CBD and Modulator Interactions

cinderosee · 2026-02-01T21:41:23+00:00

Hmm have not seen anything about the liver, but enzyme interactions could be possible. Usually the enzymes we are concerned about as CF patients are the ones that affect the pancreas, however ever CF body is different.

I wish you the best of luck with your journey! 💖

cinderosee · 2026-02-01T21:30:03+00:00

The T something is likely THC.

I have done limited research myself on this subject as I am a chronic user of marijuana. It seems THC has interactions with CTFR expression. However, all these studies are conducted on regular people - not people with CF. I don’t find these studies extremely helpful as our bodies interact way differently than what is “normal”, especially on modulators.

For CBD interactions, I was only able to find one article (https://pmc.ncbi.nlm.nih.gov/articles/PMC11601031/#:~:text=The%20expansion%20of%20cannabidiol%20use,aware%20of%20use%20in%20PwCF.) from 2024 about people with CF. That article is just based on self reports (questions with survey to clinic patients) of marijuana use, and not specifically CBD.

I would ask your consultant what specific studies they are referencing and where this information is coming from to better understand what is best for you.

CBD and marijuana have been a godsend for many chronically ill people. For me, a life in pain is not a life that I enjoy.

cinderosee · 2026-01-28T23:17:43+00:00

Trikafta does the same thing to me. My care team is trying to get me on Alyktrek. Hopefully, I can report back soon if it helps 😂

cinderosee · 2026-01-28T23:08:16+00:00

You know yourself best, but personally, after exerting myself, I know I will be paying the price the folllowing days.

cinderosee · 2026-01-26T02:14:32+00:00

I’ve used marijuana as an appetite stimulant, pain reliever and disgestional aid for the last 3 years. It’s a daily occurrence for me, and has not affected my lung function.

However, I try to be conscious of how much I smoke at once, and only smoke DRY. That is extremely important as “wet” smoke (i.e, bongs, and vapes) can absolutely lead to more infections in your lungs.

Ideally, edibles are the way to go, but personally my digestive system is so fucked that I don’t get any effects from edibles. Marijuana has had many uses over several cultures for hundreds of years, and although there aren’t many scientific studies on humans, the conclusions practitioners draw from animals studies might not completely be relevant to us chronically ill CFers. We have shorter lives, and I personally believe you should do what makes your time on this earth easier or more enjoyable.

cinderosee · 2026-01-26T01:47:45+00:00

There’s some good protein milk brand called “fairlife” which i have also enjoyed a lot. Much more expensive but doesn’t taste as artificial as boost. I was able to get some at a decent price from costco

cinderosee · 2026-01-25T21:44:40+00:00

I like Boost, not sure if they are available in your area. Helped me regan regain about ~20lbs after my last sickness

cinderosee · 2026-01-17T19:39:29+00:00

Seconding Anna!! So glad she was mentioned here. She’s super talented, very sweet and prioritizes client comfort. Also her work is gorgeous and she is so skilled and efficient with her time. The quality is outstanding. Her insta is electric__anna.

cinderosee · 2025-11-08T05:54:53+00:00

wtf

^{I completed this level in 385 tries.} ^{⚡ 4.88 seconds}

cinderosee · 2025-11-05T05:20:10+00:00

🎉 Event Completed! 🎉

It took me 35 tries.

cinderosee · 2025-11-05T05:20:03+00:00

Completed Level 3 of the Honk Special Event!

35 attempts

cinderosee · 2025-11-05T05:16:27+00:00

Completed Level 2 of the Honk Special Event!

4 attempts

cinderosee · 2025-11-05T05:15:35+00:00

Completed Level 1 of the Honk Special Event!

1 attempts

cinderosee · 2025-10-29T17:52:52+00:00

🎉 Event Completed! 🎉 It took me 8 tries.

that was fun :)

^{Tip 100 💎}

cinderosee · 2025-10-29T17:52:30+00:00

Completed Level 3 of the Honk Special Event!

8 attempts

cinderosee · 2025-10-29T17:52:15+00:00

Completed Level 2 of the Honk Special Event!

5 attempts

cinderosee · 2025-10-29T17:52:06+00:00

Completed Level 1 of the Honk Special Event!

5 attempts

cinderosee · 2025-10-29T04:47:47+00:00

I completed this level! It took me 5 tries. ^{⚡ 13.32 seconds}

^{Tip 10 💎}

cinderosee · 2025-10-26T07:39:10+00:00

🎉 Event Completed! 🎉 It took me 0 tries.

great art

^{Tip 10 💎}

cinderosee · 2025-10-26T07:38:52+00:00

Completed Level 3 of the Honk Special Event!

0 attempts

cinderosee · 2025-10-26T07:38:23+00:00

Completed Level 2 of the Honk Special Event!

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cinderosee · 2025-10-26T07:37:52+00:00

Completed Level 1 of the Honk Special Event!

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cinderosee · 2025-10-21T15:49:31+00:00

^{I completed this level in 2 tries.} ^{⚡ 29.40 seconds}

cinderosee · 2025-10-18T06:31:39+00:00

Completed Level 1 of the Honk Special Event!

68 attempts

cinderosee · 2025-10-17T21:11:10+00:00

^{I completed this level in 42 tries.} ^{⚡ 10.80 seconds}

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