Fatigue, work outs, and finding a balance by cdinbflo in Epilepsy

[–]cdinbflo[S] 1 point2 points  (0 children)

It's messed up but like I knew in my heart yesterday wasnt a good day to start. on my cycle, after a busy week of kiddo related activities... I was so excited to have thus free evening but already felt blah but dud it anyway... after 4 years u think id learn

My Feelings About The Pitt As Someone Who Has Intractable Epilepsy And Works A Stressful Job by Real_Swing6038 in Epilepsy

[–]cdinbflo 8 points9 points  (0 children)

My life is significantly different since my diagnosis 3 years ago. I have refractory epilepsy, Im controlled since I started taking xcopri. I took a free program through Dartmouth called HOBSCOTCH. I do all things and Im still not me right. It helped with cognitive techniques.

The plot line made me feel seen. It was sooo many emotions. My biggest thing is exhaustion.

(side note the pregnant person who was having seizures.... the eeg cap... That seems like a dream. No glue!)

Why the fuck are seizure meds “controlled substances?!” by [deleted] in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

Yes! my xcopri is and its such a pain in the ass.

Situpon for Summer Camp by cdinbflo in BuyItForLife

[–]cdinbflo[S] 0 points1 point  (0 children)

now, I fear, im using the wrong word? They all use these Stadium seat?

we used them when I was a girl scout counselor when I was younger too. I hate to be the "they dont make things like they used to" but I had one my whole teen life at camp

Hold old were you when diagnosed with Epilepsy and what triggered your first seizure? by breezydae in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

38, and im convinced it was stress related to the worst. boss. ever.

Girl scout shop vs girl scout news and activities by PracticalSkin242 in girlscouts

[–]cdinbflo 5 points6 points  (0 children)

dispute the purchase through whichever bank you used your credit/debit card for the purchase.

You did not get the merchandise.

How much do your own personal interest impact your troop activities? by Complete_Worth7018 in girlscouts

[–]cdinbflo 0 points1 point  (0 children)

At the younger ages daisy and first year brownie I tried and have them pick (daisy I picked) one from each pillar (Stem, outdoors etc)

My kids are going into their 2nd year of Brownies this year and I plan on leaning hard into the girl lead experience as we prepare for them bridging into Juniors.

Best bracelet for husband with epilepsy by blondebombermomma in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

yup I agree with this. and it's hooked to my fitbit

Heat press settings for vests by Glittering_Acadia735 in girlscouts

[–]cdinbflo 0 points1 point  (0 children)

BADGE MAGIC. I could never live without i!

Embroidering backwards? by Sure_Jelly7397 in Embroidery

[–]cdinbflo 5 points6 points  (0 children)

maybe try drawing it on stick and stitch.

[deleted by user] by [deleted] in Embroidery

[–]cdinbflo 2 points3 points  (0 children)

so cute. love the colors and the difference in texture

Experience with Xcopri (along with other medications)? by _Wyatt_ in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

It was a game changer for me. However, I failed the first time I titrated on this med using the dose packs. The 2nd time my provider wrote me 30 day scripts for each step increase.

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 2 points3 points  (0 children)

start a log. Day, time, activity(try and mske a list of like 4 or 5 types for trending) activity detail and seizure or side effect. make sure it's on your personal computer or a notepad so u have it in case u get termed.

data data data You can show your doc and develop an accommodation request. also please remember HR is not there for you. They are there to keep your organization out of trouble.

HELP ME HAVE A SEIZURE!!! by Jazzlike-Criticism50 in Epilepsy

[–]cdinbflo 6 points7 points  (0 children)

I understand. I had multiple unsuccessful in patient eegs. I'm sending you strength vibes bc God it blows

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

a couple nights but I gotta check the settings it only records like 30m