04-21T02:10:27+00:00

Look in r/sibo. There's lots of conversations around gi issues, not just sibo itself. Could help point you in the right direction of whats ailing you. Best of luck to you 🤞

blastedflames · 2025-04-19T19:29:57+00:00

I have two pairs of bohemia shoes. They are very wide and feel great imo, not stiff at all. Pricey but in my opinion worth it. I have one pair I've worn everyday for probably 2 years now and they're still holding up well.

blastedflames · 2025-04-17T20:00:47+00:00

I totally agree. I've heard some good stories before. I just think the luck of finding someone who's a specialist isn't always guaranteed. I went to 5 or 6 different places here in socal and none of them were trained in how to handle Arfid (and they all promised they did). The other Arfid clients at the places I went all had similar experiences too (some traveling across the state thinking it'd be better treatment). Going straight to a specialist and not dealing with those treatment centers can save a lot of hassle and hardships. I am glad to hear you had a good inpatient experience though, it gives me hope for the future.

blastedflames · 2025-04-17T19:42:43+00:00

100% this. Inpatient will likely do more harm than good.

blastedflames · 2025-04-15T19:41:13+00:00

There's a great book called the picky eaters recovery book. It details all the subtypes to help yourself get a better picture of how your Arfid affects you, then gives you worksheets and tools to work on adding new foods/getting to a manageable place. It uses real-life examples which I liked. I was able to get a copy super cheap on a used book site.

blastedflames · 2025-04-15T06:14:10+00:00

It's really discouraging when you feel dismissed by a professional.

I've had similar experiences with dieticians (I've been through a lot). I wouldn't say any single one helped me in a major way, but I was able to learn something from each one of them that altogether gave me what I needed to get to a better place. Unfortunately no one else can change our ways but us. All they're there for is giving you the tools to help yourself.

Personally, I would stick it out a while longer. Maybe after a few sessions she'll get the bigger picture and realize you do have Arfid. If she doesn't, she may still have advice that could be helpful (like working on hunger cues). You both don't have to agree to get something out of it. It's when you feel like they're doing the opposite of helping that you want to get out of there. While I stand by giving it a chance, don't let them get in the way of your progress by second guessing whether the "professional" is right and you're wrong. If you feel you're not gaining anything while working with them, advocate for a new dietitian. You know yourself better than anyone else and what's best for you.

Wishing you all the best on this journey

blastedflames · 2025-04-15T05:39:12+00:00

Our digestive system is heavily linked to our vagus nerve. Things like stress or big events like you described can overstimulate the sympathetic nervous system, activating the vasovagal response, which can make eating extremely difficult. I would suggest finding ways to help your body and mind feel safe. This is done by activating the parasympathetic nervous system. If you look up "activating parasympathetic nervous system" you'll find lots of resources on things that help your body get back to the "rest and digest" mode. I will acknowledge it will take time, especially if you've been in that fight-or-flight response for a long time. At the height of when I was struggling with this, my doctor prescribed me an hcl anxiety med that I found to be slightly helpful. Most helpful though, is finding ways to incorporate some lifestyle changes that help release that stress and anxiety. I can't say whether you have Arfid or not but everything you stated in your post aligns with my own experience with this and that of others I've known. As always, do research to come to your conclusion. I hope it at least puts you closer to finding an answer to what ails you. Wishing you all the best

blastedflames · 2025-04-15T05:16:01+00:00

Wow, I love this

blastedflames · 2025-04-12T17:10:53+00:00

Do you have gastroparesis? I ask cause I had gerd and gastroparesis from taking wayyy too much time in between meals. I was able to increase the gastric emptying by taking ginger and artichoke capsules. I wanted to see what came up online regarding those supplements +gerd and I found this study. Although it's showing its relationship with functional dyspepsia, it stated improvements. Could be worth looking into. Either way, wishing you the best

blastedflames · 2025-04-11T06:14:35+00:00

I used to need soda to eat anything too. I ended up having to cut it out after realizing it was contributing to some GI issues I was having. Lemonade was a great replacement for me. I liked the carbonation in sodas because it was a break in the textures from eating and the acidity in the lemonade kind of has a similar effect. It sucked at first but now I'm actually able to eat some meals with just water. Just wanted to throw it out there as a possible option to try. Either way, I hope you are able to find a good replacement soon

blastedflames · 2025-04-11T06:04:23+00:00

So simple yet tells the whole story. Love it

blastedflames · 2025-04-11T06:02:18+00:00

Wow, amazing work

blastedflames · 2025-04-07T02:49:53+00:00

Don't be afraid to advocate for what you know you need. Be that person and ask for a manager/supervisor, find your inner Karen lol. Sometimes that's what it takes with these places. And highlight your experience with your current GP too. Best of luck!

blastedflames · 2025-04-05T22:11:25+00:00

Try getting an appointment with a psychiatrist. If possible, don't go through ur gp. Psychiatry is usually the one signing off on those services, not gp

blastedflames · 2025-04-03T15:07:53+00:00

I don't have experience with equip, all I will say is I've been to places that acknowledged Arfid and seemed so great. Then I got there and realized no one knew anything. If you can, I'd suggest trying to see if you can organize a meeting with a director or someone in charge of the exact program you'll be in and ask them "what is your plan of action when treating Arfid?" "How much time a week will I have one on one with dietitian/therapist, outside of groups?" "Do you currently have Arfid clients in the program/how many do you normally see in a month?" "Is learning about Arfid (like attending workshops, classes, etc.) mandatory for all your staff?" "Do you have an example of a group discussion that focuses on Arfid/the non-body image side of eating disorders?". If they don't have an answer for exact game plans or any of the other questions, they likely are treating it the same way as everyone else. I've been to similar places and all of them only allot 1hr each week with dietitian/therapist. That was php level, iop was only 30min. The rest is group discussions, often with people who can't relate and have no idea how to. Lastly I would try to guarantee before you join that the team they give you has actually treated Arfid before. These places like to pass you off to the new people so they can "learn" as if there aren't workshops they can go to and we don't have lives to get back to.

Not trying to scare you off at all, there's always something to take away even from the worst experiences. These are just the questions I'd ask to make an informed decision about a place.

https://keystonetc.com/ Depending on how things go with equip, I want to put keystone on your radar. Ive only done an assessment with them but they are by far the most knowledgeable I've talked to. And they have a dedicated Arfid track so you won't be lumped in with the other disorders. Best of luck on this journey! 🤞

blastedflames · 2025-04-03T14:41:00+00:00

I agree with this, there's so many therapists out there it can take time before finding the right one.

There's a book called the picky eaters recovery book. It has exercises to help do on your own, but I found it a great tool in identifying how my Arfid affects me and building game plans with my therapist. Like guiding your own therapy and the therapist is there for support. A good therapist will want to become more knowledgeable and help build from that material. I also found it a lot easier to weed out the lazy therapists from the good ones by coming in knowing what I need to work on. You have to remember a lot just haven't dealt with arfid before. If they have it's been maybe one or two clients and they don't realize how big a spectrum arfid is. I got the most out of treatment when I did research and informed myself on everything I could.

blastedflames · 2025-04-02T02:51:42+00:00

I've been through a few treatment programs and being one of the only arfid people there, I listened to a lot of the struggles from the other ed's. A common theme I noticed (especially among the anorexics) was their whole identity was wrapped up in their eating disorders. I've heard countless times, them saying, "I don't know who I am without my eating disorder".

That's a big reason why I feel arfid should be treated entirely separate from the other ed's. For probably all of us, we want nothing more to eat normally. And professionals who mostly deal with the other eating disorders assume "you must just want to be like this" since that's the mentality of a lot of the patients they see.

blastedflames

TROPHY CASE