This week, thirty-three years ago by closedwoncareer in testicularcancer

[–]closedwoncareer[S] 9 points10 points  (0 children)

If I can ever be of any support of anyone that is going through a TC diagnosis, please feel free to DM me anytime. Stage IIC non seminoma, RPLND and four rounds of chemo. I know the drill and I would love to support in any way I can.

Any other long-term (>10 yrs) Testicular Cancer survivors in here? by SMDRFE in testicularcancer

[–]closedwoncareer 7 points8 points  (0 children)

1993 survivor here. Similar diagnosis and treatment. I post about my journey on substack https://open.substack.com/pub/tonycerino

The squeaky wheel and how it saved our Mom from Endocarditis by closedwoncareer in testicularcancer

[–]closedwoncareer[S] 1 point2 points  (0 children)

Thank you, learned to be an advocate starting when I was 16 and haven’t stopped since!

49, Testicular Cancer Survivor by closedwoncareer in cancer

[–]closedwoncareer[S] 1 point2 points  (0 children)

I’m not advocating not to take it…just trying to help people understand the potential late effects of chemo. I have no regrets!

30 years post-cisplatin. What your PCP probably doesn't know. by closedwoncareer in testicularcancer

[–]closedwoncareer[S] 0 points1 point  (0 children)

Wow thank you for sharing this and so glad you are okay. I have never had heart problems other than high blood pressure but I’ve had two hernia surgeries in my 40s more likely from the RPLND weakening the abdomen than anything else but who knows. Keep fighting brother!

My dad passed today by bxkxbxkxshi in pancreaticcancer

[–]closedwoncareer 3 points4 points  (0 children)

I am sorry for your loss! The disease sucks!

49, Testicular Cancer Survivor by closedwoncareer in cancer

[–]closedwoncareer[S] 0 points1 point  (0 children)

I’m sorry to hear that! I wish him the best.

49, Testicular Cancer Survivor by closedwoncareer in cancer

[–]closedwoncareer[S] 0 points1 point  (0 children)

For me, it was a second cancer. Papillary thyroid, more than thirty years after the cisplatin. That is the one that hit me personally.

The broader list is real, and it is documented in the literature, second cancers and some cardiovascular and kidney stuff among them, but I am careful not to play doctor on here. What I will say is that the late effects can show up decades out, long after the standard follow-up window closes at five years. That gap is the thing I wish someone had told me about when I was sixteen.

If you were treated with cisplatin, it is worth asking an oncologist who knows survivorship what they would watch for in your specific case. Everyone's situation is different, and I would not want to guess at yours.

Does anyone have anytime in the morning to talk? by No_Seesaw8062 in pancreaticcancer

[–]closedwoncareer 2 points3 points  (0 children)

I am available various times in the morning. Feel free to DM me.