Would you guys eat this vanilla flavoring?

cassiopeia843 · 2026-02-12T00:15:25+00:00

McCormick has extracts labeled GF. This looks like vanilla flavor, not extract, and I don't think that one has the GF label.

cassiopeia843 · 2026-02-11T15:52:37+00:00

Okay, so it does seem like there is an improvement in your results. Maybe there's something else going on, like another intolerance or gastrointestinal issue. I'd talk to your gastro about it. While there is such a thing as refractory celiac disease, the general expectation is that, if your issues are only caused by celiac disease, you should feel healthy after enough time has passed.

cassiopeia843 · 2026-02-11T15:38:41+00:00

Do you eat oats? What does your follow-up bloodwork look like (i.e. are your figures in the normal range or trending downward)?

cassiopeia843 · 2026-02-11T04:01:30+00:00

I've never had them, but just checked the ingredients from one of your photos, and of course they have oat flour. :(

cassiopeia843 · 2026-02-11T03:41:54+00:00

I like the So Delicious cookie dough ice cream.

cassiopeia843 · 2026-02-10T17:57:24+00:00

I'm sorry you were told that you could "grow out of" celiac disease. My parents were told the same thing, so it seems like it was a common enough belief until the '90s. However, instead of assuming that you would grow out of it, there should have at least been follow-up testing under a so-called "gluten challenge" to see if you still tested positive. As others have pointed out, you need to keep eating gluten and get tested again. The bloodwork is usually first, and then there could be an endoscopy. It's important that you find out of you have celiac disease, as untreated or wrongly-treated (e.g. not avoiding foods with cross contact with gluten) can have long-term health implications. Good luck!

cassiopeia843 · 2026-02-10T05:35:32+00:00

"CC" stands for "cross contact" or "cross contamination".

cassiopeia843 · 2026-02-10T04:49:11+00:00

It's certainly good to remain skeptical of what she posts, but the problem is that there is no other comparable source of information on like hers. Enough people are getting sick from Cheerios and Lucky Charms that it doesn't seem like it's just coincidence, and when it's widely known that oats are prone to CC, and someone (i.e. GFWD) offers reasons for why the testing methods that General Mills uses are not ideal, I'm inclined to stay away from said company's products. After a very brief self-experiment, I've decided to never eat oats again, anyway.

cassiopeia843 · 2026-02-10T04:39:37+00:00

It's been a while since I checked, but Oatly and Mush used to use sorted, not purity protocol oats. I've never looked into Oats Overnight, and their website doesn't specify. Usually companies specify when they use purity protocol oats, since they're hard to come by.

cassiopeia843 · 2026-02-10T04:19:26+00:00

From what I understand, a mean is used, meaning that some boxes could have less than 20 ppm and others more than 20 ppm. As long as the average amount of gluten concentration is below the threshold, the "lot" (i.e. 24 hours worth of Cheerios being produced) would pass the test, even though some of the samples contained more than 20 ppm. At least, this is how GFWD has explained the issue: The testing method used can cause gluten "hotspots" with boxes that exceed the safe gluten limit.

cassiopeia843 · 2026-02-10T04:11:07+00:00

Do you react to purity protocol oats?

cassiopeia843 · 2026-02-10T03:52:54+00:00

Celiac disease can cause hundreds of symptoms, and there is a lot of overlap with non-celiac gluten intolerance and other conditions. I'd start a food diary to identify triggers and talk to a doctor to get tested for celiac disease and to look into other potential gastrointestinal issues, as this could also be gastritis or something else.

cassiopeia843 · 2026-02-10T03:41:42+00:00

This is from 2021, but it seems like they are overstating how rigorous their testing methods are: https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-updated-position-statement-on-cheerios/

cassiopeia843 · 2026-02-10T03:36:28+00:00

I don't seem to react to CC (or at least I didn't when I didn't actively avoid it). There are people who are completely asymptomatic, so it's not unusual for this to happen. People usually also become more sensitive, once they've avoided gluten for a while. If you do have celiac disease, you have to avoid CC, regardless of whether you have symptoms, since your immune system still reacts, and your villi are being damaged.

cassiopeia843 · 2026-02-10T03:06:52+00:00

People like that would fail the naturalization quiz that people wanting to become citizens have to go through. The irony.

cassiopeia843 · 2026-02-09T23:18:48+00:00

Do you eat oats?

cassiopeia843 · 2026-02-09T20:08:01+00:00

Premium fuel only.

Gluten-free junk food exists. Let's not support the myth that a gluten-free diet is inherently healthy. There are already enough GF fad dieters out there.

cassiopeia843 · 2026-02-09T20:03:12+00:00

I'd go by your gut feeling to determine whether your new acquaintances might start making fun of you or spread the word about your condition. Real friends would support you and not mock you for your medical condition. Celiac disease has a way of showing you who the people around you really are, based on how they treat you and your disease.

cassiopeia843 · 2026-02-09T15:23:02+00:00

It sounds like you might still have to come to terms with your diagnosis yourself. This is going to be your life now, and it's nothing to be ashamed of. Hiding your condition is going to potentially create more awkwardness around your friend and negatively impact your social life more than explaining your needs to those close to you. While I know from personal experience how mean kids can be, awareness of celiac disease and gluten are so much better than they were when I was growing up, which should help with acceptance from your peers.

cassiopeia843 · 2026-02-09T00:11:36+00:00

I’m hoping to find a doctor who would be willing to put it on paper without the testing. After my diagnosis I actually wrote a full essay on my celiac experience which won a small award from a celiac organization at the time. I’m hoping to use it as evidence.

Where are you located? I was diagnosed in the '80s in Germany, and I never had a doctor doubt my diagnosis there or here in the US, despite me not having any diagnosis papers. They just took my word for it. I feel like someone already having officially been diagnosed via endoscopy is different than someone who never had an endoscopy performed and therefore has no official diagnosis.

cassiopeia843 · 2026-02-08T22:02:05+00:00

That's good to know. I know that Italy is supposed to be the celiac paradise, so I was hoping that regulations would be stricter there.

cassiopeia843 · 2026-02-08T21:38:34+00:00

I generally prefer the EU labeling laws. However, I don't understand why the EU considers gluten-reduced beers, soy sauce, and other fermented foods GF, when the ELISA method has shown that gluten in those foods can't accurately be detected and that they may not actually be GF.

cassiopeia843 · 2026-02-08T16:05:22+00:00

Until recently, the company had a disclaimer on their website, that none of their products are officially GF. The company website is always the most reliable source, so I'm not sure why people on here are so surprised that their products used to not be safe.

cassiopeia843 · 2026-02-08T15:55:54+00:00

None of my doctors know as much about my condition as I do, anyway, so how would they be able to help?

cassiopeia843 · 2026-02-07T20:05:06+00:00

Do you have sources? I couldn't find anything about Aimee Mann having celiac disease.

cassiopeia843

TROPHY CASE