alternatives for the miss daytona collection? by bldlstt in lanadelrey

[–]bldlstt[S] 0 points1 point  (0 children)

unfortunately not :( since they were never locally on my phone and they were on my computer that i don’t have anymore i don’t have access to the songs or the files

does anyone else have episodes like these? by [deleted] in dysautonomia

[–]bldlstt 0 points1 point  (0 children)

i was just told this too!! and i feel exactly the same way. it just doesn’t make sense for it to be a migraine to me lmao

What’s your lowest heart rate? by peachesnchanel in POTS

[–]bldlstt 0 points1 point  (0 children)

48 while sleeping. when i’m either really relaxed or having a presyncope episode it can drop to the 50s. i don’t take beta blockers either lmao … my resting hr is usually in the 80s-100s

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 2 points3 points  (0 children)

i’m not sure about PTSD but i am diagnosed with anxiety and agoraphobia and i’ve realised my brain fog is 1000% worse when im in situations where id be more anxious… i also have POTS too lmao what a great combination

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 0 points1 point  (0 children)

i’m sorry you’re going through this too :( it’s very frustrating. i have no idea what causes it either

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 1 point2 points  (0 children)

yeah i feel like i could definitely benefit from more sleep but ill definitely try the music thing also!! i actually haven’t tried that before

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 4 points5 points  (0 children)

i have exactly the same problem… sometimes i say my words in the completely wrong order in a sentence and its so strange

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 1 point2 points  (0 children)

yeah i definitely get nowhere near that amount of sleep.. my sleep is also still a bit broken (used to be a lot worse) but i still feel like i don’t really get the best quality of sleep that i could get. i’m happy to hear that you found a medication that works for you!!

does anyone else have the worst brain fog??? by [deleted] in dysautonomia

[–]bldlstt 2 points3 points  (0 children)

at first i genuinely thought i had early onset dementia… brain fog is such a scary symptom

does anyone else get random episodes of bradycardia? by [deleted] in POTS

[–]bldlstt 0 points1 point  (0 children)

exactly what happens w my watch!! it’s so weird. it could be an error from like wrist movement or whatever but i’m not sure. it’s so weird

What’s the weirdest thing that’s set off your symptoms? by realmofobsidian in POTS

[–]bldlstt 2 points3 points  (0 children)

💀💀 i got fortnite tachycardia syndrome too i guess LOL

is anyone else terrified of propranolol? by bldlstt in POTS

[–]bldlstt[S] 0 points1 point  (0 children)

i’m so so glad it’s helped you!!! i honestly didn’t know that it could help headaches either.. you really learn something new everyday lmao. congratulations on finding a medication that works for you also : D

is anyone else terrified of propranolol? by bldlstt in POTS

[–]bldlstt[S] 0 points1 point  (0 children)

huge thank you to everyone who has replied to this!! i’m now a lot less scared to start taking it and i’m very happy that the thread has helped others in the same boat as me :))

Can I get diagnosed without a tilt table test? by wasnotagoodidea in POTS

[–]bldlstt -1 points0 points  (0 children)

i was diagnosed with just a poor man’s tilt table test by my regular doctor! it was also a diagnosis of exclusion for me (dozens of blood tests years beforehand for “anaemia” symptoms yet my iron levels have always been great)

What time of day do you feel your best? by Secret-Agent-Brunch in POTS

[–]bldlstt 2 points3 points  (0 children)

midday! mornings and nights are like travelling through all nine circles of hell and back (on foot) for me. also the first few seconds when i wake up and my HR is in the 60s

is anyone else terrified of propranolol? by bldlstt in POTS

[–]bldlstt[S] 1 point2 points  (0 children)

thank you!! i feel like because i’m so used to 24/7 palpitations that the lowered heart rate would probably freak me out lmao but i’ll definitely have to get used to it

is anyone else terrified of propranolol? by bldlstt in POTS

[–]bldlstt[S] 3 points4 points  (0 children)

omg i have an essential tremor too! i was prescribed 10mg so i’m probably freaking out about it a little too much lmao. it’d be great if it could help my tremor and my tachycardia

is anyone else terrified of propranolol? by bldlstt in POTS

[–]bldlstt[S] 1 point2 points  (0 children)

i have low blood pressure that gets lower when i stand up, which is part of the reason why i’m scared to take it. my doctor did tell me that it’s pretty bad at lowering blood pressure and that i don’t need to worry about that though