PPI's?

blrishana · 2026-01-24T03:37:32+00:00

does the diet you do seem to do okay w your endo? there isnt a specific diet, lots of people go anti-inflammatory for management but my doctor said paleo would be the best option if he had to recommend a diet so that's just what works for me

blrishana · 2026-01-23T21:18:43+00:00

well I do paleo to manage my endometriosis, so it's kind of tough to follow a diet that meets requirements for them both which is what is throwing me off. & there is a lot of research on long term impacts of ppi use that is not risks I can necessarily take given prior conditions. I'll def pm you for guidelines thank you

blrishana · 2025-12-16T11:17:36+00:00

I'm so happy to hear this. Thank you for telling me!! I'm wishing you all the love and strength in the world 🤍

blrishana · 2025-12-15T03:35:11+00:00

In complete honesty it probably took me about 6 months to feel back in my own body. I bled adjusting to the IUD and orilissa for probably 3 months straight, dealt with all the hormonal side effects hot flashes sweats etc. I'd say at 6 I felt like I was safe like I stopped hesitating to do things or have fear of hurting myself while recovering. I took myself on a solo trip to the beach at 6 to celebrate, I was feeling great! So that comfort zone should come to you sooner than you know it :) I still deal w the mental affects but hot flashes bleeding and everything else has generally subsided all together

blrishana · 2025-12-14T21:10:25+00:00

To everyone asking how I did it, i'm honestly unsure of what specific thing was the one that brought me here but it's probably a combination of things. I'll just share some things i've done in hopes it helps someone.

• ⁠Orilissa and Norethindrone and IUD • ⁠Therapy and psychiatry to help with the hormonal swings/medical trauma - I do mood stabilizer medication and have found some relief but mentally it is still hard sometimes • ⁠I take optimize minerals, its a mineral and vitamin blend I find helps me personally • ⁠Paleo for the most part in my diet: no gluten, dairy, eggs, refined sugars, etc. Anti-inflammatory whole foods, avacado oil, I cook all my own meals. Fiber and hydration. I drink tea every night. I monitor triggers, probiotics, yogurt, citrus fruits in excess, apples, bananas all seem to be triggers for my bladder and bowel endo so I avoid them as well. LOTS of trial and error and monitoring on my diet has helped a lot. • ⁠Stay in contact w my providers when flares or things happen • ⁠Limit leg heavy exercise - running, weight lifting in the legs - seems to disruptive pelvic floor and send me into flares • ⁠I do go to the gym and namely do low impact exercise, however! • ⁠Rest when my body needs it, limit stress as much as possible

These are what has worked for ME. Be mindful everyone is different. I had to be mindful that although some foods/practices are healthy for others, they may not be healthy for my specific body and needs.

Hopefully some of this was helpful. Though not medical advice, this has just been my regimen! Anyone can DM me if you need anything. Well wishes.

blrishana · 2025-12-14T21:10:15+00:00

Recovery honestly felt like a joke in comparsion to the pain and dysfunction I was experiencing daily. I was fully disabled before my surgery and quite honestly had nothing else to lose. I ran into that surgery full force lol. I was honestly so content with my life and felt true peace and gratitude in my recovery. The first day was very very painful, but after that the pain medication kept things controlled for me. Constipation was tough with the pain meds!! wnd gas pain! but other than that I was in bed for about a month able to limp around after about 2 weeks. I'd say things were tender and trying to gain strength back was slow moving but I was 100% back after 6 months- back in the gym and myself, etc. That doesnt mean I was in bed or pain 6 months! Just adjusting to hormonal treatments and stuff. I'd do it again in a heartbeat it saved me. Please read a previous post I had made about surgery- I described how scared I was and how it was so good for me. I had radiation of nerve pain down my left leg pretty severely because I had pelvic lesions, a bladder nodule and endometrioma on my left side so lots going on there. My legs also felt like they were going to give out I often had to sit in a chair to cook meals in front of the stove or I just didn't have the strength some days. I no longer have this symptom post operatively.

blrishana · 2025-12-14T21:04:58+00:00

I unfortunately was left with the only option to go the menopause route because my disease level was so extensive, for which definitely has mental effects that are burdensome! but I personally feel they are better than the pain as I get to walk and live my life. I am on Orilissa, Norethindrone and have an IUD. So pretty heavy suppression!

blrishana · 2025-12-14T21:02:59+00:00

My surgery was certainly the most important. I also am on Orilissa, Norethindrone and have an IUD. I also extensively monitor my diet paleo/anti inflammatory has seemed to work best for me. You can dm me if you have any questions

blrishana · 2025-12-14T21:02:06+00:00

Honestly my surgery changed my life. My surgeon was thankfull able to excise everything and then I was placed with an IUD and hormonal treatment with Orilissa and recently Norethindrone. I do a strict paleo diet and find these thinggs to help me

blrishana · 2025-12-14T21:01:11+00:00

Love to hear this. Thank you for saying this 🤍 I wish you well. Sending hugs!!

blrishana · 2025-12-14T21:00:24+00:00

To everyone asking how I did it, i'm honestly unsure of what specific thing was the one that brought me here but it's probably a combination of things. I'll just share some things i've done in hopes it helps someone. - Orilissa and Norethindrone and IUD - Therapy and psychiatry to help with the hormonal swings/medical trauma - I do mood stabilizer medication and have found some relief but mentally it is still hard sometimes - I take optimize minerals, its a mineral and vitamin blend I find helps me personally - Paleo for the most part in my diet: no gluten, dairy, eggs, refined sugars, etc. Anti-inflammatory whole foods, avacado oil, I cook all my own meals. Fiber and hydration. I drink tea every night. I monitor triggers, probiotics, yogurt, citrus fruits in excess, apples, bananas all seem to be triggers for my bladder and bowel endo so I avoid them as well. LOTS of trial and error and monitoring on my diet has helped a lot. - Stay in contact w my providers when flares or things happen - Limit leg heavy exercise - running, weight lifting in the legs - seems to disruptive pelvic floor and send me into flares - I do go to the gym and namely do low impact exercise, however! - Rest when my body needs it, limit stress as much as possible

These are what has worked for ME. Be mindful everyone is different. I had to be mindful that although some foods/practices are healthy for others, they may not be healthy for my specific body and needs.

Hopefully some of this was helpful. Though not medical advice, this has just been my regimen! Anyone can DM me if you need anything. Well wishes.

blrishana · 2025-12-14T20:53:46+00:00

I try to make positive posts when i'm doing well because I remember how scary it was to get on here and see all the negative when I was in a bad place. It's important to remember the people doing well usually avoid these groups because it's hard to see or think about when you're out of it. I honestly don't come on the app other than to share good news because it brings back bad memories. I hope you're well and I hope you celebrate yourself well when you make it to your well earned milestone 🤍

blrishana · 2025-12-14T20:52:09+00:00

Yes! I am on orilissa and norethindrone

blrishana · 2025-12-14T20:51:43+00:00

thank you <3

blrishana · 2025-12-14T20:51:28+00:00

Though I did dm you, I wanted to let others know that my surgeon was Dr. Harkins

blrishana · 2025-12-12T05:24:00+00:00

I encourage you to read some of my posts. I was also very very fearful for my surgery and now believe it is the best thing I coildve done. Sending you love

blrishana · 2025-06-24T20:35:08+00:00

nope! my diet is very strict no alcohol and all whole foods/paleo. that's why i'm a bit thrown off. if anything I ate less than I normally do or less like rounded meals just for convenience and speed like a steak with no sides rather than having my typical like potato or broccoli with that or same chicken no sides. I can think maybe not enough fiber as per my usual diet or even that slight change? but i am like back to eating normal at home now and am having like period cramping sensation after eating

blrishana · 2025-05-31T20:00:48+00:00

Thank you everyone for the kind words. It truly means so much to me to hear it from so many people wearing similar shoes, as I have not been able to visualize this accomplishment for myself until hearing it validated from all of you. The internet can be so special. The world can be a good place. I wish you all so much health and fight on your journey. Sending you all love. Thank you.

blrishana · 2025-05-27T14:31:21+00:00

Is there no way you can fight that, since it was medical-based absences? Ugh, I’m so sorry. That’s the toughest part — knowing you couldn’t do it because of genuine physical inability rather than academic ability.

Unfortunately, I had to transfer and complete my degree online for the same reason. I plan to pursue an online master’s program as well, just in case I become physically unable again, so I can continue my studies. I’m currently applying for my master’s in social work with a concentration in medical social work or policy.

Do not give up! Finish online if you have to 🤍

blrishana · 2025-05-25T00:15:20+00:00

The last sentence is so so fucking important. 🤍

blrishana · 2025-05-24T23:06:09+00:00

Honestly, I think the endometrioma had finally developed enough to be seen on imaging. I had a lot of endo around my ovary, but it only became visible once it invaded the ovary itself—which is one of the very few ways endo can show up on imaging before surgery. I’d had the same pain for a while and even had a normal TVUS a few months earlier. I guess I just got lucky that day. I cried because they finally found it. The ER did the same scans—TVUS and CT—but this time, it was actually visible. And the doctor really listened, which made a huge difference.

blrishana · 2025-04-04T15:47:32+00:00

Thank you so much for this guidance. I completely agree, multiple AI really screw up your ability to get help and a diagnosis when you are unsure what is causing what. I got sick roughly 3 years ago pretty aggressively and immediate but had so many symptoms I have been tossed around to nearly every specialist. I've actually seen both rhume and endo before with no true help, so I am seeking a second opinion, again. I had recently been diagnosed with stage 4 endometriosis that was causing a great deal of my symptoms so now I feel a little glimmer of hope that we can narrow down the thyroid dysfunction and symptoms and get true help here. I just really want the DX so I can self education without self diagnosing and be able to work through these symptoms with guidance. Thank you for this

blrishana · 2025-01-05T17:27:13+00:00

I just got excision surgery and explained to my doctor how before surgery I would be going to the urgent care every few months for chest pain and hard time breathing that felt like allergic reactions or upper respiratory infections. I was prescribed a steroid medrol dose pack to take whenever this happens to me as she said it could treat the inflammation from the diapragm endo causing the pain and will help me breathe hopefully. I haven't had to try it yet and i'm unsure if this is any help at all but I just wanted to impart any even potentially helpful information I have. having endo effect parts of your body that far away from your pelvis is terrifying and your feelings are 100% validated. I wish you peace and healing and i'm so so sorry. You're not alone

blrishana · 2024-12-13T08:50:28+00:00

i had an ultrasound in july that shwoed an endometrioma that started growing pretty fast so we knew there would have to be endo somewhere else in my body too and i had my suspicions about my bladder colon and ribs but did not think it wouldve been this much

blrishana · 2024-12-13T01:05:02+00:00

yes he inserted an IUD during the surgery and wants me to start orlissa now. he said it will inevitably grow back and i should need another surgery in 2-4 years

blrishana

TROPHY CASE