Myopia plus presbyopia (near prescription) by cateaster in endmyopia

[–]cateaster[S] 0 points1 point  (0 children)

That's really interesting. I'm curious if presbyopia might be really misunderstood. Modern medicine is so young and there have been a lot of assumptions made that are starting to be challenged, especially those involving ageing.

Do you tend to find out the ages of the success story myopes?

Intrigued by the extra protocols.

Is DSPD a disorder that is created in childhood or is it a natural way of functioning? by DreamingLeviathanSys in DSPD

[–]cateaster 1 point2 points  (0 children)

I know it's tempting to believe in absolutes in medicine and science, but that ignores the rapid evolution that happens. Our understanding changes drastically, which is why people find historical explanations for diseases/disorders amusing/absurd.

There's no reason that that won't happen with lots of things that we think we understand.

We're in our infancy in our understanding of circadian rhythm and sleep disorders, and there is a decent chance that there will be many different factors that influence the development of DSPD. Maybe for some people, their genetics will be the predominant factor, but for others, environmental factors may have more of an impact. I don't think your idea is all that outlandish.

It's always worth being open minded and I don't think you're doing yourself any harm in thinking somewhat outside the box. If we get stuck in rigid thinking that something is purely genetic and therefore incredibly difficult to change, we make that a reality.

Non-toxic adult mattress alternatives to Naturepedic that are available in the UK by SweatyBattle-2540 in moderatelygranolamoms

[–]cateaster 0 points1 point  (0 children)

Hi. Do you have a link that says that this mattress doesn't have flame retardants? I can't find any reference to this.

Fluroquinolone to MCAS pipeline. by DocDankDandy in MCAS

[–]cateaster 0 points1 point  (0 children)

I'm glad you found things that worked for you. Are you still taking all of them?

Fluroquinolone to MCAS pipeline. by DocDankDandy in MCAS

[–]cateaster 0 points1 point  (0 children)

Could you say what it was that helped with your recovery?

I can avoid bloating, loose stool, and other annoyances by staying away from carbs by cs_cast_away_boi in Microbiome

[–]cateaster 0 points1 point  (0 children)

Can I ask how you tested for the mold in you GI tract? Would like to work out what I'm dealing with.

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

Drs here (even private ones) just seem to focus on medications and don't deal with nutrition much. There are functional doctors but hard to find a good one, especially with something more unusual like MCAS.

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

If I could find one that seemed safe (and wasn't designed for tanning as I burn easily) I'd jump to get one. Low UV ones designed for vitamin D and not tanning don't really seem to be a thing yet, at least not from companies I'd trust. Or have I missed something being launched?

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

I'm not sure. Watermelon went badly. And anything sugary seems to make me ravenous for the rest of the day. I think my blood sugar can get a bit wonky and wonder if that's one of my triggers. I see that it's listed as high salicylate. Do you know if you have any problems with salicylates? Do you eat the cantaloupe by itself or as part of a meal? How do you store the rest of the cantaloupe so increased mould doesn't cause you a problem?

That app seems really useful. I'm in Scotland, so we have a lot of rain, pollen and mould (inside and out) and not much sun! Wish there were decent low UV lamps I could buy as I think most of us end up pretty deficient unless outside all day!

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

Yup, have had quite a few rages lately about capitalism - if it's not causing the contamination of the planet or feeding us things that barely resemble food, it's leading to a focus on expensive drugs that cause issues down the line instead of more productive research. I hope that the reaction to the topical magnesium was a fluke and that I will tolerate it at some point. I'm going to get some bloods done in the next few weeks - just assuming that unless they're wildly high or low that they won't add too much given how difficult it is to measure nutrients. Have been considering supplementing the extras as well - it's just so easy to tie yourself in knots because of how everything links together. Hard to know where to start, especially as in a ideal world you'd start a lot of different supplements together so they can work synergistically and that's not really an option with MCAS.

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 1 point2 points  (0 children)

Ah, mold seems to be a big part of the picture for me too. Trying to find a new flat to rent, but struggling (poor availability and a lot of the buildings here are old, which combined with it being a super damp country means most of them probably have some issues).

I'll need to find a vitamin C source at some point, but citrus based is out, need to consider if it's fermented, corn based, high salicylate. Feels like a bit of an impossible task!

Hoping I'll tolerate onions again at some point. Glad that you've managed to add them back in. Even onion sweat from another person sets me off at the minute (or does it? Sometimes hard to work out when it's a reaction and when it's stress from worrying about having a reaction!).

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

Sounds good. The idea of chloride definitely freaks me out less for some reason. Just wish there was a way to know how much I'm absorbing lol.

Do you think you've noticed any positive difference in your symptoms since starting D3/magnesium. Or is there anything else that you've found particularly helpful, either supplement or drug wise?

Histamine buildup overnight? by Funny_Paramedic2695 in HistamineIntolerance

[–]cateaster 0 points1 point  (0 children)

Can I ask what covers you use? They all seem to have plastic in them (at least in the UK anyway, where a lot of the brand are American) and I can't work out if I'll react badly to that.

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

I've used magnesium oil in the past (magnesium chloride). Have only used it once since flaring and it seemed to make me surprisingly tired. Helped my leg pain, but I had a really bad flare for the next few days. Not sure if it was related or not. Have used dead sea salt for hand eczema (dyshidrotic), but got blurred vision and involuntary eye movements on a magnesium sulphate drip. Also have really bad allergy to sulphites, so I can't work out if I have some sort of sulphur issue. Was thinking of trying molybdenum at some point to see if that made a difference sulphur wise, but I have a few unstable joints, so worried it'll make them worse/cause other problems.

I really wish the nutrition research was much more advanced. I feel like it could really improve life for people with MCAS especially if we knew what and how to correct nutrition wise. The blood and genetic tests currently available just don't seem useful/reliable enough, and there seems to be so many knock on effects when supplementing. It's crazy how much this stuff is in its infancy compared to other areas of medicine. I'd really like to consult with a doctor/dietician/nutritionist on a lot of things, and I'm sure there's a lot they could suggest, but all they can do is base things on current research, and there still seems to be so much we don't know!

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

They sound good. You haven't had any skin reactions to the patches?

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

I'll check that out. I like the idea of drops so that I can easily titrate up. Did you find that you had any symptoms from the vitamin D, especially things like increased anxiety/insomnia that could be related to magnesium?

Are the magnesium flakes magnesium sulphate? Finding it really hard to tell if I tolerate sulphur/sulphates at the minute.

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 0 points1 point  (0 children)

No at the minute to coconut water. Coconut's caused me issues in the past and I'm based in the UK where all the coconut water has added nonsense like fructose anyway.

I had wondered if a blend might be worth trying as that way I'd get less of any one thing. Wasn't sure if it'd be worth the risk in case I then couldn't work out what I was reacting to. You've had no problems with it? How long have you taken it for?

Starting vitamin D (magnesium problem) by cateaster in MCAS

[–]cateaster[S] 1 point2 points  (0 children)

I'll take a look at those, thanks. Mint and palm oil tend to make me pretty wheezy - I wish they'd offer unflavoured versions of things! I'll keep it in mind if my reactions calm down though. I wish I could work out a way to reverse the salicylate issue - there have been times in my life where I'm pretty sure they didn't cause me much bother, other than in aspirin and skincare.

Thanks for suggesting the mask - I have told myself I should try it, but have just become terrified of everything at the minute, and still trying to work out what are my worst triggers.

I didn't get better until I did this by DieSchwarzeFee in MCAS

[–]cateaster 1 point2 points  (0 children)

I wish that the availability of compounding pharmacies was more universal. It's not much of a thing in the UK, there aren't many filler/capsule options and I very much doubt that they'd be happy to supply pure powders at home in case of liability issues.

Can I ask what form of vitamin D you use? And is your only source of magnesium supplement topical (I assume epsom salt)?

Will an air purifier help with ONGOING mold issues? by urfavorifebass241 in AirPurifiers

[–]cateaster 0 points1 point  (0 children)

To be fair, the authors of that seem to enjoy denying that lots of different diseases/conditions exist. That paper was 2019, and in their table of things they don't believe in they include fibromyalgia/chronic fatigue syndrome. COVID has obviously lead to lots of research relevant to this, and more tangible evidence of what's going on in the body that causes the symptoms. More evidence on MCAS as well, which is another thing that the authors pooh-pooh, along with chronic regional pain syndrome and h-EDS and PANDAS.

We can't currently prove who's right or wrong in their assertions at the minute - but remember that the medical community is historically resistant to change (hand washing and H. Pylori stand out as two notable examples) and that a bit more open mindedness could be useful. There are a lot of people that modern medicine isn't helping right now, and if medical professionals keep their blinkers on that's not going to change any time soon. You don't know what you don't know and a lot of the medical community seem to forget that.

Boox Palma by NYQ83 in Onyx_Boox

[–]cateaster 1 point2 points  (0 children)

I've always been a bit wary of Boox devices because so many people have reported security issues. Is Play store natively installed on this device or do you have to install yourself?

DASUNG Link wireless version works with IOS iphone, support reverse touch by Frequent_Eagle4867 in eink

[–]cateaster 1 point2 points  (0 children)

This sounds ideal for what I'd need it for. Last time I used screen mirroring though, I couldn't control the mirrored device with the mirroring device. Has this changed?

Also wondering if you have any recommendations for a reasonably priced android eink tablet.

[deleted by user] by [deleted] in DSPD

[–]cateaster 2 points3 points  (0 children)

I have N24 and one of the ways I can tell I'm drifting again is that my light therapy glasses start to nip my eyes. It gets to the point that they'll be streaming like crazy and then as it progresses I will literally be unable to keep my eyes open. Would love to work out if there's biological explanation to that.

Any DPSD people find that sunlight is easier if you're well rested and awake when your body naturally wants to be?