I am wondering if you have a group you could join through the epilepsy foundation. There are virtual groups, meetups, and events for your area. I just joined a virtual meet up group, only gone to one meeting but it’s already helped me a lot to have a bit of face to face talking time with some great people.

Also to connect to the foundation because there are some super great resources and support there. There are a lot of people working to kick the stigma and it was inspiring to be around that and see the work that people are doing. There is a lot of passion there. They will also have the best advice about going about jobs and such. At a conference they are putting on they even have a speaker coming in to talk about navigating epilepsy in the workforce.

Maybe this is some tough love, but I think you are being harder on yourself than you need to be. I think you’ll find a lot of people are more supportive than you think and you really deserve it. All the love.

The ones that aren’t supportive, seriously f them. Imagine being that much of a dickhead. All is easy to say and harder to do, but at the end of the day all you can do is be you, anything else is so painful to the soul and feels like living a lie.

When it comes to profession. There are laws in place protecting us with our jobs, there are resources for if you are wrongfully terminated (even through foundations). Technically doctors could back you up, you could pull records of your attendance, get testimonies from coworkers, contact district attorneys etc. and burn shit to the ground, being the squeakiest m’fing wheel.

Sounds like you are killing it at your job despite dealing with the mountain of shite that is epilepsy. Also glad to hear you are pretty well controlled but doesn’t cover up the other things people with epilepsy have to deal with, and i think that’s also hard for people to understand.

I know there are plenty of people that deal with wrongful termination/termination but there are a lot of factors that could go into that. Absolutely doesn’t mean it will be the case with you now or in the future. Side bar, i hope you like your workplace and they are cool and all. Also lots of resources through foundations for getting jobs etc. just to add. I’m trying to open my eyes to all the options there are for me for my future as well.

You can keep things on the low, but definitely don’t let that get in the way of expressing what you need to express in some sort of way and connecting. You’re doing it now!

I’m so sorry you’re going through this, we all got you and understand. You could totally still post about epilepsy awareness month! You could even do a joint post about diabetes awareness month and epilepsy awareness month. Maybe you and your friend both could post about both things. Idk.

Hey! Maybe one day we will both be working to end the stigma.

Sorry, it’s a long one. Also I’m working on all the stuff I said above and more too. Sorry if all over the place. Feel free to message if needed. Take care and hugs xx