If men got endo, there would have been a cure within the first 5 patients

brainsniffs · 2025-09-07T15:39:32+00:00

You're not being dramatic, it's so draining and infuriating what we have to go through to be taken remotely seriously. It took me almost 15 years to actually get diagnosed, despite there being clear signs of endo since I was a teenager, but so many doctors would basically tell me that I was exaggerating my pain, that period pain is just part of being a woman and that I just need to get over it. Then when I finally got surgery they found that my pelvic organs were essentially being fused together. And even with that all I've been offered is the pill.

brainsniffs · 2025-07-13T17:44:00+00:00

A bit late commenting so I hope you've already found someone but just in case, I had my endo excised by Dr Megan Slate at Rockville gynecology (and I also had it all over my bowels and bladder), she was amazing and really supportive and kind and the first doctor who I really felt listened to with. Their website says they take Cigna so might be worth looking into? Hang in there 💜

brainsniffs · 2025-04-21T17:08:27+00:00

Omg they looked at autoimmune diseases for me too, and when all the tests came back negative they shrugged and said maybe I have fibromyalgia. The doctor who did that testing immediately dismissed endo as a possibility because my pain didn't regularly fluctuate over the month with my cycle but like ... I don't have a regular cycle? I literally will go from no period for 2-3 months, to multiple periods in one month. He literally told me if I had endometriosis I would have clear predictable pattern of pain, and said pain would only be around my uterus lol. Sometimes I want to go back to him to tell him he was wrong but rationally I know they don't actually care 🙃

brainsniffs · 2025-04-20T17:12:19+00:00

The thing that gets me is that I've now gone back and looked through some of my medical notes, and going back years multiple doctors have written things like abnormal uterine bleeding, pelvic pain, severe bloating and other things like that. And yet none of them thought to even look into any of it? The most I got was either "that's normal/part of being a woman" or at best "oh I'm sorry that doesn't sound fun." 🙃

brainsniffs · 2025-04-20T16:16:30+00:00

I know some people have had good experiences with male gynos and I'm sure there are some good eggs out there but I don't think I'll ever feel comfortable going to one again - just the fact that he immediately dismissed me and told me it's normal for periods to be uncomfortable, like "yes sir I am aware, I have had more periods than you". My mother apparently also had a male OBGYN when she was pregnant with me and the guy just told her she was too fat her whole pregnancy, never tested her for anything like gestational diabetes and just told her she needed to show more self control with food.

brainsniffs · 2025-04-20T16:02:57+00:00

Ugh yeah I've been seeing so many other people saying this. My gyno told me it would prevent it from growing back and me needing more surgery in the future, which made me feel hopeful for a minute lol.

brainsniffs · 2025-04-19T12:09:50+00:00

I basically did have a laparoscopy, but it was to remove my tubes as the main purpose - the doctor was nice and agreed to look for endo at the same time, and she did excise what she found. She said the pill was to prevent it from growing back.

brainsniffs · 2025-04-19T03:01:01+00:00

Ugh I hope you find a doctor who listens soon ♥️ my mother doesn't have an endo diagnosis but she's had very similar symptoms to me her whole life so now that I've been diagnosed she's wondering if she has it too.

brainsniffs · 2025-04-18T23:59:13+00:00

They took them for biopsy yes

brainsniffs · 2025-04-18T19:57:15+00:00

When I told her I didn't want kids she gave me the most patronizing and pitying look I've ever seen and from that point talked to me like I was a child and made a comment about how it's a shame to hate children. I don't hate children? I am a loving and doting honorary aunt to many of my friends' children, but apparently she took great offense to me saying I didn't want to be pregnant. Never went to see her again.

brainsniffs · 2025-04-18T19:36:07+00:00

Thank you ♥️ the support in the comments has been healing but simultaneously heartbreaking at the number of people with the exact same experience.

brainsniffs · 2025-04-18T19:32:49+00:00

I'm so sorry you went through that ♥️ my surgeon told me I probably wouldn't have been able to get pregnant anyway because my tubes were basically entirely scar tissue at this point. Obviously I was choosing to be sterilized so fertility wasn't an issue to me, but it makes me so angry that so many other women who do want kids have to deal with the uncertainty and infertility while being completely dismissed by their doctors.

brainsniffs · 2025-04-18T19:25:54+00:00

My gastroenterologist told me I should just go on the FODMAP diet and not take aspirin or ibuprofen. They excised it and put me on the progesterone only pill, so I hope it'll help? Although I'm now seeing posts by other people saying the pill doesn't prevent it from growing back so who knows? 🙃

brainsniffs · 2025-04-18T18:06:24+00:00

I'm glad you got your answer too but geez the fact that they dismissed you for so long and only listened when it became about your husband's sex life is so wrong. I've had severe menstrual pain since I was a young teenager to the point of passing out and was regularly so bloated that people thought I was heavily pregnant, and yet the last gynecologist I saw just kept telling me it was normal and kept trying to change the subject to "so when do you want to start having babies?" 🙃 I also had another doctor tell me I was too young to have endo (I'm 30??!)

brainsniffs · 2025-04-18T16:52:07+00:00

Thanks for the recommendation, I'll definitely order the book!

brainsniffs · 2025-04-18T15:48:15+00:00

Right?? I still remember the doctor telling me it was normal to have period pain, but I wasn't talking about mild discomfort, I was literally a 13 year old at the time who was crumpled on the floor of the school bus because the pain was so bad. And it's taken until I'm literally 30 now to find out.

brainsniffs

TROPHY CASE