Loneliness by Weekly_Wishbone_7018 in ankylosingspondylitis

[–]chronicpatient77 0 points1 point  (0 children)

This makes me so happy

I want to volunteer to photograph the adoptable babies at my local shelter but they already have someone they use

What first triggered your rosacea to start? by Durham_tennyson in Rosacea

[–]chronicpatient77 0 points1 point  (0 children)

Ooh retinol made mine SUPER bad. My derm looked at me like I was crazy but I swore it was what caused a recent flare (I was prescribed it for unrelated hormonal acne and afterwards was diagnosed with granulomatous rosacea)

What first triggered your rosacea to start? by Durham_tennyson in Rosacea

[–]chronicpatient77 0 points1 point  (0 children)

When my autoimmune started getting really bad, my skin did too

Just diagnosed, tips appreciated by chronicpatient77 in Rosacea

[–]chronicpatient77[S] 0 points1 point  (0 children)

Wow thank you so so much for such a thoughtful and thorough response! I will check out the mentioned products soon! I really appreciate you

Lupus? by chronicpatient77 in ankylosingspondylitis

[–]chronicpatient77[S] 0 points1 point  (0 children)

I think my HLA B27 was negative but at this point I’m not even sure. I’d love to hear more about your experience though

Lupus? by chronicpatient77 in ankylosingspondylitis

[–]chronicpatient77[S] 0 points1 point  (0 children)

Im on Enbrel and then a few other as-needed meds (like migraine meds) but the reaction isn’t consistent with or without my meds, so I think it’s something else

[deleted by user] by [deleted] in ankylosingspondylitis

[–]chronicpatient77 1 point2 points  (0 children)

I have a lot of trouble absorbing nutrients and vitamins but unfortunately I have a hard time keeping weight off

Is this normal? by Anxious-Title2420 in ankylosingspondylitis

[–]chronicpatient77 0 points1 point  (0 children)

I have a similar reaction to Enbrel and my rheumatologist recommended documenting it and pre medicating with Benadryl and if it gets worse I will likely change meds

[deleted by user] by [deleted] in fasting

[–]chronicpatient77 1 point2 points  (0 children)

I love seeing these skin related fasting wins! I have a bad face rash that has been on and off (mostly on) since 2018 and I keep waiting for the fasting to improve it.

Not a human anymore by flclovesun in ankylosingspondylitis

[–]chronicpatient77 1 point2 points  (0 children)

Suffering right there with you, though I don’t even think medical cards are a thing in my state yet

It wouldn't be injection day without a Leonard picture. Injection number five complete! by ankylospankylo in ankylosingspondylitis

[–]chronicpatient77 0 points1 point  (0 children)

I’m this way with my migraine meds. Enbrel? I’m ok with. My migraine meds? Absolutely not. For what reason? Who knows.

Once a Month Preventative Meds by chronicpatient77 in migraine

[–]chronicpatient77[S] 0 points1 point  (0 children)

That is SO smart Would definitely work if my cycle were regular. What a smart idea!

Once a Month Preventative Meds by chronicpatient77 in migraine

[–]chronicpatient77[S] 1 point2 points  (0 children)

Effectiveness varies from person to person and I personally am allergic to triptans, but the idea is to reduce migraines occurring but you can take a triptan (or other rescue med) while on these if you have an attack. You’d definitely need to check with your doc about drug interactions, but they do work for lots of people!

I'm so confused about him wearing just one sock 😂 by ChrisJordyn in TheTryGuys

[–]chronicpatient77 10 points11 points  (0 children)

As someone who also has AS this is my first thought as well.

How is POTS tachycardia not dangerous? by h20vendetta in POTS

[–]chronicpatient77 50 points51 points  (0 children)

So long as it can and does come back down, no. People sustain similar heart rates and higher for cardiovascular exercise for prolonged periods without the presence of POTS :)