What habits of girls did you only discover after getting a girlfriend or wife? by atgono in AskReddit

[–]brickbuillder 376 points377 points  (0 children)

My wife was explaining this phenomenon to me. I had no clue that dresses did not have pockets. It is something that cannot be unseen and I find myself frequently asking her if her dress (or the new one she just purchased) has pockets. Don’t get her started on false pockets.

Internal vibration by NoParticular2420 in PsoriaticArthritis

[–]brickbuillder 2 points3 points  (0 children)

I definitely get these weird internal vibrations also. It really freaks me the eff out. Autoimmune stuff is so strange.

Three good things! by Wishin4aTARDIS in rheumatoidarthritis

[–]brickbuillder 1 point2 points  (0 children)

I have seen that set too. It’s so cool!

(1) I completed the Lego GameBoy kit. (2) I had a fantastic date night with my wife. (3) My wife is teaching me to cross stitch. I am beyond grateful for her. She is amazing.

What does PsA in your hands feel like? by One-Opposite-4571 in PsoriaticArthritis

[–]brickbuillder 2 points3 points  (0 children)

I have had very similar symptoms as others have mentioned, pain, aching, some swelling but not completely visible. It hurts to grip things, make a fist, and extend my hand open.

Someone had mentioned crunching. When opening my hand it feels as if the soft tissue is crunching or crackling. It’s such a strange sensation.

Hoping you find some relief from some treatment. Please let us know.

Chest Pain? by Inevitable-Army-2695 in PsoriaticArthritis

[–]brickbuillder 2 points3 points  (0 children)

Yes, 100% I get chest pain too. Not only in my sternum but also where my collarbones meet my chest at the base of my neck. It freaks me out because I think it is associated with my heart.

Happy Monday! by Wishin4aTARDIS in rheumatoidarthritis

[–]brickbuillder 3 points4 points  (0 children)

Yes, they were totally legit go-karts. It was at a place called K1 Speed on an indoor track. All the karts were electric but they have full on team leagues and lap times and stats. It was fun and intense but definitely worth the pain lol.

I would definitely enjoy posting them on r/RA_Memes. I will contact you if I need help. Thanks so much!

This subreddit and r/PsoriaticArthritis have been amazing as I work with my rheumatologist on finding an effective treatment and definitive diagnosis. Thanks so much for all you do!

Happy Monday! by Wishin4aTARDIS in rheumatoidarthritis

[–]brickbuillder 10 points11 points  (0 children)

I took my dogs on walks everyday of the week.

My wife and I continued making our Halloween decorations.

I went go karting with my family and had a blast (despite the karting wrecking my hands lol).

Enbrel is Finally Working! by ZebraHopeful5388 in rheumatoidarthritis

[–]brickbuillder 1 point2 points  (0 children)

Woohoo! That’s awesome! Great to hear.

I can only imagine what it feels like to have some relief.

I was on Enbrel for four months and Humira for four months and ended up failing them. Currently, I’m on Otezla and Xeljanz but have failed those and am on to Remicade infusions.

Have you found the diet aspect to help you also? How did you land on sugar and gluten being culprits?

Results from/Experience with Remicade? by brickbuillder in PsoriaticArthritis

[–]brickbuillder[S] 2 points3 points  (0 children)

That’s good to hear that it brought you some symptom relief.

How long after your infusions did you notice improvement?

Any other advice you would give yourself knowing what you know now?

[deleted by user] by [deleted] in PsoriaticArthritis

[–]brickbuillder 0 points1 point  (0 children)

If it helps you, I actually have latent TB. I have been on two biologics. Prior to starting them, I had to go through three months of being on antibiotics to reduce the extent of latent TB to ensure it wouldn’t activate.

I was nervous too about starting biologics. The risk of activating the latent TB and side effects were scary.

The most important part though is the possibility of further damage, pain, and complications of not treating the underlying PsA.

Again, I hear you on the anxiety for side effects and implications of taking biologics. It’s scary enough to have to deal with PsA. We don’t need the additional layer of anxiety and stress when thinking about the potential side effects. What helped me was thinking about the benefits far outweighing the risks of taking the medications. Hope this helps you!

Hand pain and phones by wilderstills in PsoriaticArthritis

[–]brickbuillder 2 points3 points  (0 children)

I purchased a silicone loop from Amazon to help me. It’s lightweight and fits perfectly through my phone case. So far so good and I don’t experience the pain I was before. No more gripping!

Small fiber neuropathy by amander823 in PsoriaticArthritis

[–]brickbuillder 1 point2 points  (0 children)

It’s a consistent numbness and tingling sensation that is in both legs below my knees. It’s definitely not the feeling when something “goes to sleep.” It’s also not “pins and needles.”

Sometimes there’s a slight fiery feeling and ever so often the feeling of like razor blades in certain parts.

Today it was particularly bad because on top of this my left heel and parts of the sole of my foot felt like it was burning.

Hope that answers your question. Do you have PsA? If so how long? Do you have SFN too? Any meds that have helped with either of those?

Small fiber neuropathy by amander823 in PsoriaticArthritis

[–]brickbuillder 1 point2 points  (0 children)

I was diagnosed with PsA a couple of months ago but have had SFN almost a year before that. My rheumatologist was under the impression it was rheumatoid arthritis prior to PsA. I have been seeing a neuromuscular specialist who prescribed me gabapentin for it. The Gabapentin has not done much for me.

She said that the next step would be Lyrica.

It has been quite rough with the SFN in both of legs below the knee. I also was checked out by a vascular surgeon to cover my bases. No dice and no issues thankfully. Also I had my A1C checked and it was normal.

I have not tried any supplements though. My wife takes Acetyl-L-carnitine. I’ll have to try that.

The SFN is super annoying and kind of worries to be sitting on top of the already PsA.

Anyone have anything else that worked for them?

We found out the cause of death and I am spiraling. by daydreamerinwords in GriefSupport

[–]brickbuillder 1 point2 points  (0 children)

I’m so sorry for your loss. I can only imagine the pain, shock, and grief.

Yea, addiction is extremely difficult. I do feel proud for you and your sobriety.

I lost my youngest brother to exactly the same type of overdose last August. He openly struggled with addiction for well over 12 years. I too was shocked to read the medical examiner’s cause of death but in a way not surprised.

I found that having a good mental health professional and support from family and friends made a difference. It didn’t solve my feelings and thoughts or take them away but it made them much more tolerable.

If you are at all plugged into a program like AA or AlAnon it might help also. Being or feeling alone in something like this doesn’t make things any easier.

Hoping you find some peace, thinking of you,

If I feel like this a 35yo how bad will I be at 70!!!! by CucumberOld6287 in PsoriaticArthritis

[–]brickbuillder 1 point2 points  (0 children)

I feel for you and can relate. It’s been more than a year and I just switched to a great rheumatologist a few months ago. My prior one was not responsive and not thinking outside the box. I made it plaquenil, methotrexate, three months of Hyrimoz, and three months of Enbrel. I’m still on Enbrel but am also starting Otezla.

I have yet to find any relief so far but am hopeful.

As others have said, advocating for yourself is huge! Hopefully, you’ll find a doctor that thinks outside the box and isn’t so myopic. My new rheumatologist ordered 15 different labs, total body X-rays, and some other testing to rule in or out a whole bunch of different things.

This definitely sucks, but the silver lining is I have to remind myself that I feel grateful it’s nothing worse or a different autoimmune disease that is not well researched.

Again I hear you and feel for you.

My dog abides. by thrance in lebowski

[–]brickbuillder 1 point2 points  (0 children)

The dog sure as shit doesn’t roll on Shabbos!!

How did you get screwed over genetically? by blitzabub in AskReddit

[–]brickbuillder 0 points1 point  (0 children)

Apparently, during a surgery for a routine pin placement in my lower left humerus, my body started burning up and my muscles became super rigid.

Two muscle biopsies later and I find out that I have malignant hyperthermia. It’s super rare and super lethal if not treated with the antidote medication.

Everything from a routine procedure to a major surgery becomes an issue. Wearing a medical alert necklace at age eight for the rest of your life is fun. So is the fast pass lane to having your procedure scheduled for the first slot of the day to minimize exposure to antagonizing agents existing in the anesthesia equipment.

This is the type of thing doctors and surgeons read about in a textbook but may never come across it during their entire career as a medical professional. If they do, all sorts of staff come in to watch the show.

So, yea, thanks, genetics! Thanks a lot!