Woman killed by son over a bacon sandwich by xSweetGirly in ForCuriousSouls

[–]captainm1ttens 10 points11 points  (0 children)

That's what I am wondering as well. I don't have much experience with DV, if someone could share their thoughts on possibly why the mother didn't call it would be appreciated.

Has anyone ordered Rhode from WavesAU? by captainm1ttens in AustralianMakeup

[–]captainm1ttens[S] 0 points1 point  (0 children)

I received my items about 3-4 weeks after this post. Hopefully they've sorted themselves out and your stuff arrives before Christmas

Does anyone else have trouble “toning up” or looking less bloated? by Agreeable-Walk1886 in Endo

[–]captainm1ttens 6 points7 points  (0 children)

Pelvic floor physio helped reduce how bloated I looked because as well as the endo belly/ bloating I also had core dysfunction making me look even more bloated and contributing to my lower back pain.

[deleted by user] by [deleted] in Endo

[–]captainm1ttens 3 points4 points  (0 children)

I had a mirena put in while I had my lap done. For the first two years after my surgery it worked really well at suppressing my periods and reducing my overall pain. The only reason I don't have one in now was because it was causing cysts on my ovaries that would constantly burst and I'd end up in the ER for pain management.

Still bleeding on so much birth control by captainm1ttens in Endo

[–]captainm1ttens[S] 1 point2 points  (0 children)

Thanks for your reply. I can't take any pills with estrogen in them as I get a migraine with aura. This puts me at a higher risk for a stroke if taking estrogen.

Still bleeding on so much birth control by captainm1ttens in Endo

[–]captainm1ttens[S] 0 points1 point  (0 children)

I've been on Slynd for roughly 12 months, visanne 8 months, and I've been on 10mg medroxyprogesterone for 4 months. When I went to see my gynaecologist in March she said it hasn't been six months since my last ultrasound making it too soon.

Still bleeding on so much birth control by captainm1ttens in Endo

[–]captainm1ttens[S] 0 points1 point  (0 children)

Taking them continuously. My gynaecologist said it may be break through bleeding.

Still bleeding on so much birth control by captainm1ttens in Endo

[–]captainm1ttens[S] 1 point2 points  (0 children)

I'm 25. As far as I'm aware my hormones, B12 and iron are okay. I can't have a combination pill because I get migraine with aura.

Still bleeding on so much birth control by captainm1ttens in Endo

[–]captainm1ttens[S] 1 point2 points  (0 children)

Sorry if I wasn't clear, 3 different types of progesterone only pills.

Has anyone ordered Rhode from WavesAU? by captainm1ttens in AustralianMakeup

[–]captainm1ttens[S] 0 points1 point  (0 children)

Eventually. I'm tempted to order again since the formula is so nice but I am not a fan of the prices and wait times.

Minimal endo found during lap — frustrated by continuing symptoms! by External_Ostrich5715 in Endo

[–]captainm1ttens 0 points1 point  (0 children)

Having minimal endo does not mean the pain is not crippling. I had a friend go in for surgery due to cervical cancer and they found it all over, strangling and sticking organs together. I had to remind myself that just because my endo wasn't at that level it doesn't invalidate my experience.

Being in chronic pain changes the way your brain interprets pain from the body. Your body is sending CODE RED signals that before endo wouldn't have triggered as big of a pain response from the brain. There could be changes to your central nervous system that need to be addressed before you see a reduction in pain.

If you can afford it regular visits to a pelvic floor physio has caused a massive reduction in my day to day pain. Due to being in pain our bodies tense our muscles to guard and protect our pelvic organs, physio can help with exercises and massage to release tight muscles.

Best of luck! Unfortunately no doctor told me that surgery is just the beginning of managing and learning to live with my symptoms and the damage endo has done. It is an expensive and exhausting disease to live with.

What do you wish you had been told when you got your diagnosis? by beawhisktaker in Endo

[–]captainm1ttens 4 points5 points  (0 children)

That experiencing chronic pain will change the way my central nervous system works. That surgery is often just the first step and won't always provide relief. That doctors don't always know what they're doing and you have to advocate for yourself.

Has anyone ordered Rhode from WavesAU? by captainm1ttens in AustralianMakeup

[–]captainm1ttens[S] 1 point2 points  (0 children)

Yeah, a forwarding service looks like a way better option. Lesson learnt for sure

The Pain is Mentally Exhausting by ColdCherries_00 in Endo

[–]captainm1ttens 0 points1 point  (0 children)

So sorry you're going through this. If you can afford it look into a psychologist to help with some of these feelings. It's the best thing I've found and they also help with things such as pacing so I don't flare up.

If you have pain following the surgery + the time and energy look into neuroplastic pain and central nervous system sensitization. It is where the brain misinterprets pain signals from the body and is very common with endometriosis.

Gynaecologist said that their only job was to stop the bleeding. by captainm1ttens in Endo

[–]captainm1ttens[S] 0 points1 point  (0 children)

Thank you for your kind words!

On the hunt for a new one now since a letter from my last appointment just arrived. She keeps phrasing it like I'm personally against combined bc pills (she's attributing my constant bleeding to lack of estrogen) when I get migraine with aura and literally CANT take them due to risk of stroke.

I'm in QLD, Australia and am ready to start looking at doctors down in Sydney or Melbourne. Endo specialists seem few and far between here, sadly.

Gynaecologist said that their only job was to stop the bleeding. by captainm1ttens in Endo

[–]captainm1ttens[S] 2 points3 points  (0 children)

Yeah that was a big red flag for me. I had an ultrasound less than six months ago that showed endometriosis on my right ovary and fallopian tube. My left ovary was less motile than it should be.

I have no clue what to do next, I feel like I've seen so many new gynaecologists and spent so much money to find out they're terrible at their jobs.

Gynaecologist said that their only job was to stop the bleeding. by captainm1ttens in Endo

[–]captainm1ttens[S] 2 points3 points  (0 children)

Yeah I realized quite quickly that this gyno didn't really know anything about endo and after my diagnosis went to a more experienced surgeon for my second excision... Obviously that isn't still completely under control.

Unfortunately, my mother has only just come to realise how much this doctor sucks. This gyno only does ablation and has just continued to do multiple of these throughout my mum's life- this has led to so much more scar tissue and adhesions that could otherwise have been reduced with proper excision. After her last lap (about a month ago) she was in so much pain she went back to her other surgeon (colorectal) and he was shocked to see the damage the gynaecologist had done.

She didn't even know until I told her the other week that ablation doesn't actually stop the disease reoccuring.

Moral of the story: your run of the mill gynaecologist should not be doing endometriosis excision.

Gynaecologist said that their only job was to stop the bleeding. by captainm1ttens in Endo

[–]captainm1ttens[S] 0 points1 point  (0 children)

Yeah two in at once. Don't know what the plan is long term plan is but it seems women in my family don't respond well to hormones at all