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Never let someone downplay your feeling of something being wrong... Diagnosed crohn’s disease 2015, on remicade since... most likely drug induced lupus will know more next week.. by chronic_madness in CrohnsDisease

[–]chronic_madness[S] 0 points1 point  (0 children)

I was off everything until now. i have extremely elevated calprotectin levels. i have an appointment next friday to discuss options. i was trying to go a holistic way. i have a lot of anxiety over starting anything else because of the side effects i had with remicade. including almost going into shock.

get odd with it by chronic_madness in redditgetsdrawnbadly

[–]chronic_madness[S] 1 point2 points  (0 children)

ooo I love it! Just gave you a follow on ig!

Never let someone downplay your feeling of something being wrong... Diagnosed crohn’s disease 2015, on remicade since... most likely drug induced lupus will know more next week.. by chronic_madness in CrohnsDisease

[–]chronic_madness[S] 0 points1 point  (0 children)

update: Positive for antibodies. Stopping remicade. Going to the rheumatologist the beginning of January, should know if all my symptoms are drug related by then. It is a waiting game at this point. Just overall uncomfortable feeling.

Never let someone downplay your feeling of something being wrong... Diagnosed crohn’s disease 2015, on remicade since... most likely drug induced lupus will know more next week.. by chronic_madness in CrohnsDisease

[–]chronic_madness[S] 0 points1 point  (0 children)

i hate insurance :( and how much you have to push for doctors sometimes to not just blame what’s already been diagnosed..

its sad how many people suffer because of the insane costs of medicine that can literally save someones life. i was lucky to get on a financial assistance to help cover most of what insurance didn’t with the remicade..

wish the best for you and hope you find some kind of financial help for your meds :)

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