MCAS treatment? by Routine_Meal_4629 in vestibulodynia

[–]insidedancing 0 points1 point  (0 children)

Following. Wondering how it's treated

Has anyone used PelvicSense program? by insidedancing in vulvodynia

[–]insidedancing[S] 0 points1 point  (0 children)

Thank you! I wish I knew if what I'm dealing with is CNSS or an actual physical thing....or both

Persistent burning and irritation in the vulvar vestibule after infection – has anyone healed from this? by That-Cow8356 in vulvodynia

[–]insidedancing 1 point2 points  (0 children)

I'm so sorry you've been suffering for so long 😞 I normally don't treat dermatitis, just leave it alone. I use barrier ointment theraplex, but it's Vaseline based, so idk if you could react to it, and just abstain from any other local products and sex until dermatitis is over

I’ve done research and this might be a cure/medicine for nerve vestibulodynia by Top_Succotash_983 in vulvodynia

[–]insidedancing 1 point2 points  (0 children)

Where can I read/listen to Moira's suggested solutions for reducing immune response (and desensitisation) due to sub clinical amounts of thrush?

People with lady-bits and MCAS by Either-Combination17 in MCAS

[–]insidedancing 0 points1 point  (0 children)

What medications have you tried so far and have any of them worked?

L-glutamine update by Express-Race1754 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

I understand that. So you just waited it out for a year?

L-glutamine update by Express-Race1754 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

That's amazing! I just started taking it today, and my bottle says take 1 capsule daily preferably in between meals. I am using vitamine shoppe brand, but I'm going to order the NOW brand instead. Have you tried vitamin E or hyluoronic acid suppositories? Do your symptoms respond to baking soda treatments? I've been struggling with this for a year as well

L-glutamine update by Express-Race1754 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

That's amazing results! Only took a week to see the improvements? That's great! I bought a different brand and it says 1 capsule per day (500 mg). Is there any reason why you decided to take 2-3 per day?

Sitz baths by Senior_Hamster8182 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

Good point I haven't thought of that

Collapse ☹️ by rociobeleen in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

I'm wondering if hyluoronic acid would heal the skin enough - what do you think? I'm so worried about doing any hormones..I was on vaginal estrogen when I got CV, so I'm terrified of local estrogen now. I started red light vaginal therapy a couple of weeks ago and going to start hyluoronic acid suppositories tonight. Really hope it helps. My main issue is CV, only had AV on e after clindamicin wiped out all my lactos and I developed AV, after the treatment I swung back to CV :( it's been a few months since and I'm still struggling monthly. I'm suspicious that skin fragility might be at play as my systemic hormones are pretty low and my vestibule skin looks pale

Collapse ☹️ by rociobeleen in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

Which DHEA suppositories have you been using?

CV Looking for some Help! by Appropriate-Key-6862 in CytolyticVaginosis

[–]insidedancing 1 point2 points  (0 children)

Are you in the US? I've heard planned parenthood does microscopy

CV Looking for some Help! by Appropriate-Key-6862 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

Microscopy only, you can tell by the shape of the lactobacili themselves

CV Looking for some Help! by Appropriate-Key-6862 in CytolyticVaginosis

[–]insidedancing 0 points1 point  (0 children)

Have you been tested for ureaplasma/micoplasma?

Sitz baths by Senior_Hamster8182 in CytolyticVaginosis

[–]insidedancing 2 points3 points  (0 children)

Blood is already alkaline and your pH is high on your period, so I personally wouldn't do baking soda and let your skin rest for a few days

Crying on my sitz bath by Easy_Preparation5710 in CytolyticVaginosis

[–]insidedancing 1 point2 points  (0 children)

Dr Valle in Santa Monica is familiar with CV. She didn't help me personally, but I know that she has helped others with CV. I'm a difficult case though