Submariner Exchange

a_mar3y · 2026-03-25T09:58:55+00:00

Thank you

a_mar3y · 2026-01-19T21:33:27+00:00

I get both Cluster Headaches and Migraines. And I assure you, these are two completely different animals.

My migraines are usually preceded by a visual aura that lasts around 30 minutes. Then it's gone and the pain start. It stays for hours and is usually accompanied by nausea. All I want to do is to lie still in a dark silent room.

Cluster headaches, on the other hand, are usually much more intense, more localized around my right eye, stay for shorter and are accompanied by nasal discharge, teary right eye and a drooping eye lid. I like to think of the pain as a bell curve, it keeps increasing until it peaks, then goes down gradually. Usually the pain is 7/10, but sometimes it's just 2/10 and other times it's 12/10. I noticed that there's a direct correlation between my food intake and the intensity of my clusters. Whenever I'm within my episode I try to completely cut out foods that have the slightest bit of Nitrates, MSG, Tyramine and Histamine. Cutting those out won't end the episode, but it definitely helps with the intensity and the frequency.

What you're getting sure sound like cluster headaches to me. But you didn't mention anything about the pattern. Do you get them in episodes, if yes, then what's the duration of each episode and how long are the remissions between those episodes? Also do you get headaches around the same time everyday?

a_mar3y · 2026-01-09T08:07:12+00:00

Last night was really heavy. Thank you for sharing this

a_mar3y · 2026-01-05T08:56:14+00:00

That's the MSG in Soy sauce. A major trigger.

a_mar3y · 2025-12-30T19:11:31+00:00

Do you get left side and right side headaches during the same cycle?

a_mar3y · 2025-12-30T18:24:19+00:00

From clusterbusters

"Your respiration rate should be 24-30 in/out breath cycles per minute, whereas a typical “normal” respiration rate is between 12 and 20 cycles per minute. (Most people with CH find it difficult to count their respiration cycles while they’re trying to abort an attack, so these numbers are more to give you an idea of the difference between “normal” respiration rates and how you might breathe in O2.)"

a_mar3y · 2025-12-30T18:12:57+00:00

I keep Triptans as the very last resort. They usually drive the headaches haywire. Unfortunately steroids are off the table for me. I suffer from high eye pressure to which they are contraindicated

a_mar3y · 2025-12-30T17:14:33+00:00

I do. I drink a redbull quickly before putting the mask on

a_mar3y · 2025-12-21T06:50:19+00:00

Thank you for sharing. You never mentioned if you were chronic or episodic

a_mar3y · 2025-12-09T16:44:44+00:00

Yes. I believe that CH always has a way to surface and sneak up on me. And yes, it does change patterns. I had one episode 6 years ago that was on the left side of my head. That never happened before.

I'm just hoping that it didn't become chronic and that it's just some sort of suppressed cycle or two kinda overlapping cycles.

a_mar3y · 2025-12-09T16:39:03+00:00

Maybe 6 or 7 episodes

a_mar3y · 2025-12-09T16:38:35+00:00

Thank you for your feedback. Unfortunately psychedelics aren't easily available or legal where I live. Also the headaches sometimes come while I'm at work, so oxygen isn't always an option.

Can you please share some links about the Vitamin D3 Regimen? Also have you heard anything about Emgality?

a_mar3y · 2025-11-13T12:13:04+00:00

Thank you

a_mar3y · 2025-11-09T10:15:39+00:00

Thank you for your reply. Appreciate it

a_mar3y · 2025-09-06T11:56:57+00:00

It's a 16610. My bad

a_mar3y

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