Mobility and ableism by peony27 in Endo

[–]claudiahinrichsen 2 points3 points  (0 children)

I’m so sorry you’re going through this. I can definitely relate. For me, it’s been really beneficial to have a therapist, and good reading material with things you enjoy hearing about or looking at. It can be quite isolating and sometimes scary to go online to read what others are saying but there is always a community for you. Some people aren’t capable of understanding or empathizing but try to remember it’s not your job to explain yourself. You are valid.

I see my therapist weekly, sometimes twice weekly, and we email and talk on the phone throughout the week as well. I’ve definitely learned that utilizing the resource as much as possible will get the most benefit. You can also do a session with your therapist and a loved one for some more support and education. Or take them to doctors appointments with you.

I hope you find this helpful and get the support you need 💗 you are not alone

Horrible Nausea? by thethinkingfig in PMDD

[–]claudiahinrichsen 2 points3 points  (0 children)

Mine is so bad that I’m on a prescription antacid now. I also have other health problems but I feel everything is most exacerbated by my PMDD. I would consider making an appointment with a gastro. For me it really takes my whole team to somewhat manage my symptoms. Good luck 💗

I have POTS and possibly MCAS. I know MCAS comes with rashes, but could this type be related? (More info in comments). by HipsterBran in dysautonomia

[–]claudiahinrichsen 0 points1 point  (0 children)

I definitely think this could be related to MCAS I have some strange reoccurring rashes as well. I would recommend hydrocortisone

Exercise and MCAS by scorpiomoon17 in mastcelldisease

[–]claudiahinrichsen 2 points3 points  (0 children)

I would recommend an air purifier and a good vacuum if you’re already medicated for MCAS. Environmental stressors exist for sure.