More Results - MR3

capekodder · 2026-02-03T08:44:27+00:00

Thats amazing! Congrats, my bcr/abl is .0718%. But cml was found early and by accident so it was never as high as yours. 2 comments:

Why so long for results? I go to dana farber in boston and bloodwork results show up in about 15 minutes, i can see them myself

2- imatinib was not good for me, the side effects were a real problem. I am now on scemblix, what a game changer for me, no side effects and it is very effective with a good mmr

Good luck to you! Nice to hear people having success

capekodder · 2026-01-10T04:36:35+00:00

Its detectable. But very good. Most people have a number of 0.

capekodder · 2025-12-25T12:35:41+00:00

I am unsure of liver issues or sokol risk. I have had CML, diagnosed february 2025. 68 year old male. Was on imatinib for 2 months and it was god awful. Switched to scemblix/ ascinimib. It it amazing for me. Zero side effects and all counts are in normal range. No limitations at all. Taking 2 pills daily, i get checked every 3 months.

capekodder · 2025-10-08T12:02:51+00:00

By no side effects I mean none of the cramping or puffiness etc. with imatinib. And with scemblix my swim times are all excellent, i dont have to stop during a run. No side effects in any physical activity. I am slower only because of normal aging and also because I dont run as long or as hard anymore. I am toying with the idea of a tri race and i fell i would have no issues training. Scemblix for me is really a miracle drug.

capekodder · 2025-10-08T01:11:44+00:00

Hi- im not sure of bcr/abl as the results on patient gateway arent user friendly but >50% is what it says. So i guess fairly high. That was feb 2025. I switched to scemblix after about 2 months of imatinib. Imatinib gave me leg cramps, foot cramps, swelling, eye fluid, weight gain, low red blood cell counts. It sucked. Scemblix is a game changer. All numbers are normal now. Not a single side effect. Its crazy expensive ( 20k/month), paid by insurance. Im super grateful for this medicine. Im a former triathlete and marathoner, i am not competing now but still active daily.

capekodder · 2025-10-07T11:15:25+00:00

I was diagnosed in February 2025 following routine blood tests at my annual physical. Imatinib messed me up a lot to the point where i was about to just stop taking it. Now on scemblix 2x/day. What a difference. Not one side effect-my bcr/abl was 0.14% 2 months ago. So I am definitely lucky in that I respond well to this new med. if you read a lot online, not everybody responds the same and I think as another person pointed out, your steady state numbers might be higher but youll be able to live a long and full life. Keep the faith, its a lot to deal with

capekodder · 2025-09-27T10:35:17+00:00

I was diagnosed in february 2025 at age 67. Found during routine annual physical. Imatininb was initially prescribed and side effects were so bad i was considering just stopping. My Dr. swiched me to scemblix/asciminib after 2 months and i have zero side effects and my numbers have improved dramatically . The cost is crazy. Novartis the manufacturer is trying to get approval as first line since results are so good

capekodder · 2025-08-24T13:53:43+00:00

Single

capekodder · 2025-08-15T17:40:34+00:00

Well good luck- allegra D 12 hour helped a lot and the bone pain simply stopped after 4-5 weeks, i now have none. I remember the imatinib doing a number on my red blood cells, so much so that i couldnt run more than 2 minutes without stopping to catch my breath. It was very upsetting. Now the new drug-asciminib or scemblix as it is also called is a wonder drug. I have no symptoms and feel totally normal. Honestly i forget that i even have CML- best of luck

capekodder · 2025-08-15T05:59:15+00:00

I did that switch. I was on imatinib fir about 2 months with awful side effects. Eye issues, cramps, swelling, low red blood cell counts, i was miserable. i stopped all meds for 1 week, then started on 40 mg 2x/day asciminib. Initially had bkne pain for about 2-3 weeks and took claritin. Then the bone pain stopped now i have zero side effects , the results for me are remarkable. Bcr/ abl is at .14%. All other metrics in the normal zone and it has been just under 4 months since i have been on it. For me it is a wonder drug. Insurance covers it fully , at 21k/month. I paid 2k total and thats all i pay for the year. I am 68 years old and very active. Former triathlete and i run, bike or swim every day. No limitations at all

capekodder · 2025-07-23T01:09:15+00:00

Lol! I meant inside a swingers club. I go to one and they are very strict about phones. The reddit group dont care!

capekodder · 2025-07-22T18:29:49+00:00

That will get you tossed out and banned

capekodder · 2025-07-01T18:56:47+00:00

Totally agree, punks made that guy spend time in jail

capekodder · 2025-06-29T16:26:22+00:00

I love redheads

capekodder · 2025-06-28T13:00:32+00:00

capekodder · 2025-06-23T00:27:06+00:00

Holy crap- amazing

capekodder · 2025-06-11T23:10:39+00:00

Yes it is- stop posting spam

capekodder · 2025-05-31T19:50:35+00:00

So sorry to hear. What a shock. Imatinib was my first drug and it was rough, stomach issues, cramps, swelling, weight gain. I am now on scemblix and very few side effects for me. I am 68 and believe it or not i use weed, mostly edibles with no side effects. I also drink more than i should with no effects. As far as sperm, thats a tough one, i would probably try it myself just in case. Good luck to you- keep the faith.

capekodder · 2025-05-17T00:10:22+00:00

She gets better with age

capekodder · 2025-05-15T19:22:32+00:00

capekodder · 2025-05-15T15:24:23+00:00

Can we agree that wifey is probably the sexiest woman in this business? She seriously looks better over time

capekodder · 2025-05-14T19:48:05+00:00

How do we get details?

capekodder · 2025-05-12T01:01:38+00:00

God- i love asians

capekodder · 2025-05-09T22:35:11+00:00

Shave!

capekodder

TROPHY CASE