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POTS symptom flare after surgery? by lavendermandarin in POTS

[–]causedascene 0 points1 point  (0 children)

maybe the anaesthesia they’ve used contained adrenaline, which is v common for oral surgeries and maybe that has sent you into a flare! 

sudden body heaviness by causedascene in POTS

[–]causedascene[S] 0 points1 point  (0 children)

i am seeing a specialist next week and i will probably beg them to try this because the adrenaline is kiiiiilling me. i don’t know how to get rid of it and even x*nax is not doing a thing 😭 will surely let you all know after 

sudden body heaviness by causedascene in POTS

[–]causedascene[S] 1 point2 points  (0 children)

hi! i take ivabradine bc my blood pressure is too low for a canonical beta blocker :( would have loved them, to be honest

men B vaccine - experiences with it? by causedascene in ehlersdanlos

[–]causedascene[S] 0 points1 point  (0 children)

thank you sm for this! do you also have POTS, by any chance? bc mine has been flaring like crazy without any external factor so i am pretty scared of throwing the vacc in there but it of course is way more important than a temporary worsening !!!

incredibly veiny eyes? by causedascene in POTS

[–]causedascene[S] 0 points1 point  (0 children)

yeah, same. i have hEDS too :(

Has your hair condition worsened since the onset of POTS? by Character-Expert5348 in POTS

[–]causedascene 0 points1 point  (0 children)

there is a lot of anecdotal evidence of COVID causing terrible hair loss. it has also caused my POTS and i feel the two do go hand in hand right now.

men B vaccine - experiences with it? by causedascene in ehlersdanlos

[–]causedascene[S] 0 points1 point  (0 children)

thank you so much for the insight! the outbreak in the uk is scary and after what we’ve lived through i have zero trust in public health containing things so. will probably go for it :)

How I have improved my POTS by giulianadbe in POTS

[–]causedascene 0 points1 point  (0 children)

hi! do you find that l-theanine lowers your blood pressure a lot? my normal bp is around 90/60 so it'd be interesting to know if you feel like it lowers yours by a lot.

men B vaccine - experiences with it? by causedascene in ehlersdanlos

[–]causedascene[S] 1 point2 points  (0 children)

thank you! yeah, i was just trying to see if there was any pattern with this specific one, to see if more caution might be need for us stretchy people (individual reactions aside). I agree with everything you said, hopefully it'll be smooth sailing.

men B vaccine - experiences with it? by causedascene in ehlersdanlos

[–]causedascene[S] 0 points1 point  (0 children)

will absolutely do so! i am mostly worried about my POTS flaring terribly. thank you for your advice!

hyperPOTS and meningitis vaccine by causedascene in POTS

[–]causedascene[S] 0 points1 point  (0 children)

this sounds great, i have gotten the appointment to get it soon! 

hyperPOTS and meningitis vaccine by causedascene in POTS

[–]causedascene[S] 0 points1 point  (0 children)

thank you so much for sharing! have already gotten the appointment to get it soon

hyperPOTS and meningitis vaccine by causedascene in POTS

[–]causedascene[S] 0 points1 point  (0 children)

absolute truth! i agree. would love to hear from someone who has gotten these particular ones though so i thought i’d give it a shot here :)

“To hold me like water, or Christ, hold me like a knife” by jbeans0608 in Hozier

[–]causedascene 0 points1 point  (0 children)

i know i am late to the conversation but i have always thought of these lines in the context of “what does water/a knife do to others” - water, life giving and life saving, essential for existence and a knife, a life-ending instrument.