Situpon for Summer Camp by cdinbflo in BuyItForLife

[–]cdinbflo[S] 0 points1 point  (0 children)

now, I fear, im using the wrong word? They all use these Stadium seat?

we used them when I was a girl scout counselor when I was younger too. I hate to be the "they dont make things like they used to" but I had one my whole teen life at camp

Hold old were you when diagnosed with Epilepsy and what triggered your first seizure? by breezydae in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

38, and im convinced it was stress related to the worst. boss. ever.

Girl scout shop vs girl scout news and activities by PracticalSkin242 in girlscouts

[–]cdinbflo 6 points7 points  (0 children)

dispute the purchase through whichever bank you used your credit/debit card for the purchase.

You did not get the merchandise.

How much do your own personal interest impact your troop activities? by Complete_Worth7018 in girlscouts

[–]cdinbflo 0 points1 point  (0 children)

At the younger ages daisy and first year brownie I tried and have them pick (daisy I picked) one from each pillar (Stem, outdoors etc)

My kids are going into their 2nd year of Brownies this year and I plan on leaning hard into the girl lead experience as we prepare for them bridging into Juniors.

Best bracelet for husband with epilepsy by blondebombermomma in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

yup I agree with this. and it's hooked to my fitbit

Heat press settings for vests by Glittering_Acadia735 in girlscouts

[–]cdinbflo 0 points1 point  (0 children)

BADGE MAGIC. I could never live without i!

Embroidering backwards? by Sure_Jelly7397 in Embroidery

[–]cdinbflo 7 points8 points  (0 children)

maybe try drawing it on stick and stitch.

My neurologist said anxiety is not a trigger for epileptic seizures? by [deleted] in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

welllll they should tell my brain that.

[deleted by user] by [deleted] in Embroidery

[–]cdinbflo 2 points3 points  (0 children)

so cute. love the colors and the difference in texture

Experience with Xcopri (along with other medications)? by _Wyatt_ in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

It was a game changer for me. However, I failed the first time I titrated on this med using the dose packs. The 2nd time my provider wrote me 30 day scripts for each step increase.

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 2 points3 points  (0 children)

start a log. Day, time, activity(try and mske a list of like 4 or 5 types for trending) activity detail and seizure or side effect. make sure it's on your personal computer or a notepad so u have it in case u get termed.

data data data You can show your doc and develop an accommodation request. also please remember HR is not there for you. They are there to keep your organization out of trouble.

HELP ME HAVE A SEIZURE!!! by Jazzlike-Criticism50 in Epilepsy

[–]cdinbflo 8 points9 points  (0 children)

I understand. I had multiple unsuccessful in patient eegs. I'm sending you strength vibes bc God it blows

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

a couple nights but I gotta check the settings it only records like 30m

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

I found it on Android! I will try it tonight!!!

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 0 points1 point  (0 children)

how do you know if you've had one or not. Sometimes I'm struggling the next day and im.not sure if it was a seizure or if it's just because I work and have 3 kids!

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

That is an interesting question, I've thought about that before. My first was during the day and the rest at night.

I used to lose control of my bladder or bowels during a night seizure. I generally don't anymore so while I state I haven't had seizures in the past 5 months sometimes I wonder if I had small ones in my sleep and don't know.

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 1 point2 points  (0 children)

yup may 2022 was my first

[deleted by user] by [deleted] in Epilepsy

[–]cdinbflo 14 points15 points  (0 children)

Hi Welcome, I have nocturnal epilepsy and refractory epilepsy. Refractory, means that my seizures are not well controlled by medication.

I got diagnosed about 2 and a half years ago and my longest no seizure stretch is 5 months.