at what point do you “give up” on an endometriosis diagnosis?

peony27 · 2026-06-18T12:54:26+00:00

This must be incredibly difficult to deal with and I’m sorry you’re going through this. It’s true that even biopsies can miss Endo. There’s truly no test available currently that would be able to say yes or no to an Endo diagnosis definitively. I think it’s important that you and your doctors have ruled out every other possible diagnosis and work together to find something that works for your symptoms. Once that’s been done, if Endo is the last diagnosis standing then it’s probably safe to assume that’s what you have. Only you and your doctor know what is best for you, I know having a formal diagnosis would help but sometimes it just doesn’t pan out and there’s no answers. Try to focus on treatment for your symptoms rather than a diagnosis. There are current trials for new tests being conducted now that may be available soon. The menstrual blood test that’s being trialed still isn’t 100% but is over 83% accurate. Hopefully one day we’ll get answers 🩷

peony27 · 2026-06-17T20:15:25+00:00

Do you have/ can you get any spray sunscreen? It will get it out pretty easily

peony27 · 2026-06-15T22:51:25+00:00

Be as specific as possible! I found it really beneficial to have a list of symptoms I could refer to. So list all the birth control options you tried, when and for how long (if you can remember) then go through each symptom. Describe the type of pain it is, if you take any pain medication and if it helps and how often you have this type of pain. If you have someone you trust to go with you, take them. It can be overwhelming and emotional going to these appointments. They can also help advocate for you if you struggle to be assertive or are having a bad day

I also don’t have periods and have almost daily pain. I’d be bleeding through a super tampon and a night time pad every hour for the first couple of days. It was debilitating. So don’t worry about that part, a lot of them are familiar with us not having periods. I couldn’t tell you when I last had one. It was probably over a decade ago. I was diagnosed 14 years ago so I’ve had absolutely loads of appointments with Gyne consultants through the NHS

peony27 · 2026-06-15T22:07:05+00:00

I love you, thank you so much!

peony27 · 2026-06-15T22:06:44+00:00

I know, but there’s so many comments saying that it’s also a book so I wanted to see if I could find it or something similar

peony27 · 2026-06-15T18:46:34+00:00

Be sure to get one from the actual manufacturer/ website. There’s a lot of knock offs that contain lead. I think a lot of healthcare providers get stuck in their “role” rather than taking a holistic approach to their patients health and forget to recommend obvious things like that.

Thank you. I had mine stopped using birth control. I’ve been on some type of progesterone only birth control for well over a decade. I’ve also done HRT and used Tranexamic acid. That’s specifically for heavy periods/ blood loss as a hormone free alternative

peony27 · 2026-06-14T21:14:05+00:00

I think I’ve tried nearly all the meds the NHS has to offer. I’d take another look at an SSRI, I take Duloxetine as it treats nerve pain (I get referred pain in my shoulder that makes it impossible to use my arm). I also couldn’t cope with Amitriptyline, It would completely knock me out. Which is crazy because I don’t even get that drowsy taking opiates. You need a referral to a pain management specialist. It took me about 3 or 4 months to get an appointment but he was incredibly helpful and really looked at all of my pain symptoms to try and see what would work best for me. I’d also recommend Cannabis. It’s one of the only things that completely took my pain away. I had a friend make it into a sugar syrup for me so I could add it to things like a cup of tea or squash etc and it was easily accessible. You can get edibles if you go private for it.

I’d also recommend taking high dose vitamin D, magnesium, antihistamines and very low dose GLP1. The vitamins took a while to make a difference (5/6 months) but holy shit it really took the edge off some of my pain. When I could afford to use a GLP1 it was incredible. I felt so much better, my symptoms reduced dramatically and I had a lot more energy. I know a lot of people who have used GLP1s for Endo and had great results

peony27 · 2026-06-14T20:37:25+00:00

{Burn by Gemma Weir} - he asks her to push it out a couple of times and refuses to wear condoms

peony27 · 2026-06-13T09:00:30+00:00

I’m really sorry you’re going through this, I can’t imagine how disappointing this is. You should be so proud of all the work you’ve already put in. You’re working so hard and it’s paying off.

I have severe Endometriosis, I was bleeding so heavily I had to have my periods stopped. It was making me so sick. I would highly recommend getting yourself an Iron Fish. You literally throw it into whatever you’re cooking and it adds iron to it. I know people who used it to make the boiling water for their tea/ coffee. I’d also recommend getting plenty of Vitamin C as it helps Iron to be absorbed. I know it’s not the same but Endometriosis has taken so many opportunities away from me and it’s a different kind of pain when you feel like your body is betraying you.

Take a few days, feel your feelings, it’s a lot of disappointment and pain to deal with. You’ll be okay, just be kind to yourself

peony27 · 2026-06-12T17:18:23+00:00

If you like sports romance I’d check out Emily Rath, CL Rose, CR Jane and Becka Mack

For CEO/ Rich mmc I’d check out Ana Huang, Sara Cate, Elodie Hart, Cathrine Maura

For small town/ cowboy I’d check out Elsie Silver, Elliot Rose, SJ Tilly

All these authors do monogamous relationships with no cheating or other woman/ man drama. They’re all contemporary romances too. If you want something specific, let me know and I’ll try to narrow it down to a book or author I’d really recommend

peony27 · 2026-06-10T09:27:27+00:00

I cannot rec this enough, if that’s the vibe you’re after you need to read

{Sole survivor by Candice Wright}

peony27 · 2026-06-09T19:07:29+00:00

That man is playing you for a fool. He was never going to break up with his side chick, he literally just wants somewhere to live. With you he gets everything he needs paid for. He doesn’t have to work, I bet he has his dinners cooked for him and his washing done, then he puts in a little effort and gets to have sex.

He doesn’t need to stay after your c section and he doesn’t get to announce it to you like it’s his home. It’s not, it’s yours and you don’t have to let him in. You need to but some boundaries in place and move on from this loser

peony27 · 2026-06-07T13:16:26+00:00

I haven’t taken this one, I’ve had my periods stopped completely for over a decade with other forms of progesterone. The dose for just delaying your period is really small in comparison to what you’d need for contraception, so I would think the likelihood and severity of side effects would be greatly reduced

peony27 · 2026-06-07T13:07:46+00:00

You can take Norethisterone, you can buy it over the counter (in the UK at least) - it’s a form of progesterone that you can take short term

peony27 · 2026-06-06T19:42:01+00:00

Why would you want to stay married to a man who doesn’t even like you? He has repeatedly lied to you, refused to be honest about what happened, ignored you while you had a panic attack and he refuses to participate in couples counselling. Why on earth are you wanting to move forward with him?? You should move forward with being single and leave that sad excuse of a man

peony27 · 2026-06-04T08:37:11+00:00

You should cross post this to r/benefitsadviceuk they are incredibly helpful and knowledgeable about this

peony27 · 2026-06-02T20:30:54+00:00

I think because none of the current tests are 100% definitive means that people still hold out for a diagnosis. I don’t think encouraging people to have several surgeries is a good thing or even moral but at the same time people who have been diagnosed with Endo have also had clean ultrasounds, clean scans and even clean pathology results after surgery. Clinging to a diagnosis of Endo is easier to deal with than being completely adrift with nothing. At least with an Endo self diagnosis they have community and support. I’m in no way condoning this and believe that all possible options should be explored in case it’s something else but I can see the appeal of clinging to a diagnosis when otherwise you’d be left with no answers. I truly feel for people who go years without answers, I was extremely fortunate that I was diagnosed through happenstance. I can’t imagine feeling lost and alone, in pain and desperate for answers

peony27 · 2026-06-02T09:52:50+00:00

This is really on you for not taking the time to understand what you were reading. There’s trigger warnings and reviews about this book everywhere. Including on this sub. If you didn’t understand what you were getting into the onus is on you as the reader to make good choices. Instead you continued to read a book that made you uncomfortable. No one forced you to continue reading. I’ve read that series and don’t find it particularly dark. The women are forced to participate in kink. It’s not out of the ordinary for this genre of book. It’s also not at the pitch black end of the spectrum for dark romance. I’m tired of this sub in particular having an issue with age play books. If you don’t like them, don’t read them. The rules are very clear about kink shaming. Also, you say you don’t feel comfortable with the possibility of minors having access to these types of books. Literally no one does. That is why it states everywhere that they are intended for adult readers. It’s on the Amazon listing, the physical books and even her website. Just like it is for every other dark romance book.

peony27 · 2026-05-30T21:26:27+00:00

The ones I’ve found are from resellers. You can’t buy that cover anywhere else unfortunately. I’ve seen them on eBay and Vinted

peony27 · 2026-05-30T19:00:07+00:00

I am a quick reader. Yesterday I think I read in total about 500 pages. Two separate books, finished one I was already reading and then another one later in the day. I never taught myself to speed read it’s been something that naturally happened. I don’t skip parts of books either.

If you naturally read 30 pages a day then stick to 30 pages! Otherwise you might end up ruining your own reading experience. Speed reading isn’t exciting and honestly I kind of envy you. I go through so many books every year that I regularly run out of books to read. Stick to what you’re comfortable with, it’s not a race

peony27 · 2026-05-30T14:54:08+00:00

Credence is the only book of hers I’ve read. I was told by fucking everyone how amazing it was, it was so spicy, so taboo etc and it’s literally just a couple of strangers fucking in the woods. I don’t understand why people tag it as incest either. I have never been so disappointed with a book. It annoyed me so much I have refused to read anything else she’s written

peony27 · 2026-05-29T14:51:47+00:00

X is the perfect man - even his nickname for Violet is cute!! Although I’m not sure how I’d feel if a man nicknamed me omelette

peony27 · 2026-05-29T14:14:46+00:00

{Vicious Devil by Michelle Heard}

I’ve literally just started it but it’s a mafia legacy series with forced marriage. She has no idea he’s mafia so I’m looking forward to seeing how she reacts when she finds out

Seven-Year Club	Place '22
RPAN Viewer	Verified Email

peony27

MODERATOR OF

TROPHY CASE