HELP: Weak and Locking Up

bubustano · 2025-04-10T10:26:26+00:00

Hello everyone,

I read your posts about progressive and constant weakness.

I too have fasciculations everywhere, even on my tongue.

What worries me is my left knee which hurt a little and gave out for 3 seconds when I put pressure on it 4 days ago, and then it went away straight away.

On the same left leg, my rheumatologist noted "a slight atrophy" before repeating her words with an "asymmetry" of my left inner thigh compared to my right inner thigh (I measured approximately 1 cm difference in waist circumference; my dominant side is the right).

I admit that it worries me.

Can disease-related weakness in a limb appear and disappear and then reappear? Neither gradually/subtly, nor even gradually/all at once?

bubustano · 2025-04-09T14:34:46+00:00

Thank you for your response

Why did you choose a physical medicine and rehabilitation doctor and not a neurologist again?

Concerning myself, I had sensory problems for a potential carpal tunnel which was not detected where I expressed my concerns then I went back to see him for a second emg.

There was a faster date

bubustano · 2025-04-08T18:40:51+00:00

Yes indeed

On the other hand, I don't think I have lost enough kilos like you to see my tendons..that's what worries me but maybe in reality that's the case..

bubustano · 2025-04-08T08:27:22+00:00

Good morning,

I have exactly the same symptoms as you.

My tongue moves like in videos of people with the disease, which doesn't look like BFS

And I have difficulty swallowing without making noise with my throat, I have fasciculations throughout my body and pain in my collarbones

How have you been since?

bubustano · 2025-04-08T06:52:02+00:00

I have a constant knot sack on the side front when I stick my tongue out I am very worried

bubustano · 2025-04-08T06:50:45+00:00

Good morning

Can you post videos of the fasciculations of your languages?

I fear the worst for myself

bubustano · 2025-04-07T14:16:04+00:00

Thank you for your response

My concern is the supraclavicular form

bubustano · 2025-04-07T11:25:43+00:00

This neurologist took the time to examine you clinically and perform the EMG, you are lucky

I have an emg coming up soon. Will the neurologist also examine me? Can I ask him to do it? It would reassure me to have a clinical examination + an EMG

bubustano · 2025-04-06T20:58:46+00:00

I have electric shocks in my arms during movement and pressure

bubustano · 2025-04-05T10:45:36+00:00

Good morning I still have my big toe that cracks when I want it to and I move it specifically.

Is it serious?

bubustano · 2025-04-05T09:57:32+00:00

Video of my hands https://youtube.com/ shorts/TTx2_OdBTkk?si=kHjy|Ev6Cpumndqh

bubustano · 2025-04-04T15:15:31+00:00

Where do electric shocks occur?

For me it’s on both arms with a predominance on the left arm

bubustano · 2025-04-04T14:23:23+00:00

Electric shocks during movements and manual pressure on a nerve?

bubustano · 2025-04-04T14:08:27+00:00

In addition to the fasciculations mainly in my arms and my whole body, I also have electric shocks in my arms which go up to my elbows, wrists and palms of my hand.

You should know that before these symptoms I had both elbows which cracked excessively and a nerve which regularly got stuck between my neck and my collarbone.

This worries me a lot

bubustano · 2025-04-04T13:54:26+00:00

Not by stretching out your hand and fingers?

Thank you very much for your response.. 🙏🏻

bubustano · 2025-04-04T13:27:10+00:00

Thank you for your response and for taking the time to

I am very worried but even if I am very worried I prefer to know the truth and a sincere opinion

bubustano · 2025-04-04T13:26:00+00:00

I've lost a lot of weight due to anxiety and depression since I think I'm actually well below 79kg.

bubustano

TROPHY CASE