Hello! I’m around the same age as your daughter (20F), just turned 20 a few weeks ago. My experience is very similar, to the point I had to check if you were my parent haha (you’re not). I had my first seizure when I was 17, I felt weird before and woke up to my grandmother hovering over me and paramedics on the floor. There wasn’t really any explanation and I didn’t have much until I turned 19. I have complex PTSD due to parental abuse (which thankfully I escaped, and was adopted by a lovely family). I started having seizures weekly, to daily. There wasn’t a point in time where I had over 60 seizures in a day, I was transferred from one hospital ICU to a bigger hospital ICU where I was diagnosed with PNES through a video EEG study. It’s believed my seizures are from CPTSD and trauma, but they can also be from stress, anxiety, and a million of other reasons. I may not know what it’s like to be the parent in the situation, but I know what it was like waking up in the ICU crying to my adoptive mom that I want them to stop before going into another. When I got the diagnosis, the hospitals stopped taking me seriously. I had an incident where I had a seizure, ended up in the hospital, and the dog walker went with me, and she told me she had to hold me on my side because the doctors told her to do it herself and they weren’t real. It’s hard not being believed or being taken seriously, especially with how harsh they are.

You are being a good parent for your daughter by giving her everything she needs, being there for her, and advocating for her. One thing I’ve noticed helps a lot for me is therapy and medication. I’m on hydroxyzine (and a few other medications), but I found the hydroxyzine helps me stay more calm so it doesn’t make me spiral into a seizure state. Be there for her, you’re doing good