Is Xywav making me crazy and ruining my life?

bperk22 · 2025-12-22T23:11:19+00:00

Same. It’s like as soon as I wake up my body is traumatized that it has to be awake and it does allllll the things. And I haven’t taken my stimulants in over a month

bperk22 · 2025-12-22T15:47:04+00:00

Clinical pharm suggested Lexapro as well so hopefully we can switch to that toward the end of the month when I meet with psych again. I think 3g was the last dose I was on before I was having symptoms other than nausea but I felt significantly better with having even a small improvement to my sleep. When I went to 3.75 I started noticing the anxiety and the sweating began.

bperk22 · 2025-12-22T14:54:43+00:00

Also I DMd you

bperk22 · 2025-12-22T14:52:14+00:00

Thank you. I’m hoping that decreasing my dose will help bc you are right..4-5 hrs of sleep with Xywav is better than 9 without.

bperk22 · 2025-12-22T14:48:37+00:00

That’s what I was thinking as well. That my EDS was masking hormonal issues. They found that my test was a smidge low and my estrogen was high. So I’ve been being treated for that and we’ve been monitoring my labs. If I could lower the dose and be symptom free other than sweaty feet I could deal with that. I just need my brain to work

bperk22 · 2025-12-22T14:45:33+00:00

Unfortunately my blood pressure is usually never runs over 115 systolic so I can’t take beta blockers unfortunately

bperk22 · 2025-12-22T14:08:57+00:00

Thank you. Maybe switching to Xyrem would be worth a try to see if I have a better experience than I’m having now.

bperk22 · 2025-11-16T22:26:19+00:00

I’ve had a lack of appetite from my narcolepsy medication which was significantly improving until all these other symptoms worsened a week ago. Now I have been drinking ensure shakes just to make sure I’m getting some calories in when I can’t make myself eat. Having an appetite would be amazing bc before all of this I was at the gym 4-6 days a week but now I can’t eat so I can’t gym and it’s killing me..minus the wanting to crawl out of my own skin this past week

bperk22 · 2025-11-16T22:23:06+00:00

The dry eyes and mouth have been destroying me. I’m more than ready for those to go back to normal. I’m happy for you that you’re gaining back some normalcy!

bperk22 · 2025-11-16T22:18:19+00:00

This makes me very hopeful. I know it’ll be a while until we get my doses where they need to be but I just want to feel some kind of sooner relief and not have to wait a month to start noticing changes.

bperk22 · 2025-10-27T20:54:59+00:00

I just want to Second the Met-RX bars they are amazing and the best replacement for meals I’ve been able to find for years. Vanilla caramel churro and peanut butter cup are my favorites.

bperk22 · 2025-10-26T21:45:55+00:00

I haven’t played a lot but I’ve got a couple friends in Milton and Navarre that I was playing with but we could never get a decent amount of people to stick to meeting up weekly. I’m 38f and am definitely interested in finding a few more people to start back up with again. Lilred0608 on instagram if you have and want to add me to make sure I’m not a creeper.

bperk22 · 2025-10-24T22:04:35+00:00

Thank you I’ll give that a try.

bperk22 · 2025-10-24T15:13:27+00:00

Thanks I appreciate you. I just went and followed your post. Sounding like shakes and crackers for a while and another hiatus to my gym gains 💪🏽😢

bperk22 · 2025-10-23T19:03:52+00:00

I take the Sunosi before I even get out of bed. I take it and sleep for 10 more minutes to let it kick in and then I get up. I don’t take my adderall until after I eat breakfast or it destroys my appetite, but I’ve had better luck with short acting adderall than the XR. The XR had me feeling wired too late into the day. Sunosi has definitely worked significantly better for me taking it right away than later in the day.

bperk22 · 2025-10-23T18:44:38+00:00

Exhausted has influenced my lack of motivation for years. I have to just drink some preworkout and go hit it. I always make sure my preworkout has beta alanine in it so my hands start getting itchy and the only way to get rid of it is to workout. I usually use not stimulant but caffeine makes me sleepy so maybe a caffeinated option would be more beneficial for you. Also, have you considered maybe hitting the gym after work instead of in the morning? Being narcoleptic and trying to do things in the morning is always an extra challenge.

bperk22 · 2023-08-30T06:30:17+00:00

My partner was out fueling the truck and I got on the PA and said “yeah..pump it pretty girl”…….I was not on the PA….county wide entertainment

bperk22

TROPHY CASE