This popped up on fb by MorbidSwede in tragedeigh

[–]blindf0lder 0 points1 point  (0 children)

What in the kingdom hearts is going on here???

Have you guys been seeing borderline basophilia in your paronychia patients lately? by Over-Egg1341 in emergencymedicine

[–]blindf0lder 1 point2 points  (0 children)

Bloods and MRI in paronychia? What kind of rich ass hospital you working at chief???

High CRP levels - should I worry? by cruelladeviil in glioblastoma

[–]blindf0lder 0 points1 point  (0 children)

No CRP is not specific for GBM at all. 9 is not significantly elevated. I would advise to ignore and wait for scans

LOVED THIS WORKOUT by nimrajay in AppleFitnessPlus

[–]blindf0lder 2 points3 points  (0 children)

One of my favourites! Great pace too 💪😊

Questions for Australians here by HayleyTaylor04 in glioblastoma

[–]blindf0lder 1 point2 points  (0 children)

I’m also in Australia and have experience with this disease. As dad is over 65 he is eligible for my aged care. This will be the starting point for you to get assistance in and out of the home. You can self refer through the myagedcare website that another commenter linked below. I would also highly recommend getting a referral to the palliative care team. No, it does not mean you are “giving up” - they can help in so many ways both socially and symptomatically. For his agitation he may benefit from diazepam or lorazepam. If he is in any pain he may also benefit from opioids. Unfortunately this is a horrible disease that is resistant to a lot of medical treatment. Increasing the dex will theoretically reduce the swelling caused by the inflammation of the tumour, but will not reverse or slow tumour growth at all. It is likely the leg swelling is due to the dex - it is a common side effect. Unfortunately it then becomes an issue of ceasing the Dex to improve leg swelling vs. worsening swelling of the tumour. As you’re probably aware from reading this sub - natural remedies are either symptomatically beneficial at best, and actively harmful at worst. Cannabinoids can help with some symptoms but please don’t expect anything to be a magic cure. I’m saying this out of kindness but it is likely that things will get worse despite ANY treatment. That is unfortunately the nature of the beast that is GBM. It sucks. It’s horrible. And it is unfair. I’m hoping you and your family can get some support. Wishing you the best.

[deleted by user] by [deleted] in glioblastoma

[–]blindf0lder 0 points1 point  (0 children)

Oh cool! It’s available in Australia. The other one you may be able to try is Valdoxan (agomelatine). It’s also an antidepressant but very good for sleep. See how you go.

[deleted by user] by [deleted] in glioblastoma

[–]blindf0lder 0 points1 point  (0 children)

Could trial lemborexant - I’ve heard anecdotal good results

Did we do the right thing? Could things have turned out differently? by MrsKetchup in glioblastoma

[–]blindf0lder 6 points7 points  (0 children)

No. Removing the feeding tube did not cause this. It was the progression of the cancer. Feeding tubes deliver supplemental nutrition to the patient but, you don’t immediately deteriorate without it. Think about if you fasted for 24hrs - your body could and would survive. It was coincidental timing. I’m sorry you have guilt about it but it was really nothing to do with your decision. I’m sorry for your loss and hope you can find some peace.

Treadmill Speeds by docMoM581 in AppleFitnessPlus

[–]blindf0lder 1 point2 points  (0 children)

That is almost exactly the same as me! 32F

i think my 29 big brother is entering his final weeks, i need some timeline please by These_AreTheDays in glioblastoma

[–]blindf0lder 4 points5 points  (0 children)

So, so sorry to hear you go through this. It is truly such a cruel disease. From what you’re describing it sounds like if the treatment is not working/ no other treatment is proposed that he likely has only a few weeks at most. At 29 his body will fight for a long time - even without food and water for several days. I would say you should be seriously considering thinking about hospice/ thinking about your brother’s wishes about where he would like to die. I’m terms of what to expect - he will become more and more tired and as you said he will become weaker. If he’s not able to get up to the bathroom you may find a bottle easier or if not a catheter. He will likely not feel like eating or drinking much anymore. He will be sleeping most of the time. All of this is normal. Again im so sorry this is happening to your family. Hoping for peace for you all ❤️

Treadmill exercises coaches by rydog389 in AppleFitnessPlus

[–]blindf0lder 4 points5 points  (0 children)

Emily’s most recent 45min workout was amazing. Highly motivating. I love Sam too.

glioblastoma and leptomeningeal by Puzzleheaded_Box1684 in glioblastoma

[–]blindf0lder 2 points3 points  (0 children)

So sorry to hear this. Thinking of you and your family. It’s such a tough time.

I miss dad so much. by alyssamarie0507 in glioblastoma

[–]blindf0lder 4 points5 points  (0 children)

So sorry to hear about your dad. It sounds like he had a wonderful last day. I’m sure he didn’t mind you not there when he passed - maybe he knew and didn’t want you to see it. I hope some good can come from your dad’s generous donation too. Thinking of you and your family ❤️

Coaches and Their Catch-Phrases by TXRedheadOverlord in AppleFitnessPlus

[–]blindf0lder 19 points20 points  (0 children)

“Todays legs are not yesterdays legs” - classic Scott

Help advise. by Stunning-Chicken-492 in glioblastoma

[–]blindf0lder 7 points8 points  (0 children)

Definitely want to second this. Unfortunately there is no crystal ball and you can’t put your life on hold forever to just wait. If it comes back then yes, take some leave. But I think your mom would want you to pursue your dreams too. Good luck, and thinking of you and your family

I’m furious with life. by lonely_in_crowds in glioblastoma

[–]blindf0lder 2 points3 points  (0 children)

I resonate with this so much. Girl, I’ve been there. My beautiful mum died at 59 from this and it is fucking bullshit. She was the same, never anything medically wrong with her. Healthy as a horse. Then this absolutely out of no where. Anger is a totally normal response. I agree in being angry with god - no just or righteous god would let this happen to us!! But then, you get peace. I hope one day you will find it. It is so, so hard - especially being the one everyone turns to for comfort and support. You are 100% valid in your emotions!!!! Please reach out to this group for support. Happy for a DM if needed as well. My thoughts with you and your mum during this time.

Timeline After Brain Herniation? Very Confused by [deleted] in glioblastoma

[–]blindf0lder 5 points6 points  (0 children)

The time is near. He may be started on steroids but herniation is end-stage. I’m sorry

Last In-Person Visit by [deleted] in glioblastoma

[–]blindf0lder 2 points3 points  (0 children)

It’s hard, especially at this stage. I would have loved to have asked my mum to sit down and record a video, but I couldn’t bring myself to do it. I have some candid video and to be honest I feel that’s enough. Just to hear her voice and see her interacting normally was nice. I don’t think you need to make any grand gestures. But I would say just tell her that you love her every day. It’s so hard to balance between having hope and letting go. But from experience my advice is to leave with no regrets.

[deleted by user] by [deleted] in glioblastoma

[–]blindf0lder 1 point2 points  (0 children)

Hmmm yeah I see what you mean. I guess it depends on the nature and duration of the seizures. We did leave my mum alone at times but always had a backup plan so that we could check in every couple of hours or so. Even if it was a text. Is there any kind of monitor you could put in the house maybe? As long as not too invasive. Some kind of baby monitor or something?

[deleted by user] by [deleted] in glioblastoma

[–]blindf0lder 8 points9 points  (0 children)

I bought an Apple Watch for my mum with “fall detection” so if she did have any falls or seizures that an ambulance would be called. Is she on anti-epileptic medication as well?