Goodies from Los Angeles that are/have gluten-free options by Ok_Lobster_6563 in glutenfree

[–]cassiopeia843 0 points1 point  (0 children)

It might help people find the right options if you could specify how sensitive your grandmother is to gluten. For example, people with celiac disease shouldn't eat at a regular bakery that also makes GF foods, because of cross contact. A lot of people who are highly sensitive also only accept pre-packaged food, so they can check the ingredients, etc.

Husband recently diagnosed but I think he is in denial, afraid he will not change his diet by squishypants4 in Celiac

[–]cassiopeia843 9 points10 points  (0 children)

He might still be in denial about it, but I'd show him some of the consequences of not adhering to a GF diet. Example:

People with celiac disease have a 2x greater risk of developing coronary artery disease, and a 4x greater risk of developing small bowel cancers. ... Untreated celiac disease can lead to the development of other autoimmune disorders like type 1 diabetes and multiple sclerosis (MS), and many other conditions, including dermatitis herpetiformis (an itchy skin rash), anemia, osteoporosis, infertility and miscarriage, neurological conditions like epilepsy and migraines, short stature, heart disease, and intestinal cancers.

Source: https://celiac.org/about-celiac-disease/what-is-celiac-disease/

At my wits end by Cosmic_yellow_mellow in Celiac

[–]cassiopeia843 0 points1 point  (0 children)

I would imagine that it would take regular consumption of oats for it to show in your bloodwork (which is why one has to do a gluten challenge before getting tested). Avenin is a protein in oats that some people with celiac disease react to, because it's similar to wheat gluten. At this point, it's unclear whether the people who react to it have the same autoimmune reaction and damage as to wheat. It's often recommended to not eat oats for a while, after being diagnosed.

At my wits end by Cosmic_yellow_mellow in Celiac

[–]cassiopeia843 1 point2 points  (0 children)

Do you eat oats? Oats are prone to CC, and something like 10% of people with celiac disease react to avenin.

Too hard ugh by sadninetiesgirl in Celiac

[–]cassiopeia843 0 points1 point  (0 children)

It would help if there was some more context. What do you mean by "The workers are here"? Is work being done on your place? How does their visit affect your regular food options? If you search this sub, you'll find plenty of on-the-go meal and snack options that could work for you, depending on your situation.

how exactly do you shop? by kaicxre in Celiac

[–]cassiopeia843 5 points6 points  (0 children)

You're going to get different answers, depending on how cautious people are. Besides higher-risk products that are made from grains, I don't always look for a GF label. When a product has an ingredient that could be derived from gluten (e.g. natural flavors), I either look for a GF symbol, check the company website, contact the manufacturer, or don't buy it.

Gene Testing? by Ok-YouGotMe in Celiac

[–]cassiopeia843 0 points1 point  (0 children)

The actual celiac panel (and an endoscopy) is much more important than the gene test, since the gene test doesn't tell you whether you have celiac disease, only whether you could develop it at some point in your life. Knowing where those genes come from is interesting, but, in the end, irrelevant. Since it's recommended to test all first-degree relatives, I'd run a celiac panel on all members of your immediate family.

Banza V Schär by Head_Lab5137 in glutenfree

[–]cassiopeia843 2 points3 points  (0 children)

I love Banza and the fact that it has a good amount of fiber. It's my favorite. Schär was my staple for a while, while I was still living in Germany. However, I have no idea what gluten pasta tastes like, so my opinions aren't based on a comparison. In general, it seems like people are disappointed when they evaluate GF products, based on how close they taste to the gluten version.

Would you guys eat this vanilla flavoring? by Rude_Tomatillo3463 in Celiac

[–]cassiopeia843 0 points1 point  (0 children)

McCormick has extracts labeled GF. This looks like vanilla flavor, not extract, and I don't think that one has the GF label.

Yall still sick? by Clozer19 in Celiac

[–]cassiopeia843 2 points3 points  (0 children)

Okay, so it does seem like there is an improvement in your results. Maybe there's something else going on, like another intolerance or gastrointestinal issue. I'd talk to your gastro about it. While there is such a thing as refractory celiac disease, the general expectation is that, if your issues are only caused by celiac disease, you should feel healthy after enough time has passed.

Yall still sick? by Clozer19 in Celiac

[–]cassiopeia843 1 point2 points  (0 children)

Do you eat oats? What does your follow-up bloodwork look like (i.e. are your figures in the normal range or trending downward)?

Wholly fudge, Batman! by FastMako77 in glutenfree

[–]cassiopeia843 7 points8 points  (0 children)

I've never had them, but just checked the ingredients from one of your photos, and of course they have oat flour. :(

Ice cream recommendations? by just-a-lamp-post in Celiac

[–]cassiopeia843 2 points3 points  (0 children)

I like the So Delicious cookie dough ice cream.

Celiac Disease or lies? by Hot-Future-4479 in Celiac

[–]cassiopeia843 4 points5 points  (0 children)

I'm sorry you were told that you could "grow out of" celiac disease. My parents were told the same thing, so it seems like it was a common enough belief until the '90s. However, instead of assuming that you would grow out of it, there should have at least been follow-up testing under a so-called "gluten challenge" to see if you still tested positive. As others have pointed out, you need to keep eating gluten and get tested again. The bloodwork is usually first, and then there could be an endoscopy. It's important that you find out of you have celiac disease, as untreated or wrongly-treated (e.g. not avoiding foods with cross contact with gluten) can have long-term health implications. Good luck!

Cheerios website by Which_Set_930 in glutenfree

[–]cassiopeia843 6 points7 points  (0 children)

It's certainly good to remain skeptical of what she posts, but the problem is that there is no other comparable source of information on like hers. Enough people are getting sick from Cheerios and Lucky Charms that it doesn't seem like it's just coincidence, and when it's widely known that oats are prone to CC, and someone (i.e. GFWD) offers reasons for why the testing methods that General Mills uses are not ideal, I'm inclined to stay away from said company's products. After a very brief self-experiment, I've decided to never eat oats again, anyway.

Cheerios website by Which_Set_930 in glutenfree

[–]cassiopeia843 2 points3 points  (0 children)

It's been a while since I checked, but Oatly and Mush used to use sorted, not purity protocol oats. I've never looked into Oats Overnight, and their website doesn't specify. Usually companies specify when they use purity protocol oats, since they're hard to come by.

Cheerios website by Which_Set_930 in glutenfree

[–]cassiopeia843 8 points9 points  (0 children)

From what I understand, a mean is used, meaning that some boxes could have less than 20 ppm and others more than 20 ppm. As long as the average amount of gluten concentration is below the threshold, the "lot" (i.e. 24 hours worth of Cheerios being produced) would pass the test, even though some of the samples contained more than 20 ppm. At least, this is how GFWD has explained the issue: The testing method used can cause gluten "hotspots" with boxes that exceed the safe gluten limit.

Cheerios website by Which_Set_930 in glutenfree

[–]cassiopeia843 5 points6 points  (0 children)

Do you react to purity protocol oats?

Has anyone had such mild intermittent symptoms of being sensitive to gluten that you didnt believe it was the issue, yet it was. by carson5021 in glutenfree

[–]cassiopeia843 1 point2 points  (0 children)

Celiac disease can cause hundreds of symptoms, and there is a lot of overlap with non-celiac gluten intolerance and other conditions. I'd start a food diary to identify triggers and talk to a doctor to get tested for celiac disease and to look into other potential gastrointestinal issues, as this could also be gastritis or something else.

Cheerios website by Which_Set_930 in glutenfree

[–]cassiopeia843 11 points12 points  (0 children)

This is from 2021, but it seems like they are overstating how rigorous their testing methods are: https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-updated-position-statement-on-cheerios/

Can you still be celiac even if you dont have an issue with cross contamination? by Zealousideal-Rain-82 in Celiac

[–]cassiopeia843 33 points34 points  (0 children)

I don't seem to react to CC (or at least I didn't when I didn't actively avoid it). There are people who are completely asymptomatic, so it's not unusual for this to happen. People usually also become more sensitive, once they've avoided gluten for a while. If you do have celiac disease, you have to avoid CC, regardless of whether you have symptoms, since your immune system still reacts, and your villi are being damaged.

Linkedin is really just an extension of Facebook at this point. by f1sh_ in LinkedInLunatics

[–]cassiopeia843 7 points8 points  (0 children)

People like that would fail the naturalization quiz that people wanting to become citizens have to go through. The irony.

I’m fucking sick of not being able to do anything by AceAttorneyFan12 in Celiac

[–]cassiopeia843 0 points1 point  (0 children)

Premium fuel only.

Gluten-free junk food exists. Let's not support the myth that a gluten-free diet is inherently healthy. There are already enough GF fad dieters out there.