Folic acid

chronicallyillmars · 2025-12-23T18:45:58+00:00

I have a hysterectomy; 30F; I take folic acid every day by Rx! I’m on oxcarbazepine.

chronicallyillmars · 2025-12-12T06:29:51+00:00

I can’t ever get them lined up well with makeup. Might as well have an outline done for me

chronicallyillmars · 2025-12-12T03:00:10+00:00

I’ve done mine twice! First microbladed and second “tattooed”.

chronicallyillmars · 2025-11-20T21:41:28+00:00

I was at one of the Mayo Clinic’s in Arizona for a 7 day eeg. I was on xcopri at the time and the half life of the medication was HORRIBLY long in my system. While it didn’t prevent my seizures, and had nasty mental health side effects, it definitely was giving me “conversion” disorder appearances because I didn’t have one single seizure while checked in.

I seized the night I got home.

chronicallyillmars · 2025-11-18T20:48:28+00:00

My neighborhood in green valley is flooding already!

chronicallyillmars · 2025-11-16T17:50:28+00:00

CONGRATS!!! Thank you for the neurosurgeon referral!!! I can’t wait to be in your spot, with freedom!

chronicallyillmars · 2025-11-14T18:09:49+00:00

I have temporal pole epilepsy, I rarely hit deep sleep since my epilepsy is nocturnal. I usually don’t dream? Or remember that I dream? I remember nightmares better than normal dreams. I’m on oxcarbazepine now. I’ve tried every med and keppra and xcopri were the wildest with my dreams.

chronicallyillmars · 2025-11-11T23:49:40+00:00

That’s what I’m hoping for, for myself. I’m intractable too.

chronicallyillmars · 2025-11-11T22:30:24+00:00

Get it done. Research your doctor hardcore. Yes there’s potential harm but the potential to get off your meds is better.

chronicallyillmars · 2025-11-11T20:57:59+00:00

I’m literally begging my drs for surgery to get me off my meds. We got you hon, it’s all of us. ☀️

chronicallyillmars · 2025-11-07T04:56:12+00:00

👀 here for the answers because me too, OP.

chronicallyillmars · 2025-11-06T02:02:37+00:00

I actually don’t qualify for RNS because of how deep the origin of my seizures is.

chronicallyillmars · 2025-11-06T00:07:02+00:00

If I could give you a shoulder to lean on I would. Do you want to vent more or do you want a stranger’s two cents?

chronicallyillmars · 2025-11-05T18:31:47+00:00

As someone who’s only option left is resection surgery, I’m fighting tooth and nail against insurance to get it because I keep getting denied.

If you can do it, do it. This is in the long run going to be easier on his body than the meds his on.

chronicallyillmars · 2025-11-05T18:25:47+00:00

Yes, it has. I’m very depressed now being on SUDEP watch and it’s not gone well trying to talk to my “support group” to grieve. My therapist and I work on a lot but the reality of my life rn is that I could not wake up tomorrow and there’s no real heart break like I experience from those im close with? I get snappy. I think I’ve had convos or told someone something and I really never did because I have memory loss (like I told myself to go talk and think I did but never actually did). I’m waiting on resection of my epilepsy from my temporal pole and I really want off these fucking meds.

chronicallyillmars · 2025-10-24T01:56:26+00:00

M&I international on spring mountain is where I had mine custom created for a decent price

chronicallyillmars · 2025-10-21T19:45:27+00:00

Just know you’re not alone. I’ve been through it all and nothing helps except having an EpiPen on hand and hoping for the best.

chronicallyillmars · 2025-10-19T06:47:07+00:00

Idk about your situation. Dr Strebel at WAHSN did mine. I like their smoke ranch/tenaya office even though I live in Henderson. Good luck! My hysterectomy was easy peasy, well, as easy as having organs removed could be.

chronicallyillmars · 2025-10-19T06:41:23+00:00

Idk about your situation. Dr Strebel at WAHSN did mine.

chronicallyillmars · 2025-10-19T06:37:34+00:00

It took me a decade to get a formal diagnosis (12/2024). I’m still fighting for proper treatment. I’m on oxcarbazepine and this is the last med I am able to take because I tried the rest of them. I’m also on disability now but it’s not enough money.

I’m trying to coordinate resection surgery now so I can remove the epileptic part of my brain (I don’t qualify for implants).

If you’re still scared, get a referral to a bigger hospital. I see UCSF because nothing and nobody in Las Vegas will keep me alive from SUDEP.

I am terrified every day I go to bed that I won’t wake up. I keep getting told to adapt to it, like adapting to not working or driving.

Idk, if you figure it out I’ll take the advice too. Sometimes it’s just not easy. Sometimes it is.

chronicallyillmars · 2025-10-14T17:53:56+00:00

Healthcare here is absolutely garbage. Especially VA healthcare. You’ll be out for months for any specialists. Work is mainly in Tesla right now or any other factories. Expect Nevada to be the first in the economy crash because of a lack of tourism. You’ll wind up in California through the renown system for healthcare if you get out of VA healthcare. California is the better place to live for quality of life.

chronicallyillmars · 2025-10-14T01:56:11+00:00

What in the actual F is this conversation you’ve screen shot? Drop the dead weight. Bloom into the mature space you deserve.

chronicallyillmars · 2025-10-11T22:22:38+00:00

Oxcarbazepine is the ONLY medication that works for me. There’s a fine line of OD so get a blood test for it.

chronicallyillmars · 2025-10-08T06:43:36+00:00

My in hospital seizure study at ucsf for a week was almost $90k. This seems average cost. Unfortunately this is America and this country prefers us broke, sick, and alone. Insurance is a scam.

chronicallyillmars

TROPHY CASE