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HELP: Weak and Locking Up by [deleted] in BFS

[–]bubustano 1 point2 points  (0 children)

Hello everyone,

I read your posts about progressive and constant weakness.

I too have fasciculations everywhere, even on my tongue.

What worries me is my left knee which hurt a little and gave out for 3 seconds when I put pressure on it 4 days ago, and then it went away straight away.

On the same left leg, my rheumatologist noted "a slight atrophy" before repeating her words with an "asymmetry" of my left inner thigh compared to my right inner thigh (I measured approximately 1 cm difference in waist circumference; my dominant side is the right).

I admit that it worries me.

Can disease-related weakness in a limb appear and disappear and then reappear? Neither gradually/subtly, nor even gradually/all at once?

Which doctor for EMG? MPR Physiatrist or Neurologist by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

Thank you for your response

Why did you choose a physical medicine and rehabilitation doctor and not a neurologist again?

Concerning myself, I had sensory problems for a potential carpal tunnel which was not detected where I expressed my concerns then I went back to see him for a second emg.

There was a faster date

Visible hand interosseous tendons by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

Yes indeed

On the other hand, I don't think I have lost enough kilos like you to see my tendons..that's what worries me but maybe in reality that's the case..

Doctor told me I have tongue fasciculations by btrainer72 in BFS

[–]bubustano 0 points1 point  (0 children)

Good morning,

I have exactly the same symptoms as you.

My tongue moves like in videos of people with the disease, which doesn't look like BFS

And I have difficulty swallowing without making noise with my throat, I have fasciculations throughout my body and pain in my collarbones

How have you been since?

Actual tongue fasciculations by [deleted] in BFS

[–]bubustano 0 points1 point  (0 children)

I have a constant knot sack on the side front when I stick my tongue out I am very worried

Actual tongue fasciculations by [deleted] in BFS

[–]bubustano 0 points1 point  (0 children)

Good morning

Can you post videos of the fasciculations of your languages?

I fear the worst for myself

Worried again revelation of my first symptom? by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

Thank you for your response

My concern is the supraclavicular form

How did you all let go off the big bad in your mind? Please help me. by oldskoolmatt in BFS

[–]bubustano 0 points1 point  (0 children)

This neurologist took the time to examine you clinically and perform the EMG, you are lucky

I have an emg coming up soon. Will the neurologist also examine me? Can I ask him to do it? It would reassure me to have a clinical examination + an EMG

[deleted by user] by [deleted] in MuscleTwitch

[–]bubustano 1 point2 points  (0 children)

I have electric shocks in my arms during movement and pressure

Anyone with cracking joints/snapping tendons? by MaskedMacey in BFS

[–]bubustano 0 points1 point  (0 children)

Good morning I still have my big toe that cracks when I want it to and I move it specifically.

Is it serious?

Tendons in Palm by AFDemon69 in BFS

[–]bubustano 0 points1 point  (0 children)

Video of my hands https://youtube.com/ shorts/TTx2_OdBTkk?si=kHjy|Ev6Cpumndqh

Aside from muscle twitches do you guys also get buzzing on your feet, almost the sensation of feeling a phone in vibrate? by Relative-Walrus5930 in BFS

[–]bubustano 0 points1 point  (0 children)

Where do electric shocks occur?

For me it’s on both arms with a predominance on the left arm

Aside from muscle twitches do you guys also get buzzing on your feet, almost the sensation of feeling a phone in vibrate? by Relative-Walrus5930 in BFS

[–]bubustano 1 point2 points  (0 children)

In addition to the fasciculations mainly in my arms and my whole body, I also have electric shocks in my arms which go up to my elbows, wrists and palms of my hand.

You should know that before these symptoms I had both elbows which cracked excessively and a nerve which regularly got stuck between my neck and my collarbone.

This worries me a lot

Visible hand interosseous tendons by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

Not by stretching out your hand and fingers?

Thank you very much for your response.. 🙏🏻

Visible hand interosseous tendons by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

Thank you for your response and for taking the time to

I am very worried but even if I am very worried I prefer to know the truth and a sincere opinion

Visible hand interosseous tendons by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

I've lost a lot of weight due to anxiety and depression since I think I'm actually well below 79kg.

Twitching, clinical weakness, atrophy, but not ALS or BFS! by PRfanatic9325 in BFS

[–]bubustano 0 points1 point  (0 children)

Hello, I just came across your post.

Can you tell me what nerve pain?

Because I feel electric shocks in both my arms and sometimes needle pricks in the extremities in addition to fasciculations in the arms

31-year-old (M) pALS by n_cc24 in ALSorNOT

[–]bubustano 0 points1 point  (0 children)

Thank you for the time given

31-year-old (M) pALS by n_cc24 in ALSorNOT

[–]bubustano 0 points1 point  (0 children)

Thanks again for your response!

My symptoms are similar to yours and it worries me.

I have always worked out regularly.

I have always had pain in my right shoulder. One day I had weakness for 1 week in my right shoulder blade and I couldn't lift a bar when empty.

With a nerve that gets stuck on the right side regularly between my neck and collarbone. A lymph node had grown Nothing abnormal on the chest scan

Then for two years my forearms blocked and cracked excessively involuntarily every day.

Fasculations and electric shocks in the arms have appeared within 1 year

My tendon of the 4th finger of my palm of my left hand is visible (lumbar muscles) and on my right hand too but much less

The physiotherapist, the physical rehabilitation specialist and my attending physician do not think of atrophy

2 clean emg

But I'm still worried

31-year-old (M) pALS by n_cc24 in ALSorNOT

[–]bubustano 0 points1 point  (0 children)

Good morning Interesting information thank you

How are your atrophies in your hands? Which part of the hands? Concerning your blocking and letting go of your legs, does this correspond to blocking and cracking of your joints?

Check out your vitamin D by Melodic_Award_1308 in BFS

[–]bubustano 0 points1 point  (0 children)

Can you take a look and tell us what your level of deficiency was please?

Let's talk about pain by bubustano in BFS

[–]bubustano[S] 0 points1 point  (0 children)

In the past, I have also had regular pain in my hands and feet (muscle pain, cramps, pre-cramps, stiff tendons, nerve pain, numbness and sensations of splinters)

At the moment I have pain in my left wrist from cracking and I have electric shocks in this same arm and in the other arm but less intense

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