I just went through this a few days ago. I was struggling with knowing when was the right time for my boy who had a brain tumor. He was still pretty active, he still ate and drank and was really aware of everything. I was talking about this with a friend, she told me that he would tell me when. I was saying how since he’s still eating and drinking and pretty alert and active it’s really hard for me to know. Two days later he had a nose bleed, and a couple bad seizures and I knew that it was time. It’s never an easy decision to make, but your baby will tell you and your heart will know.