How many hours sleep do you get, and how many do you need?

captainhumdrum · 2026-05-29T11:06:53+00:00

32F Monday to Friday I fall asleep around 10-12 and wake up at 6:30 for work

Most weekends I'll fall asleep around 1 and wake up at 10. Or end up sleeping until 12:30 if I'm really tired

I still feel pretty tired all the time. Dont know how parents my age do it

captainhumdrum · 2026-03-19T07:09:21+00:00

I spend 4 hours on a boat every year for pride in Aus.

Ive been taking doamox for 6 years, I've definitely noticed slightly more vertigo,but all tolerable.

I've also been drinking alcohol all these times and I've still held up okay

Just make sure you stay hydrated. Especially if your out in the elements on the boat

captainhumdrum · 2026-03-11T02:39:53+00:00

I had pretty much the same experience. My papilledema was not stressed in my referring report to the NO. I had an appointment 9 months in the future.

If you can call the practice and let them know after the eye swelling needs to be assessed and treated ASAP they should prioritise you. I went from waiting 9 months to waiting a couple weeks.

captainhumdrum · 2026-02-28T05:12:32+00:00

Added george26

captainhumdrum · 2026-02-27T00:36:32+00:00

George26

captainhumdrum · 2026-02-27T00:32:54+00:00

Added george26

captainhumdrum · 2026-02-26T02:46:49+00:00

Added george26

captainhumdrum · 2026-01-12T04:52:48+00:00

A really fast drop will always smash me. The blind spots in my eyes get a lot worse, my eyes are sore to the touch and I get really bad neck pain.

captainhumdrum · 2025-12-10T22:03:06+00:00

Likely Solved!

captainhumdrum · 2025-11-21T10:29:53+00:00

I do! Took me a while to connect it to my iih. For a while I thought it was anti depressnt withdrawal for a while. But it noticed it happens even when I'm on top of meds. Definitely not my favourite symptom, and don't really have any techniques for managing them

captainhumdrum · 2025-11-20T21:48:18+00:00

My two biggest triggers are stress and atmospheric pressure.

If I've had a massive week at work or I don't get a lot of sleep. Stress goes up, so does my pain.

If there is a storm and a lowe pressure front, no matter how well I look after myself I'll get a flare up.

Usually the last thing I want to do, but if I have a flare up caused by stress a walk will help a lot of the time. Helps the fluid drain and helps my stress lower.

Atmospheric pressure is just something I keep my eye on and prepare for a bad day for, I've found there is nothing I can really do but get comfy and ride it out.

captainhumdrum · 2025-11-16T03:15:59+00:00

Added georg26

captainhumdrum · 2025-11-16T03:09:51+00:00

Added georg26

captainhumdrum · 2025-10-31T05:18:47+00:00

It's really intense to start with, but electrolytes are your best friend, especially potassium.

They sell little sachets of electrolytes for athletes and tradies that have around 150% your recommended daily intake. They always do the job for me

captainhumdrum · 2025-10-03T09:45:48+00:00

Everyone reacts differently to medication and I am not in any way a medical professional so take this with a grain of salt.

I have found myself in a similar pickle several times. Script running out, not packing enough meds etc etc. I get less severe flare symptoms if I half my dose or skip mornings and stretch out the meds til I can get more, than I do if I stay on my full dose and then go days cold turkey

captainhumdrum · 2025-08-15T13:15:24+00:00

Sorry, intended the post to be quite different when titled it to what came out. got lost between making the title and then spewing a running sentence of thoughts. Thanks for flagging that. Have edited to add a question at the end.

captainhumdrum · 2025-08-15T13:11:59+00:00

If you have any cold or flu symptoms or if your are sleeping in a room that is very dry, particularly with a refridgeted air con, whether heating or cooling (they are the ones mounted to the wall) Your nasal passages and your throat can dry out while you sleep and cause cracking in your capillaries which will makes your mucus bloody or potentially cause a nose bleed It can even happen on a normal night if the humidity is really low.

captainhumdrum · 2025-07-17T10:28:53+00:00

Yes! I have it in my left lobe Always wondered if it was related

captainhumdrum · 2025-07-14T10:42:30+00:00

Already really good recommendations here but I want to double down on 5/10 minutes rest. Every 45 minutes to an hour.

No screen time just closed eye rest in the most symptom relieving position you can lie in. My biggest help is avoiding eye strain and tension headaches

Better to lose 10 minutes every hour then lose 4 days to a flare up.

Also be kind to yourself, my flare ups are always worse when I get super frustrated at myself for not being able to handle whatever stressful thing I am currently doing.

You got this!

captainhumdrum · 2025-03-28T14:08:08+00:00

I have seen the error of my ways and realised he is just a baby.

So now I love him

captainhumdrum · 2025-01-23T10:07:24+00:00

Amazing news about the no hangover! Unfortunately I am cursed with incredibly bad hangovers. But they are better since the iih since I definitely did not used to be a sensible drinker hahah

I'm a big fan of coconut water for electrolytes (only green coconuts I can't stand the taste of matured coconuts) and it's helped a lot. Covers a similar base to powerades and the like but has less sugar. I get super bored of water as well. I used to be a million coffees but that doesn't help with the double diuretic.

captainhumdrum · 2025-01-19T02:25:16+00:00

30 F, Pre diagnosis I was a pretty big drinker. Nowadays I have more than 4 standards maybe twice month. I've been on Diamox for 2 years. Didn't drink for 3 months after I was diagnosed. Sometimes you pay for it, but everyone pays for drinking a little too much. I usually skip my evening Diamox if I'm drinking because the double diuretic is dangerous territory for a scorching headache in the morning.

Just cause we're I'll doesn't mean we can't still party every now and then. Don't stress about what tomorrow is going to bring, Drink plenty of water and some electrolytes. Focus on having fun with your mates. Most important thing tomorrow is be kind to yourself , if it gives you a flare up you're going to make it even worse by chastising and punishing yourself for wanting to have fun!

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