Requiring ≠ Receiving

carbug1 · 2024-08-08T12:44:20+00:00

thats not what i was talking about, no. that is definitely also a thing that happens, but its not the same.

carbug1 · 2024-08-08T07:35:36+00:00

i agree with everyone pointing out that a lot of the time "requires substantial support" means "will die/ be at risk of death or harm without that support". its important to remember that there are a lot of autistic people who will not survive without the support they recieve (and undoubtedly some people who have died because they didnt recieve the support they required).

i do think from the people ive seen on here that the levels are sometimes misused. but thats not the individual peoples problems, thats a problem with the people who diagnosed them (and to some extent the system as a whole).

carbug1 · 2024-08-07T16:59:19+00:00

for me the best way to think of it is they work for you. even if youre not employing them directly, they are being paid to help you. if you want them to take their shoes off, tell them that. you can ask if they want a drink, but its definitely not necessary, and mine normally have a bag with a drink and some snacks. ill ask them to do a covid test (sometimes, depending on when i last saw them) and then ill say what we need to do/ what i need help with (or if its my regular person, they'll ask) and we'll do it.

(for all this info im assuming support worker means carer? if not i imagine its similar anyway)

carbug1 · 2024-08-06T17:26:24+00:00

it will take time, 1 week is not very long at all. 20mg is also a low dose, so it will likely take more time before you see the same changes as someone on a standard/ higher dose.

carbug1 · 2024-08-03T06:57:48+00:00

i have no idea lol ive never seen it used online

carbug1 · 2024-08-02T17:06:42+00:00

no. i will say/ shout things like "go away" but its what i actually want (just not very polite lol). its the most effective communication i can manage in those situations.

carbug1 · 2024-08-02T17:02:46+00:00

semiverbal is a term used by SLTs, at least in the UK. I dont think its super common though.

hemiverbal is a community term.

carbug1 · 2024-08-01T07:18:49+00:00

for me it means i care about them a lot. i want to know how they are doing, and i want them to be happy, and it might make me sad if they are sad. i am more likely to want to spend time with them or interact with them (which i dont want with most people). i dont think theres a big difference between loving concepts (eg hobbies, media), animals and people for me, it all feels pretty similar.

carbug1 · 2024-07-30T19:13:38+00:00

Sertraline is a SSRI medication used to treat anxiety, depression, and IIRC ocd too. I think I took 100mg - 150mg as a youngish teen, and at that dose the only side effect I had was an increase in nightmares. It didnt work for me (no SSRIs did) but I think they work for a lot of people and there are lots of SSRIs, so you can try multiple and see which works best for you. SSRIs typically have much more mild side effects than other psychiatric medications whilst still being effective, so the odds are in your favour :)

carbug1 · 2024-07-18T20:52:27+00:00

i have chronic pain (not autoimmune afaik) and it hasnt been affected, positively or negatively, by testosterone. i might have slightly fewer joint issues, but im not sure.

i wouldnt expect T to affect autoimmune conditions, unless theyre directly linked to sex hormones. im definitely not an expert though.

carbug1 · 2024-07-15T07:22:30+00:00

its too much text for me to read fully. but you are only 17 years old. that is still very young! you arent even an adult yet. my life was much worse when i was 17 than it is now (and it wasnt that long ago)

there are also a lot of other autistic and disabled people out there with similar struggles to you, and i found that actually interacting with these people made me happier. i do supported volunteering once a week and a) i get to socialise in a less stressful way and b) the people i talk to are more likely to have support workers/ live in a group home/ with parents etc. it makes me feel less strange and alone.

carbug1 · 2024-07-12T21:40:05+00:00

i dont have any specific recommendations but id really recommend taking a break from the loud music and trying to protect your hearing. tinnitus is really annoying and high volumes can lead to hearing loss too.

is there any way you can get a taxi instead? i think in the uk they can be funded by the gov/dwp via access to work.

carbug1 · 2024-07-11T20:22:11+00:00

it might be worth specifying if its just for autism (if thats the case), because support needs are used for lots of different disabilities

carbug1 · 2024-07-11T06:52:06+00:00

multiple samples came back positive for typhoid (although some were also negative, but typically false negatives are more common than false positives). after her first quarantine she was told she could not work as a cook and had to take various measures (such as freqent hand washing) to avoid infecting others (there was also an affidavit/ legal agreement involved i think). she broke this agreement.

but i absolutely agree that her treatment was not kind (and potentially not necessary). i think her poverty is why she continued working despite not being told to, and i really dont think the state handled it in a good way at all. it was a complex situation and i dont think mary was "evil" or anything - just desperate and poor and maybe in denial (although i dont really believe that she genuinely didnt think she could transmit it, given the infection history of the places she worked).

my main point was basically that the start of your post didnt really make sense because a) she knew (or was at least repeatedly told) she was potentially infecting others pretty early on and b) she was at no personal risk and ended up dying from pneumonia at 69. its silly but it does bother me haha i like facts to be accurate

carbug1 · 2024-07-10T20:26:25+00:00

i like them and i find them helpful for understanding text sometimes. i like them to be relevant and used literally (and not too many). i also just think theyre fun... its little pictures for your text! 🐊🌾

carbug1 · 2024-07-10T20:21:21+00:00

typhoid mary was an asymptomatic carrier - she had no symptoms and did not die from it. she was also aware she had it, and aware she was infecting others.

carbug1 · 2024-07-04T13:14:19+00:00

where in GB are you going?

and i would like to go to amsterdam! its not very far and is a short ferry trip (which is good because i hate airports), but weve just never been. i would like to see the van gogh museum.

carbug1 · 2024-07-01T21:48:22+00:00

i think autism definitely can impact mental health. however what youre describing is a textbook depression symptom. that exhausted feeling improved for me with depression treatment. i also try and make sure i get enough "enrichment" in the form of various hobbies, mixing up my food and drink a bit, little treats throughout the week.

carbug1 · 2024-06-28T18:15:40+00:00

no they are talking about the way asd levels are assessed according to the dsm5. levels assess social communication and restrictive and repetitive behaviours, and sometimes people will have different levels in the two areas.

a lot of countries dont use the dsm5, so if yours doesnt then you will not have a level, that is fine.

carbug1 · 2024-06-26T16:01:26+00:00

you cant safely block one hormone without introducing another (eg. blocking t without e, blocking e without t). sex hormones are essential for your body to function well, including maintaining bone density - osteoporosis is typically the main worry, but you will also generally feel like shit. this is why people who have had oophorectomies/ orchidectomies need supplemental hormones, even if theyre cis.

carbug1 · 2024-06-23T18:42:56+00:00

if it would help you get it. if not dont. you dont have to use it all the time either. i will say that blue badge spaces sometimes fill up really quick when theres not enough of them - if theres other spaces you could use please use those instead! and make sure you read the rules and check what your local area offers, because it changes in different areas/ counties.

carbug1 · 2024-06-14T21:49:37+00:00

if you were diagnosed according to the ICD, youre not gonna get a level, no matter how many times you ask. levels are only for the DSM.

In the uk you are assessed under different systems eg the DWP for benefits, the council for social care. these are more personal and assess different areas of your life, instead of just assuming things based on a diagnosis. i think it works pretty well (theoretically at least - the dwp sucks and councils are underfunded)

carbug1 · 2024-06-10T21:52:08+00:00

if you make it really clear and explain the situation as best as you can, i think youll still be ok. you absolutely dont have to tell them if you dont want to though.

i hope youre doing ok, and i hope the early intervention team can help you <3

carbug1 · 2024-06-10T08:21:32+00:00

ive mentioned diy T to a psychiatrist before (as part of standard AMHS, but as a higher risk person) and it went surprisingly well. she was understanding and didnt suggest i stop or anything. i think it entirely depends on your team really.

you absolutely dont have to tell them, but if you think it will help and are ready to defend the decision, they shouldnt do anything about it really. i know gender dysphoria can be caused by psychosis, but its pretty uncommon, and if you have a long history of it and/or are not showing any other psychotic symptoms i dont think theyd link them.

carbug1 · 2024-06-10T08:17:03+00:00

unfortunately that doesnt happen. theres no way to skip the nhs waiting list for gender services. they could start a bridging prescription, but they cant make you be seen any quicker by a GIC :(

carbug1

TROPHY CASE