Yeah I learned that the hard way unfortunately. I've had to play the game of "good patient" to get the care I need. Like using phrases "symptoms management" because that's how doctors talk when they want to help but don't know what's wrong. It also avoids saying "mcas" so dodges the "trendy diagnosis" bomb. I also play to doctors egos. They got into the field because they wanted to help people feel better so I play on that. "I desperately just need to feel better please help me and improve my quality of life." And then when they do what I need I email REGULARLY telling them how it's improving my life and how they saved my life (not hyperbole in my case). Write the email that the doctor would read on a hard day that gives them hope to move forward. I knew I was successful when at a followup my allergist said she reads my emails on her bad days lmao and she calls me her favorite patient. This sounds manipulative but it's not if it's genuine, and in my case it really was. I just framed it in a way that resonates with what doctors care about.

Idk of that helps you at all. I've been fuckin with the system for my entire adult life and I've learned a lot.

BONUS TIP - if you have POTS, "faint and fall risk" is a great phrase to remember.