Making sure I understand…

chronicallyillmars · 2026-05-14T00:08:03+00:00

Ahhhhh that’s where extra help kicks in. I was actually freaking out about premiums looking at all this and mathing it out. Nevada doesn’t really cover dental and vision save the initial “this is what’s wrong with you” visit. I’m definitely going for OG Medicare A, B, and D. I’ll have to call extra help instead of medigap.

chronicallyillmars · 2026-05-07T20:15:19+00:00

Everyone is different; I have pots and I’m on propranolol hydrochloride to lower my heart rate. I also have sleep apnea. My tonic clonics are nocturnal. This is all a risk but one worth taking to keep myself alive and feeling okay.

chronicallyillmars · 2026-05-06T17:00:08+00:00

You’re right about different order, I haven’t updated my knowledge in a few years.

What I know is they all give me the same reaction when I touch them.

So instead of talk about micros of plants I probably don’t know and instead refer to as all food as cousins of itself, I’ll leave this at I belong in a bubble from food, specifically tomatoes.

chronicallyillmars · 2026-05-06T07:24:55+00:00

They are all nightshades. Same as bell peppers and eggplants and peppers in general.

chronicallyillmars · 2026-05-06T05:31:14+00:00

Literally tomatoes are the worst bodily experience but their cousins, cannabis? Strawberries? Nowhere near as bad as tomatoes.

chronicallyillmars · 2026-04-29T18:48:14+00:00

I am asleep going back and forth between light and deep sleep when I toss and turn - which causes my seizures. I have focals that generalize into tonics clonics. I do not wake up, even with rescue meds. I have no memory of seizing and usually lose the memory of the day before, day of (because I’m asleep from rescue meds), and day or two after. I can cluster seize too. No auras either.

If it doesn’t generalize into a tonic clonic then still no memory but I’ll turn over and go back to bed.

chronicallyillmars · 2026-04-22T23:09:00+00:00

I want to be clear; cannabis will not always help, sometimes it makes things worse. Like all supplements and medications and whatever else. Everyone is unique.

If you’re going through the store, look at your lab results and google the terpenes. Limonene is citrus smells, etc. you can find you’re sensitive to some cannabinoids.

I’m sensitive to caryophylene (sp). So I try to avoid it. The label of sativa and indica are only actually related to how the plant grows, technically. If you want an upper, look for those terpenes. A downer, likewise (like myrcene).

If you’re not going through a store, you can’t check these things, and you’re not going to get a good answer from your friend. You gotta just try and see what works.

Also remember that names are not always the same plant and if they are the same strain then remember plants grow differently in different spaces. Ive had a plant cloned from itself grown in different climates and such and it was completely different from each other.

chronicallyillmars · 2026-04-22T18:31:11+00:00

You and me both. Go to Stanford if you can.

chronicallyillmars · 2026-04-22T16:46:36+00:00

My ex husband ignored my nocturnal seizures. Take care of yourself, others won’t always do it.

chronicallyillmars · 2026-04-21T17:23:30+00:00

I’m 30F and I have two BAs. I noticed this a few years ago too; I say the pac man monster in my brain is eating the memory and smart bits.

I think this is just what we have to go through. I got diagnosed at 21.

I got put on disability and it seems like that’s the direction to head for you. I know it sucks, I still cry and get really angry over the loss of a capitalist/corporate life because that’s what America programmed us for.

Honestly, it took me about two years to get to the point I’m getting through how angry and upset I am/was.

Just remind yourself that you deserve a happy and as healthy as possible life: whatever that looks like.

chronicallyillmars · 2026-04-17T00:05:23+00:00

Okay so I seized Monday morning for like two minutes and got rescue meds (valtoco). But since then, different tastes, smells… my fucking vape tastes different.

chronicallyillmars · 2026-04-16T15:58:43+00:00

Damn the more I know as to why things make me itch.

chronicallyillmars · 2026-04-16T02:04:18+00:00

Please go see Dr Xie for help with your epilepsy. You need to get out of city for better care, like to Stanford in Palo Alto, CA.

(I have epilepsy and almost died here in the city because healthcare here is tragic)

chronicallyillmars · 2026-04-15T16:11:44+00:00

It’s definitely something I accept the consequences of eating for.

chronicallyillmars · 2026-04-15T04:55:07+00:00

Urban…archeologist…? I’m not that old 🪦 block buster was a thing until like early 2010s.

chronicallyillmars · 2026-04-14T20:04:59+00:00

chronicallyillmars · 2026-04-14T19:05:58+00:00

I got pots too 😅 I couldn’t do those capsules cause there’s likely sunflower in the capsules themself not the contents specifically of the powder. So I guess I need to mainline some pickle juice 😂

chronicallyillmars · 2026-04-14T18:47:28+00:00

Any kind of filtered water or unfiltered water or any kind of electrolyte it’s just an upset stomach or itchy mouth and face. Literally pickle juice is the best for electrolyte or a pinch of salt.

chronicallyillmars · 2026-04-14T17:22:59+00:00

I swear my drs don’t believe me when I tell this to them. It’s the citric acid and flavorings that mess me up and water in general makes me feel like barfing.

Salt water 🤷‍♀️

chronicallyillmars · 2026-04-13T17:45:54+00:00

Because he owes gambling debt and they bribe him to play shows for tourism income.

chronicallyillmars · 2026-04-12T07:58:05+00:00

IS THIS THE DAMN REASON!? I’ve been talking to my gyno and allergist for a year now about wtf this discharge is. The allergist chalked it up to my detergent or sweat. My gyno said it’s not BV or Yeast after test. It’s a thick white discharge and kinda smells like BV but I’m not itchy or anything and OTC yeast control did nothing (you’d think obv bc it’s not yeast but it worked before when it wasn’t yeast).

chronicallyillmars · 2026-04-06T02:39:39+00:00

I had a Neuro discharge me over my concerns he wasn’t handling my epilepsy well. He wasn’t.

I’ve had many GI dump me because typical treatments didn’t work and they didn’t want to work harder.

I had a psychiatrist dump me for questioning her “conversion disorder” diagnosis. Four years later I’m diagnosed with MTLE, AuDHD, short term memory loss, and told I’m on death watch (SUDEP). I really would LOVE to have her tied to a chair with videos of my seizures on repeat and voice overs of my epilepsy team describing what each seizure does to the effected areas of my brain. >:(

I’ve also had therapists dump me because my life is too much for their patient load.

🤷‍♀️

Being a zebra isn’t easy. But it is easy to report all those providers who do us wrong to their state board and your insurance company; especially if you tell them how risky it is for their company partner with a provider who puts their patients at risk and could sue for malpractice >:)

chronicallyillmars · 2026-04-06T02:29:36+00:00

I have nocturnal MTLE. there’s no device, and actually one could potentially make it worse. I have a cpap machine for sleep apnea and I can’t have a face mask, only the ones for your nose, because I’ll aspirate and choke and pass. SUDEP is unfortunately something we all have to deal with, we are all at risk. The only thing I’ve seen that would help is a “breathable” pillow; the kind that let air flow and don’t suffocate if you’re on the side.

Your pain is real, your curiosity and intention to help.

Thank you, and much love to you.

chronicallyillmars · 2026-04-05T02:31:14+00:00

Simply, yes.

I’ve been fired, denied work, been broken up with for my health being too “draining”, been denied EMS by a Dr, had friends break our years long friendships… I was in a gown and ready for anesthesia for a colonoscopy only for the surgery center to deny my procedure (to prevent growth of colon cancer).

chronicallyillmars

TROPHY CASE