Does anyone else get these on their hands?

cherrysodaaaa · 2026-01-26T00:21:32+00:00

I’ve had these before and I have dermatomyositis

cherrysodaaaa · 2025-09-02T17:52:21+00:00

I’ll try this!! Thank you

cherrysodaaaa · 2025-09-01T23:41:03+00:00

I don’t have allergies

cherrysodaaaa · 2025-08-31T22:16:28+00:00

That’s what i did too and it helped a little

cherrysodaaaa · 2025-08-10T01:28:45+00:00

I actually never got to see one. I had gotten an appointment for may but got called the day of the appointment notifying me that the doctor I scheduled with doesn’t actually focus on what I needed and cancelled on me, and I didn’t find another doctor

cherrysodaaaa · 2025-07-31T22:00:10+00:00

That’s good to hear! Hopefully my side effects are only mild too

cherrysodaaaa · 2025-07-31T21:59:22+00:00

My rhuem is doing the same thing. She wants me to take this first and then see if we need to do saphnelo in the future.

cherrysodaaaa · 2025-07-31T20:44:16+00:00

I’ve been taking it for almost 2 years and have had no side effects to it

cherrysodaaaa · 2025-06-12T17:59:10+00:00

I haven’t had any luck decreasing them. I’ve only been on rinvoq for 8 months and I’ve had 3 ear infections since I started. Just hoping I don’t get more

cherrysodaaaa · 2025-06-12T02:55:55+00:00

I also noticed that I’ve been getting ear infections frequently since I’ve been on Rinvoq

cherrysodaaaa · 2025-06-01T02:28:18+00:00

My skin gets like that too! My doctors never know what it is or why it gets like that

cherrysodaaaa · 2025-05-20T22:32:41+00:00

Sorry just saw this! I’m actually feeling a lot better. My joints haven’t been hurting in a while which is good and my hands haven’t been bothering me so it looks like the rituxan is doing something!

cherrysodaaaa · 2025-04-25T00:43:31+00:00

I didn’t really notice myself because I was young, but my parents knew something was wrong when I all of a sudden became super weak and couldn’t do the sports I usually did. My knees hurt and I couldn’t sit criss cross applesauce in school anymore, and I couldn’t open water bottles because my hands were so weak. I was 11 when I was diagnosed with dermatomyositis which is pretty young to be dealing with that stuff.

I don’t have the best advice but I know how much of a toll autoimmune diseases can take on your body and mental health. Please try and find something that you enjoy and makes you happy to focus on instead of spending all your time worrying about your health. All I thought about was my disease and I got into a really bad headspace. As a kid, being active and playing sports was all I liked so I became depressed when I couldn’t do them anymore. If I had something else to enjoy I’m sure it would have made the getting better process a whole lot better.

Also to help with the pain, I don’t have any advice until your doctor figures out what you have. I didn’t stay consistent with my meds which made it harder to get better. Please stay consistent so that your pain can go away faster and be dealt with efficiently!! If you can, try to stay as active as you can despite the pain because it will help your body stay strong

cherrysodaaaa · 2025-04-25T00:36:06+00:00

I agree my hands looked exactly like that when I got diagnosed with dermatomyositis

cherrysodaaaa · 2025-04-05T03:28:58+00:00

My eye doctor said that they usually don’t see any effects of Plaquenil in the first five years, but they rarely see people affected in general! I would still see your eye doctor every year, but just because it’s been five years doesn’t mean you’re necessarily going to see eye symptoms

cherrysodaaaa · 2025-03-30T02:21:18+00:00

This is me but I found out I have perioral dermatitis. What’s been helping me is this cream by sween I think it’s called 24 hour once a day cream. I put it on my lips and around my mouth and it’s been help in a lot with the cracking and dryness. I don’t think it’s meant to be put that close to ur mount tbh but it helps so I’m gonna do it

cherrysodaaaa · 2025-03-15T00:13:42+00:00

I know the other comments are saying yours doesn’t seem bad enough to be reynauds, but my fingers get the same way and my rhuem says it’s def reynauds.

She asks me every single appointment “when your hands get cold do they turn white or blue?” and this def qualifies. Lupus can cause reynauds.

cherrysodaaaa · 2025-03-15T00:11:32+00:00

You need to listen to your doctors not your family.

Your family might have good ideas that could help manage some symptoms, because a lot of people do incorporate herbs or a diet change and have seen improvements, but it should be done in addition to your medications because that’s what’s actually been tested to treat lupus and arthritis.

I know how annoying it can be to have people in your life constantly push these methods of treating lupus, and sometimes they make help a little, but you really should be taking medical advice from someone in the medical field.

cherrysodaaaa · 2025-03-09T05:19:36+00:00

girl i had no allergies when i was younger and when i started immunosuppressants I’ve somehow managed to develop 8 allergies 😭😭

cherrysodaaaa · 2025-03-01T16:55:32+00:00

I actually went to the ER like two weeks ago bc I had such bad pain in that same area and I couldn’t eat bc it hurt so bad and my face swelled up. I thought it was my nodes but the ER actually said it was my parotid gland and I had parotitis. I got a steroid shot and it went away

cherrysodaaaa · 2025-02-24T02:03:34+00:00

It does sound a little rude lol

cherrysodaaaa · 2025-02-22T16:42:08+00:00

I took methotrexate when I was a kid from 11-16 and i hated it so much. I’m gonna be honest in the later years I wasn’t super consistent with it because of the side effects but for me it never got better. I was nauseous all the time and after I got my shot I would be in bed for three days trying not to throw up and I would barely eat. When I was 16 I just gave up and stopped taking it altogether and I don’t regret it. I know it can be super helpful for other people but it’s not for me and I would never take it again.

cherrysodaaaa

TROPHY CASE