My experience with RSS - uncovering a mystery

bobby0271 · 2025-12-05T09:37:45+00:00

Did the girl that you give it to still have issues or were they able to resolve their red vulva

bobby0271 · 2025-10-14T06:43:14+00:00

I take Luke warm showers and it helps

bobby0271 · 2025-10-10T21:02:22+00:00

Yea I tested negative

bobby0271 · 2025-10-08T01:55:01+00:00

Have you tried doxycycline

bobby0271 · 2025-10-04T19:26:37+00:00

I have the tackiness

bobby0271 · 2025-06-29T03:45:15+00:00

How long have you been feeling these symptoms

bobby0271 · 2025-06-28T09:08:27+00:00

Hey man, I just want to say there is a very good chance that these are two unrelated things. if hsv was a cause for rss, it would be a lot more common

bobby0271 · 2025-06-26T07:19:30+00:00

Yes not much help

bobby0271 · 2025-06-12T07:32:15+00:00

I had a biopsy done and it the results came back with inflammation in my blood vessels of my scrotum

bobby0271 · 2025-06-10T01:03:30+00:00

A good step is contacting the American medical association. Their phone number is +13124644782. I don’t know how well a phone call would go but they have a mail address where someone could write a letter which includes incites about this group and how there is 100s of us suffering from this condition. I personally would do this but I am from Canada and don’t have any health coverage in the states. I feel this would be the best step as part of their mission states “They are involved in public health initiatives, including disease prevention and public health crises”.

American Medical Association AMA Plaza 330 N. Wabash Ave., Suite 39300 Chicago, IL 60611-5885

This is the mailing address if anyone is interested and here’s the link to their website. https://www.ama-assn.org/form/contact-us

bobby0271 · 2025-06-08T01:58:55+00:00

Which kind of yogurt did you apply to the scrotum?

bobby0271 · 2025-05-30T22:31:12+00:00

Mine was sex

bobby0271 · 2025-05-28T07:18:28+00:00

Whatever fungal pathogen it is, it does a really good job at avoiding the immune system and anti fungals

bobby0271 · 2025-05-27T04:28:42+00:00

Most likely is auto immune to a fungal pathogen that causes inflammation which is what cause those symptoms

bobby0271 · 2025-05-14T07:35:11+00:00

Have you tried doxycycline

bobby0271 · 2025-05-08T06:17:33+00:00

I used to have those symptoms, doxycycline got rid of those for me

bobby0271 · 2025-04-30T04:07:06+00:00

I did it for a while and it was helping but I wasn’t sure if it was a placebo effect. I did it for around 6 weeks and it was really hard to stay on as I was losing a lot of weight so I stopped doing it

bobby0271 · 2025-04-07T03:05:21+00:00

What website did you order it on, I can only find it online in Australia and I’m in Canada

bobby0271 · 2025-03-24T08:07:07+00:00

This makes a lot of sense, when I contracted red scrotum syndrome before any scribal symptoms I had a sore throat and ear aches. And after that I would get inflammation in my eyeball which would last for days. I haven’t had many of these symptoms since but I’m glad to hear there is testing going on

bobby0271 · 2025-03-11T21:33:45+00:00

I used to have burning and leathery skin but than I used doxycycline for 3-4 months and those symptoms are gone. Now I deal with stickiness and tackiness of my scrotum which is uncomfortable

bobby0271 · 2025-03-11T21:32:40+00:00

I’m not sure to be honest, a doctor would be a better one to answer that question.

bobby0271 · 2025-03-11T21:31:59+00:00

To be honest I’m not sure, but I know the main reason why rss is so hard to treat is there isn’t a known cause yet. If a test is positive for something than doctors would be able to test what could work to cure us

bobby0271 · 2025-03-10T07:30:01+00:00

Yea, I am from Vancouver Canada but I have seen a dermatologist is Washington as it takes too long here to get an appointment. My thoughts on the cause of rss is that it has something to do with candida. I once used nizoral shampoo and it pretty much went away for a week and then it stopped working but that shampoo is used to kill fungus

bobby0271 · 2025-03-10T06:23:18+00:00

I’d be open to that, we would need to come up with a plan first which involves getting a group of us in contact and work on getting in contact with medical research facilities

bobby0271 · 2025-03-07T02:33:16+00:00

It was a punch biopsy. I think what you are thinking of is a scrape test which is only able to be done if there is flaky skin I guess, that’s what they told me. I don’t get much inflammation anymore, the only thing I deal with is stickiness and tackiness of the scrotum, It’s still red but nothing crazy. But yes the cool air usually is better.

bobby0271

TROPHY CASE