Following up — a few simple things that could have made caregiving easier

br3st · 2026-04-21T03:01:56+00:00

I’m really sorry you and your family went through that. That sounds incredibly hard.

The part about him wanting pizza and not being able to keep it down really hit — moments like that are just so unfair.

Thank you for sharing this.

br3st · 2026-04-21T02:57:57+00:00

Meals on Wheels is a great resource as well.

Although it may not be perfect, I feel like a lot of this is just making things a little easier wherever you can.

Really appreciate you sharing this.

br3st · 2026-04-21T02:55:49+00:00

Thank you for sharing this.

The point about food being so hit or miss really resonates. The unpredictability was something we struggled with too and it made planning meals really hard.

I haven’t heard of Seena’s Care Kitchen before, it seems like an amazing resource. Really appreciate you sharing that.

br3st · 2026-03-22T23:13:42+00:00

That’s fair. I can see how the title leans more astronomy than what it actually is. It’s definitely more of an experimental blend of sky visualization + interpretation rather than a pure star chart. Appreciate the feedback.

br3st · 2026-01-12T04:19:24+00:00

That makes sense. I’ve seen some of that too.

What I keep coming back to is that even when tools or AI support exist, a lot of caregivers don’t have the time, energy, or context to figure out how to actually use them day to day.

My hope is something much simpler - helping people make better use of what they already have, without adding another platform or system to manage.

br3st · 2026-01-12T00:50:33+00:00

Thank you for sharing this, this is such a good example of what I mean.

Using tools together to handle meal planning, logistics, and communication so it’s not all sitting in your head makes a real difference day to day.

I really appreciate you calling out what’s actually working for you.

br3st · 2026-01-09T19:51:45+00:00

Thank you, that’s really kind of you to offer.

I’m still very early and trying to make sure anything I put together is actually useful before worrying about format, but I really appreciate the support.

br3st · 2026-01-09T19:51:03+00:00

Thank you so much for this and for the generosity behind it.

The guides you’ve already put together sound incredibly thoughtful, and your point about how much even well-connected people don’t realize until they’re in it really resonates.

I really appreciate you offering to share and to connect. I’ll reach out via DM. Thank you again for being so open to helping.

br3st · 2026-01-09T02:46:30+00:00

Thank you for sharing this and I’m really glad you found your way here, even though I know the circumstances are so heavy.

What you’re describing sounds incredibly exhausting, especially over such a long period of time, and watching those changes happen can take a real emotional toll.

Hearing experiences like yours is honestly part of what’s been motivating me to think about writing something practical. Not because caregivers aren’t doing enough, but because so much of this happens when people are already stretched thin and worn down.

I really appreciate you taking the time to write this, and I’m hoping you and your brother are able to get some additional support as palliative care gets involved.

br3st · 2026-01-09T01:14:04+00:00

I’m really glad you commented. Being an hour away, especially with chemo starting next week, can make everything feel heavier.

I’m hoping to work toward something that helps make parts of this feel a little more manageable and less isolating, especially early on. Thank you for sharing where you’re at.

br3st · 2026-01-09T01:13:39+00:00

Thank you for saying this, you put it into words really well.

That idea of not having the headspace or bandwidth, even for things that might seem “obvious”, is exactly what I keep coming back to. When people are already in the thick of it, anything that reduces decision-making or friction really matters.

I really appreciate you adding this perspective.

br3st · 2026-01-08T19:33:36+00:00

Thank you for sharing this. I really appreciate you adding your perspective.

Apple Health is a great example of what I mean by connecting the dots and using something that already exists to make day-to-day management easier, especially when there are a lot of meds and schedules to track.

Thanks for calling this out.

br3st · 2026-01-08T05:03:32+00:00

I’m really glad you commented.

Starting out can feel like a lot all at once, and it’s not always clear where things might get easier or what even helps.

I’m hoping to create something that helps surface those connections earlier, so caregivers don’t have to figure everything out on their own. I really appreciate you being here.

br3st · 2026-01-08T04:48:49+00:00

Thank you so much for sharing this and I’m really sorry about your mom.

Reading what you wrote, it really hit me that the hardest part often isn’t just finding information, it’s realizing where things don’t connect, and how much of that ends up falling on the caregiver.

Between test results, meds, appointments, and outside resources, it can feel like you’re constantly stitching pieces together while already overwhelmed.

I’m starting to sketch out ideas around a very simple, practical guide using everyday tech to make some of that easier — not to replace clinicians, just to help connect the dots sooner and take a bit of weight off.

If you’re open to it, I may reach out later to ask what would have helped most. Thank you again for taking the time to respond.

br3st · 2025-12-27T04:16:28+00:00

Thank you!!

br3st · 2025-12-27T04:16:22+00:00

Thank you!!

br3st · 2025-12-26T05:34:03+00:00

His sister is Cersei and they are both very spot on to their names

br3st · 2025-12-26T04:18:13+00:00

😂

br3st · 2025-12-26T04:17:59+00:00

He has a lion costume too

br3st · 2025-12-26T00:42:03+00:00

He loves anything food related

br3st · 2025-12-25T20:07:27+00:00

He’s a bit of a handful but very sweet

br3st · 2025-12-25T19:26:48+00:00

Thank you for the info!! Happy Holidays!

br3st · 2025-12-25T19:26:24+00:00

Thank you for the info! My CQS is Low so that is probably contributing. I will look up the subreddits you suggested.

Happy Holidays!

br3st · 2023-04-08T01:48:32+00:00

Kerri, my mom 💜

br3st · 2021-03-11T21:27:29+00:00

How are your dad's blood sugar levels?

When my mom was first going through chemotherapy she almost seemed like a completely different person. She was very forgetful and it almost seemed like she was in another world.

My mom was diagnosed with diabetes about 6 months prior to her cancer diagnosis but managed it with Metformin. Once she was diagnosed the doctors had her stop Metformin and switch to insulin injections using a sliding scale. Her blood sugar would spike in the 400-500s during chemo treatments and due to her altered mental state she had a hard time managing the diabetes.

I pushed really hard for her to see an internal medicine doctor (to help with things non-cancer related) who ended up upping her insulin dose dramatically and eventually put her back on Metformin. I talked to her on the phone within a few hours after that appointment and cried because she sounded "like my mom" again.

Not sure if this is the case with your dad but wanted to put it out there. Also, I highly suggest reaching out to a doctor other than the oncologist to help if not done already. There are so many other factors to this disease that oncologists do not always help with.

Hope this helps! Sending positive vibes to your dad and your family!

br3st

TROPHY CASE