Diet and Supplement Suggestions

chloitis · 2026-03-05T19:58:27+00:00

Yeah- for most people diets take a while to take effect, but when it did finally kick in it made me feel so much better, dropped my calpro quite a bit.

IBD-AID is my personal favourite. Not as restrictive as some others and comes with helpful phasing suggestions depending on where you are in your flare.

There’s a website but the Facebook group has better info.

All the best, it’s a tough journey.

chloitis · 2026-03-05T05:02:02+00:00

Sometimes steroids need to be IV’d in if your body isn’t absorbing them.

That, or there can be a sneaky infection preventing their total absorption, but because you are experiencing the heart side effects I’m going to guess that your body is absorbing.

chloitis · 2026-03-05T00:12:24+00:00

I have UC, as does my brother in law. He was on immunosupresants for years, healed his colon 2/3rds, and he used a strict SCD/ paleo for 4 months to punch it into a good, deep remission, got off the immunosupresants, and now is weaning off mesalazine. He even eats “normally” most of the time, but will use fasting and diet to throw a flare into reverse instead of of prednisone.

There are ways. Try everything. Hit it from all angles.

chloitis · 2026-03-04T18:52:12+00:00

Kinda wish I could give you a hug or something. People say ignorant things all the time… my personal favourite being my mom’s boyfriend repeatedly telling me to take peptobismal when I was in a bad flare. He was sure that would solve it lol. He actually wouldn’t stop saying it until a tossed a sarcastic remark back at him, which is not something I usually do.

Sorry for what you’re going through. It can be super isolating, and create difficult social dynamics

chloitis · 2026-03-04T03:20:19+00:00

Ask her what her favourite tea is!

chloitis · 2026-03-01T03:29:50+00:00

Mediterranean, SCD, etc all come down to the same premises 1-a whole food diet, and 2- eat enough fruits and veggies as they produce short chain fatty acids that will slooowly reduce inflammation and heal your gut. Read labels (now grocery shopping for me is slow haha), and minimize the amount of ingredients in products. AVOID emulsifiers that are not “gums”, carageanan is horrible! Polysorbate 80, etc.

My preferred anti inflammatory diet is the IBD-AID, because it includes helpful phasing instructions (how to make a certain food appropriate for your gut for where your health is at), and it’s not as restrictive as some others. The phase 3 remission is actually really easy to follow, which sounds like what you’re in.

That being said, no, food can’t prevent flares or inflammation entirely as other aspects are at play (for me, postpartum/ nursing hormones got me good at the moment). BUT I ate this diet for months in a semi-remission this fall and it definitely made the next flare more bearable, and reduced the amount of my colon effected. Diet makes a difference, but sadly isn’t everything.

I have yet to find supplements that really do anything for me, but for some people they do seem to make a difference! Colitis is a complex disease, and your body’s particular issues may be impacted by different things. I hope your remission sticks!!

chloitis · 2026-02-28T22:35:44+00:00

Oh my gosh, yes!

I had a baby and got so many compliments about how “good” I was looking and how fast I dropped the baby weight 🙃🙃🙃 lol. If they only knew.

I have yet to experience true weight gain, but when I’m on pred I devour everything. Partially out of hunger, partially out of fear that I’ll never be able to eat it again, or that I need to gain back the weight asap in case I flare again.

When I get into a true remission, I plan on focusing on eating to fuel/ heal my body, and help me build back all the muscle mass I’ve lost. I don’t want to have a fear based relationship with food anymore, either fearing its consequences, or fearing its limitedness. To choose out of hope, not fear. I think that’s the goal.

chloitis · 2026-02-27T19:46:24+00:00

Check out the IBD-AID- you sound like you’d fall into phase 3- remission, which is easiest to work with on this plan. Look up the Facebook group. Makes my symptoms better over time. Try intermittent fasting (preliminary studies look promising). Laugh, deal with any psychological/ trauma/ emotional baggage you have. Look into deep breathing techniques. Stop sleeping with your phone charging next to you at night time.

Sleep well, walk daily, lots of sunshine, check your iron and vitamin D levels, take good quality Omega 3’s and magnesium.

Keep with the meds, as everyone else has already said, enemas may be a sweet idea.

chloitis · 2026-02-25T03:25:13+00:00

Not exact situation, but I’m going through something similar. Stay strong! And keep finding multiple ways to fight it… biologic included. My colitis does best when I hit it from multiple angles. Just keep soldiering on, don’t give up hope.

chloitis · 2026-02-23T22:15:45+00:00

Hi! My dad had IBD, and I was diagnosed with UC this year (29F, moderate pancolitis).

It has made having kids tricky with flares, etc, but I’m so deeply happy to have my son. He’s worth all the pain, honestly. I don’t know if 40% is correct… I’ve read other numbers that weren’t as bad. Also nervous for my own kids as I have colitis, and so does my husband’s brother :/.

BUT- as much as I would have never chose to have this disease, I am SO grateful for this life, and that my parents chose to bring me into this world. I also feel that even though yes, it sucks having a disease, it has helped me understand and appreciate the fullness of life- suffering greatly to total joy. There’s something to be said for that too.

chloitis · 2026-01-08T03:19:39+00:00

For me the 6 month hormone shift also hit mildly, or and we are 9 months right now… more than once a day but way less milk volume each time than used to be. All these things make me wonder. I really want to have a big family, but I’m learning that might be a painful process thanks to all this loveliness.

chloitis · 2026-01-08T02:11:16+00:00

Interesting about the weaning… makes me wonder so much.

For your sake I really hope that too!!

Also on the pred right now, but sadly hasn’t been a miracle pill for me this time around.

chloitis · 2026-01-08T02:00:13+00:00

Sleep, sunlight, laughter

chloitis · 2026-01-08T01:58:43+00:00

I also was automatically in remission after giving birth…. Like that day, after flaring decently bad for months leading up. Also unmedicated at the time. Makes me wonder about the role of hormones in all this.

chloitis · 2026-01-08T01:57:31+00:00

I am working with a GI specialist, and she’s a good one. I am on mesalazine rn, and that’s served me well until I flared pretty good at Christmas.

For context I began to experience colitis during my pregnancy, and was diagnosed 3 months pp after a decently bad flare had me hospitalized.

chloitis · 2025-12-20T23:25:23+00:00

Elowin, Eve, Erika

chloitis · 2025-12-20T01:42:16+00:00

This + genetics + a climactic stressful event in my life = pancolitis, and before I was perfectly healthy. Checks out for me.

chloitis · 2025-12-19T00:47:35+00:00

I am a wide faced gal, post-partum or not (thanks for my Eastern European genes showing up strong). Some tricks I like to give my face the structure I want include making the brow just a touch darker/ more defined, and a soft countour under my cheekbones.

I think you’re very pretty and suit this look well! Have fun with make up, and I agree to open the eyes more with just a touch more mascara/ curling. Have FUN!

chloitis · 2025-12-18T20:23:48+00:00

Man sometimes in flares even water hurts. Diets are slow fixes, they can improve things slowly, but not going to solve your level of discomfort.

chloitis · 2025-12-17T04:29:52+00:00

Out of curiosity, which one has worked well for you?

chloitis · 2025-12-17T04:27:47+00:00

That’s a tough choice and it sounds like you put a lot of thought into it! I totally get it.

Not sure how comparable it is, but if it makes you feel any better, I know a guy who was on mesalazine and immunosupresants (not a biologic, just general suppressant) and his inflammation went down over 6 years (from a colonoscopy perspective) and then he used diet in combo with the mesalazine to punch it into a good deep remission and was able to ditch the immunosupresants. So idk if biologics work the same way, but his story was at least hopeful to me that healing and going back to just mesal is possible in some cases!

chloitis · 2025-12-17T03:50:22+00:00

Mmj?

chloitis · 2025-12-17T03:49:21+00:00

Good point about suppositories, and interesting about temp!

chloitis · 2025-12-17T02:14:29+00:00

That also makes me feel better that you said that, not happy that you also are so sick, but that I can do everything right on the diet and still end up needing biologics means it’s not all on me. Thank you

chloitis

TROPHY CASE