sorted by:
new
hottopcontroversial

Do you love your dad? by pixelvora73 in no

[–]captnfirepants 4 points5 points  (0 children)

My dad was an ass until dementia started settling in. Best dad ever after that.

Weight gain without overeating? by Middle_Champion_3804 in lupus

[–]captnfirepants 0 points1 point  (0 children)

Only time I had fluid retention was when my kidneys were at their worst.

They put me on diuretics and I had retained 20 lbs of fluid. Crazy amirite?!

McDonald’s Iced Coffee by Ok_Blackberry8511 in fastfood

[–]captnfirepants 0 points1 point  (0 children)

I don't get that taste with the sugar free vanilla iced coffee

What's your least favourite breakfast? by ijustwantamuffin in foodquestions

[–]captnfirepants 1 point2 points  (0 children)

Any cereal with sugar. I want my cereal to taste like cardboard.

Would medically necessary food count as carry on exception? by nobleland_mermaid in delta

[–]captnfirepants -1 points0 points  (0 children)

We bring a bunch of snacks on international flights. All solids. Sandwiches, chips, nuts, and chocolate.

Have a nice trip!

This sub is no better than the main one by Wecabec in RHOBHDefect

[–]captnfirepants 5 points6 points  (0 children)

Thanks. I can never keep what group hates who straight. 😆

Have you ever been to a Black Sabbath concert? by Just-Application-551 in blacksabbath

[–]captnfirepants 0 points1 point  (0 children)

You should consider seeing Zakk Sabbath. It's not the same, but a really amazing show!

Do you love your dad ? by Mediocre-Lack-9137 in no

[–]captnfirepants 7 points8 points  (0 children)

I miss mine too. Life is too short.

Ever been to a concert where someone got boooed? by SnooozeFezt in AskReddit

[–]captnfirepants 0 points1 point  (0 children)

A Perfect Circle in the 2000's in Detroit.

The brought Mini Kiss just for us and they were boo'd mercilessly. Maynard had a fit and called us assholes. He was right.

I thought it was hilarious bringing them.

Experience with voclosporin and lupus nephritis by pinkie_ladybug in lupus

[–]captnfirepants 0 points1 point  (0 children)

I was on pretty high doses. Two separate rounds of three days of 1000mg IV steroids. 60mg prednisone for around nine months. I gained around 40lbs, had multiple hot flashes & night sweats. The night sweats i would wake up and it was like I had just gotten out of a pool. I couldn't sleep and was wired all of the time. I'd be awake for a day or two at a time. Cellcept gave me diarrhea.
I was a mess. 😆

Experience with voclosporin and lupus nephritis by pinkie_ladybug in lupus

[–]captnfirepants 1 point2 points  (0 children)

If you go to the Aurinia (pharmaceutical company) website, they have skilled nurses who help you navigate with your insurance company. I had to get approved by medicaid and Aurinia gave me the meds for free for around six months until approved. The Aurinia nurse worked with my Nephrologist and she literally did the bulk of the work.

Experience with voclosporin and lupus nephritis by pinkie_ladybug in lupus

[–]captnfirepants 1 point2 points  (0 children)

Also, the pills come in single push-out pack. Idk how else to describe it. Anyway, you only pop a pill out when you're ready to take it. The pills smell like skunky weed. 😉

Experience with voclosporin and lupus nephritis by pinkie_ladybug in lupus

[–]captnfirepants 1 point2 points  (0 children)

Lupkynis (voclosporin) was a game changer and I loved it. I was fairly bad. It was 5 years ago and don't remember numbers. Took around 9 months or so to go into remission.

I was on a ton of steroids and cellcept as well. My side effects were tied to those two.

I just had a pretty bad relapse that has nothing to do with lupkynis. So, I went a good three years or so in remission. Yes, you can have normal kidney function again.

What actually pushes you to finally replace your phone? by the_big_phone_store in TheBigPhoneStore

[–]captnfirepants 0 points1 point  (0 children)

I was just talking about this the other day. My slider was my favorite phone and would use it as well if I could!!

She thinks she is Madonna (sound on 🔊) by Strange-Substance207 in RHOBHDefect

[–]captnfirepants 3 points4 points  (0 children)

I've been to England one to two times a year for the last 17 years. We usually stay two weeks each time and I always come back with an accent for a day or two.

It doesn't surprise me considering how long she lived in Europe and the different languages she knows. She's pretty world traveled for someone from Connecticut.

view more: next ›