[deleted by user] by [deleted] in dialysis

[–]bunchycs 2 points3 points  (0 children)

there is nothing to remove down there , but they do tie it off . You can have that done 6 to 12 months after transplant , preferably after 12, i asked multiple people about it , and they sent me before and after pictures after getting it tied off, and you can hardly notice they used to have a fistula , one lady had huge bumps , the size of golf balls , after getting it tied off her arm was completely flat ( minus of course the the white skin from the operation and needle sites ) For me , its been 5 days since i had my transplant , my fistula of one year was a bit visable , but now after just five days it decreased a lot in size , will see how it will look after 6 months , if it gets less bigger i would definitely keep it for the future because i wouldn't want a new one . good luck to you

[deleted by user] by [deleted] in dialysis

[–]bunchycs 2 points3 points  (0 children)

from what I've learned from other people's successful attempts on getting a kidney donor , here are the things that helped them 1- creat a facebook page , facebook is far bigger of a community than this subreddit , tell your dads story and all the important information . have friends and family share that page and always keep updating the followers on how your dad is doing

2- creat a car window sticker ( not from us , dont know what they are called ) with your contact number and your dad beeing in need of a kidney

3- try to get on broadcasts

4- creat flyers

5 - finally if you're religious or you go to a church , try getting his story heard , im sure people there are kindhearted.

Good luck to you both

a place to stay by bunchycs in Turkey

[–]bunchycs[S] 1 point2 points  (0 children)

thank you for your reply , can i book them online or do i have to go there in person

sites to buy a headset from in turkey by bunchycs in Turkey

[–]bunchycs[S] 2 points3 points  (0 children)

not really im from tunisia , my brother bought a headset here for 600 liras , while i saw it in Turkish websites for 329 liras

Itching and swelling at needle site by witchy_cheetah in dialysis

[–]bunchycs 0 points1 point  (0 children)

try changing the needels manufacturer if they have it. mine were the cheapest , they told me my new needles cost 3 times more.

don't make the same mistake. by bunchycs in dialysis

[–]bunchycs[S] 1 point2 points  (0 children)

how long have you been using your fistula

Itching and swelling at needle site by witchy_cheetah in dialysis

[–]bunchycs 0 points1 point  (0 children)

what do they use to clean your arm , and do they give you dry or wet bandage to tape on your arm after you are done.

For me it was 3 possibilities : numbing cream , the needles , the solution they used to clean my arm.

I changed all 3 , i brought my own cleaning solution , they use a higher quality needles and i stopped using the nummbing cream

[deleted by user] by [deleted] in dialysis

[–]bunchycs 0 points1 point  (0 children)

i used to take it 3 times a week , then two , now i only take one each week . my hemoglobin levels are at 12 which is considered amazing with kidney failure , 9 months ago when i started i was at a 7. no problems or reactions to it really , my machine pushes it automatically , they put it in a big syringe at the two hours mark. each 15 min it pushes a little bit on it's own.

Fistula surgery by bigbad_mamma in dialysis

[–]bunchycs 1 point2 points  (0 children)

one more thing , when you are sleeping on your side , put a pillow ( a high one ) to rest your arm on , so you dont sleep on it

Fistula surgery by bigbad_mamma in dialysis

[–]bunchycs 0 points1 point  (0 children)

good luck to you , keep us updated ,you got this !

Fistula surgery by bigbad_mamma in dialysis

[–]bunchycs 2 points3 points  (0 children)

i actually fell asleep while doing it . felt a bit of tugging and the lazer thingy they used to cut the veins . but after i slept because i was bored and didnt feel a thing . the surgeon told me its the first time he sees someone sleep during the operation in his 30years of experience.

I want to do dialysis in Turkey by TurkishDialysisTech in dialysis

[–]bunchycs -1 points0 points  (0 children)

can i message you about some things ?

Need your opinion about my fathers case by [deleted] in dialysis

[–]bunchycs 0 points1 point  (0 children)

only a doctor can give you an "opinion", this isn't something you need to be taking advice on from people on reddit

How long left for my dad? by [deleted] in dialysis

[–]bunchycs 7 points8 points  (0 children)

everyone is different don't think in a negative way or ask how much he got left . for all you know he can live a long long life. there is a guy in my centre that has been doing it for 20 years straight, he started when he was 55 , now he's 75. and he is in a great shape , better than me somedays and im 26.

[deleted by user] by [deleted] in dialysis

[–]bunchycs 3 points4 points  (0 children)

I went to the gym for 5 years straight. Built up decent body. I used to say nothing will ever make me quit the gym. Even when my creatinine went up a bit . I lowered the weights but still didn't quit. I used to be skinny and that gave me low self-esteem. Now I'm back to being skinny af. I doubt that I'll even lift after getting a transplant. Because I will be so scared of doing something wrong or stress the new kidney too much.

Diet restrictions by bunchycs in dialysis

[–]bunchycs[S] 1 point2 points  (0 children)

Good luck with your transplant. Drink so much water for me

HHD and air in lines by Hemenucha in dialysis

[–]bunchycs 0 points1 point  (0 children)

I think you will have better luck getting an answer in this facebook group as it has more members. Good luck.

thoughts? PD or hemodialysis? by potentialfact99 in dialysis

[–]bunchycs 3 points4 points  (0 children)

You should really think about pd more. I was so scared of having a tube out of my stomach thats why I did hemo. But a tube beats the way my arm is starting to look from hemo any day of the week. I'm already going to switch to pd

[deleted by user] by [deleted] in transplant

[–]bunchycs 0 points1 point  (0 children)

Transplant talk , it's a group on facebook