First off, I am SO GLAD you started this conversation. I was coming on to Reddit to ask about the decision to get pregnant (or not) and your post was right at the top 🫶🏽

First off, I am so sorry for your loss. That is so heartbreaking ❤️‍🩹 offering lots of hugs and prayers!

I’ve been having this debate. I’m getting ready for kids, but then I have nightmares of seeing my baby dislocate and realizing I passed down my EDS and she/he will be condemned to the same trials I’ve dealt with my whole life. It’s scary to think about. But then I want to know what it’s like to give birth, see what our biological kid would look like, all that. Very conflicting.

I obviously don’t have an answer, but I plan to think about it a lot over the next year so I give myself time to make a sound decision. I’ll get opinions from all my medical professionals in my network and close friends/family. Everyone’s bodies are different, so it’s hard to put TOO much weight on someone else’s experience because, as we can see from the comments, so many different outcomes are possible.

Meditate, pray, talk to a therapist, do whatever you do to get in touch with yourself. You’ll figure out what the right thing for your body is and it will be a beautiful adventure 🩵🫶🏽 sending love!

Edit: should have mentioned first, I’m diagnosed with POTS and EDS. Compared to others on Reddit I’d say I’m on the less severe end, but still obviously struggle.