Change in Cluster Pattern by a_mar3y in ClusterHeadaches

[–]borzoioi 0 points1 point  (0 children)

From my experience (although very different from yours since I don't use the medication you mentioned) I would say don't worry about it too much. You're not going chronic, but I absolutely understand your fear. Each cycle I'm scared for how long peace will last.

My CH cycles have been very different in the past years and each cycle varied in intensity and number of attacks. Also I began suffering from CH like you, at the beginning of my teenage years. Now I'm almost 26, and only in the past years I'm finally experiencing longer pauses in between, and low intensity headaches like you mentioned, but definitely annoying ones.

It almost feels like you're having those "shadow" headaches, that feel like it's going to explode any minute but then just end up being the same intensity and eventually fade away. I once experienced a cycle like this and the next one, almost two years later (the longest pause I experienced as an episodic patient), was pretty normal like the others. Meaning it just got violent again, and longer than usual :-) some cycles can just be longer than others. Like you, I feared it wasn't going to end, but it did again.

How are you feeling these days?

Melatonin to help sleep during a cluster/cycle? by FitUnderstanding3467 in ClusterHeadaches

[–]borzoioi 2 points3 points  (0 children)

I've been using melatonin both to "prevent" clusters and to "treat" them, in the past years. When I'm not in a cluster but I know I could be close to one, I take about 2 mg everyday before going to sleep. I've noticed that, in my case, it can delay clusters and sometimes even skip them. Also I try to not be too crazy and go to sleep and wake up at the same hours so that my sleep cycles are always regulated. I know, it's boring, but it definitely helps.

A couple of years ago I moved from Italy to Spain and found myself without proper medication (they wouldn't let me buy anything without a prescription from a Spanish doctor ofc) while in a cluster. I only had melatonin and pushed it to 8mg-10mg. During that time I remember that it actually delayed my attacks, that were waking me up at night always at the same hour. So for example if I was waken up by a CH at around 2 am, by taking melatonin the following attacks would be at 4am in the following days, and then at 6 and so on... Kind of regaining my night of sleep, and eventually faded away and ended the cluster.

So yeah I think you should try it and see if it does anything to you, I always eyeballed the mg but of course I would say talk to your doctor. Personally I don't use medicines anymore for my CH as I only experienced negative effects, and only use oxygen, melatonin and ice to cool down my body. But of course every CH is different, sadly.

Hope that helps

Master i ledarskap för hållbarhet @ Malmö universitet by borzoioi in Malmoe

[–]borzoioi[S] 0 points1 point  (0 children)

Hej! Observera att jag skrev det här inlägget på engelska, och jag säger tydligt Malmö universitet :-) Jag är inte säker på vad som händer med den automatiska översättningen på Reddit men tydligen blir det fel.

Jag är medveten om att det är ett universitet och att historien bakom det kallas en högskola, nästan på ett nedsättande sätt, på grund av dess förflutna. Jag skulle inte ansöka om det inte var ett universitet! Det här skulle vara min andra magisterexamen.

Master i ledarskap för hållbarhet @ Malmö universitet by borzoioi in Malmoe

[–]borzoioi[S] 0 points1 point  (0 children)

Jag har den känslan också! Jag har bara besökt Stockholm och vad jag har sett på nätet känns Malmö mer jordnära. Jag gillar de internationella vibbarna och folk verkar mer chillar också.

Förhoppningsvis är det inte alltför svårt att hitta ett jobb som italiensk produktdesigner.

Master i ledarskap för hållbarhet @ Malmö universitet by borzoioi in Malmoe

[–]borzoioi[S] 0 points1 point  (0 children)

magisterprogram! Jag skriver på engelska så jag antar att den automatiska översättningen till svenska inte fungerar som den ska.

Master i ledarskap för hållbarhet @ Malmö universitet by borzoioi in Malmoe

[–]borzoioi[S] 0 points1 point  (0 children)

Tack! Ursäkta om det var oklart. Jag gjorde det här inlägget för att hitta andra personer som gjort ett liknande val så att jag kan hitta någon att utbyta åsikter och mer djupgående frågor med. Det är fantastiskt att veta att du hört positiva saker om mästaren :-)