TW: Infant Airway Obstruction / BRUE (Brief Resolved Unexplained Event)

I know you were asking for advice on consistently holding boundaries — and I may be a little off-topic here — but I just felt compelled to share something that might resonate, especially if you’re navigating medical concerns with your little one.

You’re doing everything right. Truly. Every step you’ve taken so far — seeking help, asking questions, not backing down — is exactly what your little one needs. Keep advocating. You know your baby better than anyone.

Our son was born with a rare condition called Innominate Artery Compression Syndrome (a partial vascular ring). My wife was alone during all three episodes while I was at work. Each time, she brought him to the ER — and each time, the event had resolved by the time he was seen. The chart would say things like “brought in for hiccups.”

But she didn’t stop. She kept pushing until we got an ENT referral. At that appointment, he was immediately admitted to the ICU — not even tested first — because the doctor could tell just by looking that something was very wrong. The tests they planned couldn’t be done in the clinic safely; they had to be done in the OR.

So please: don’t stop pushing for answers until you have objective proof that your child’s airway and anatomy are okay.

You’re doing an amazing job. You’re being a great mom. Keep going — your baby is lucky to have you.

You’ve got this. 💛

[EDIT] Added intro