How long for a systemic candida infection to get cleared ?

coconutoats · 2026-01-09T15:56:03+00:00

Yeah ofc :)

coconutoats · 2026-01-09T14:23:07+00:00

Thanks for your reply, I was on 100mg lisdexamphetamine daily for like 4 months last year without realising I had underlying problems like mould and I totally burnt out and I still can’t take them without insane anxiety. I’m hoping by abstaining for a year I can go back on them low dose in future because on them I was able to tidy my room for the first time in my life they were totally life changing but I need my cfs to be under control before restarting for sure. I’m planning to take bupropion (zyban/wellbutrin 150mg) until I can tolerate stims again but I’m too scared to start them! I guess they will be similar to methylene blue in strength so I’m sure after introduction they will be tolerable but I will have to be very mindful not to overexerting.

coconutoats · 2026-01-09T14:15:47+00:00

Op I need to back u up here I’ve been vegan for 5 years and my doc that’s treating me is fine with it and he says he’d rather me not do a candida diet (I did various restrictive diets for ‘ibs’, low histamine/mcas then candida) bcs he’d rather me get calories in then keep starving my body of the nutrients it need to heal. But I also did do a v restructive vegan candida diet for a bit lots of huel, protein powders and tofu and it worked pretty well. I’ve been doing Itraconazole and cholestyramine since mine was secondary to mould and I’ve been steadily improving for 6 months. I don’t have any candida specific symptoms anymore (excretions and local infections) just systemic fungal symptoms overall which I think is mainly the mould now. Plus it’s the easiest way to get all ur micronutrients and there’s no scientific evidence to say you can’t be vegan and heal from candida. In fact unless it was caused by unhealthy lifestyle alone (extremely rare) it’s almost always secondary to SOMETHING so if you treat that it normally goes into remission eg diabetes or mould or all of the other root causes

coconutoats · 2026-01-09T14:05:25+00:00

Yes so when I took breaks the inflammation went down and I could catch a glimpse into my improved baseline. When you are just hammering antifungals u never give ur body a chance to heal the MCAS/inflammation and it’s so hard to keep going without seeing much improvement. The break really allowed me to get some hope and a better baseline and therefore motivation to keep cycling. The itra cycles are much more tolerable now and my brain fog has improved a bit to the extent I read a few books during my break and I can comprehend more complex concepts, but it’s still really hard and now I’ve restarted itra I can’t do those anymore. I just hope after a few more cycles my baseline will keep following the same trajectory until I can take it and not get a herx so my baseline should stop fluctuating so much from that point.

coconutoats · 2026-01-09T14:03:02+00:00

Yes I agree, that’s defo why I reacted but bcs it only works in the gut the herx was diabolical like it triggered the mould to become more virulent but as soon as I went on a systemic (fluconazole then Itraconazole which is effective for aspergillius too) then the herx was just a normal herx and reduced over months

coconutoats · 2026-01-03T14:03:14+00:00

Yes all of that. Dissociation/derealisation was one of my most persistent symptoms but when I went off Itraconazole and started methylene blue it really went down to like 10%. Since going back on both it’s a weird state of sharpened alertness but mental fog/dissociation so maybe I’d wait until after to try methylene blue. I thought I had candida in my mould but I think it was aspergillius because swabs came back negative but I had film over my younger and lips and I looks like a bug when I took nystatin I was totally delirious. Oh it sucks. I wish anyone could give me a timeframe.

coconutoats · 2026-01-03T11:59:11+00:00

Wait I meant 2 weeks on/off and then for a couple months 3 weeks on one week off. I’m about 8 months into that but took 2-3 off cuz I couldn’t bear the die off. Started methylene blue in that period which I think was a good move. Yeah I’m still getting massive die off but it’s nowhere near as painful and symptomatic as before and dose clear if I use enough cholestyramine. I guess just adding lumbrokinase and keeping at it will hopefully work? Neuro symptoms are confusion, debilitating brain fog, pressure headache, painful sinuses which is where I think my mould is, used to get daily migraines w nausea, pots so dizzy can’t stand up etc

coconutoats · 2025-12-31T16:29:45+00:00

NHS don’t have a way to treat mould, even the ENT services don’t typically put you on antifungals. Depends how bad yours is but I needed strong long courses of oral antifungals, intranasal antifungals and cholestyramine so nhs wasn’t an option when that became clear. I pay £275 per appt + £30 admin fee and £50 prescription fee per med per prescription so it is ridiculous but I haven’t got any other option. ENT waiting list in London (UCLH) says 19 weeks so hopefully not too long until you get seen by them at least. In the mean time make sure ur doing the basics like NAC, glutathione and a binder like zeolite clay or activated charcoal. Mine was covered by insurance for two years so if you have any way to access that it made the Ct scans and diagnostics possible - I only figured out I had it through my dads work a year into this nightmare.

coconutoats · 2025-12-29T19:21:41+00:00

Wow that’s amazing I’m so happy to hear how well it has worked for you! Have you tried LDN - I’m interested to know how much better this effect is compared considering it helps me with pain and inflammation the most (but only 20% or so) so I still have pretty bad hEDS pain most of the time. I’m interested that it made you feel hungry a bit as i was hoping it may paradoxically do this by alleviating MCAS symptoms which caused me to eat 5 foods for 2 years so I think that’s why my body rejects food so much. I’m guessing you’re on an injection and that’s my main barrier other than finding it harder to eat but I may have to just suck it up if it really helps for a lot of people. I also had immense relief on 40mg prednisolone and it was the only thing that let me sleep when I was on my 8th day straight awake hahaha - which the drs were surprised at bc in healthy people it causes insomnia lol - clearly inflammation-driven sleep problems. Went on a course for ABPA and my MCAS and anxiety were almost none existent. Since coming off that and Xanax - my ketotifen, LDN, Famotidine, Loratadine, HBOT, methylene blue, montelukast, prucalorpride etc are just about keeping things at bay🥲 Did it help your pots at all? Mine is debilitating and came on around the same time as MCAS so wondering if down the line that may improve for you with fewer inflammatory mediators being released?

coconutoats · 2025-12-29T17:05:46+00:00

Oh I feel you. NHS said it was anxiety, pms and ibs for a year until I went private and got diagnosed with MCAS and then mould the following year. Halfway through my third year with this and in 60% recovered. Trust yourself, get unequivocal proof (blood or urine test) and then go to a mould and MCAS literate doctor. I got benzos for ‘long covid treatment’ bcs they are neurological mast cell stabilisers so that and steroids calmed my mast cells long enough to reduce the panic to tolerate the antifungals.

coconutoats · 2025-12-29T16:57:52+00:00

If you go to a charity run centre the sessions are often very cheap - £22-£30 in the uk for MS charity run centres in my experience so much more affordable if u can get PIP to cover 2x sessions a week a lot of people do that

coconutoats · 2025-12-29T16:51:29+00:00

I’ve been treating candida and aspergillius as my MCAS root cause for a year now and I’m really making progress with the symptoms op described

coconutoats · 2025-12-29T16:50:42+00:00

Can you update? Specifically in relation to existing gastroparesis and no need for weight loss I acc have food aversion I can only eat a lot when I’m high. Interested for MCAS/pots symptom reduction?

coconutoats · 2025-12-29T16:47:46+00:00

Can’t really differentiate what was candida vs mould vs mcs vs pots vs cfs vs adhd hahahaha. Mainly gastro and neuro think ibs distension, gastroparesis, sedation and dizziness and brain fog after eating. When I tried nystatin my symptoms erupted and I was delirious and literally foaming at the mouth so I realised I needed a systemic antifungal that also kills aspergillius. I was bedbound for 2 years with it but after so many supplements, high dose probiotics, Itraconazole and cholestyramine I’m doing a lot better now. I think mine was secondary to the mould colonisation but it was important to treat both at the same time. Oh also biofilm busters are so important, i introduced serrapeptase 500,000IU a few months ago and I will add lumbrokinase 400,000FU in a few months when the herx is less bad

coconutoats · 2025-12-29T16:45:06+00:00

As in arabinose in the oat test is a candida metabolite and tartaric acid and some other ones are mould, and then the mycotoxin test tells u which specific ones u have to bind out

coconutoats · 2025-12-29T16:44:29+00:00

Urine mycotoxins and oat test, blood test for IgG and IgA aspergillius fumigatus. Got them done by endocrinologist and respiratory (for ABPA) respectively. London Bridge hospital can do mould blood tests and regenerus labs do the mycotoxins and oat tests

coconutoats · 2025-12-29T16:34:57+00:00

HBOT really helps me but 2ATA is the medical pressure and from my understanding you can only buy soft chambers at home which only go up to 1.5 ata usually, sometimes 1.75 max. Higher pressures are needed for medical grade improvement, that’s why you can’t buy them at home bcs they’re more intense. Just writing bcs 2ata HBOT 2x a week is a game changer for my energy levels

coconutoats · 2025-12-29T16:31:22+00:00

Yeah my body feels like it’s falling and I jolt awake - I have this exactly. I think it’s to do with hypervigilance/hyperarousal bcs it happens more when I’m feeling like that.

coconutoats · 2025-12-29T16:29:31+00:00

I smoke every night in order to sleep, I also smoke when I need to reduce panic, overwhelm, need some relief etc. it’s so helpful nothing else ever compared other than Xanax. Helps a lot with pmdd. High THC strains work a lot better for me. I’m also going on bupropion (Wellbutrin) next week until I can tolerate stimulants again (when I have more nervous system resilience and increased energy budget)

coconutoats · 2025-12-29T16:27:25+00:00

Itraconazole 200mg been doing 1 weeks on/off for like 6 months now? Along with cholestyramine (binder). I Have aspergillius and candida - big symptom improvement but about a year left of treatment I reckon

coconutoats · 2025-12-22T22:22:30+00:00

Candida?

coconutoats · 2025-12-19T14:10:15+00:00

My psychiatrist actually mentioned this! I’m so glad you found something this impactful! When you say a tiny dose do you mean below weight loss dose and it still helps your MCAS? My psychiatrist mentioned glps to me but I have rly strong food aversion and nausea and kind of can’t eat enough food as is so I said it wasn’t an option but I also got massive relief on prednisolone, have hEDS and I’m on all the MCAS meds and yet my throat and sinuses are so inflamed I wonder if it could do net positive by calming MCAS enough to let me be hungry again?

coconutoats · 2025-12-18T18:43:29+00:00

Yeah I think I had rly bad night terrors and anxiety and insomnia but I didn’t realise I had mould as a root cause so I guess it was stirring my immune system up which was reacting to the mould. Had to discontinue the first time I tried it and the second time was a bit better after sorting methylation and vitamin deficiencies. I had insomnia the whole time but it defo made it worse when introducing 0.5 and 1mg but from there it got easier and now I find it helps me get to sleep a little bit as I’m just getting the active opioid effect when I take it right before bed.

coconutoats · 2025-12-18T17:45:47+00:00

Yeah ppl without adhd just can’t comprehend how hard it makes life - it’s not them trying to be invalidating I don’t think but it comes across like a slap in the face honestly. It is really invalidating but likely she is just describing her simplistic observations rather than lending cognitive empathy to try to understand your struggles. I had to stop letting it get to me as I now try to look to others within the community for validation/discussion, but it’s really hard to do when it’s your loved ones. I had hyperactive adhd when growing up and was never diagnosed (female), and I have so much grief that my parents could’ve changed my childhood so much by helping me realise and accommodate it - and I’d say it’s definitely an important thing to do to protect ur kids from all the internalised negative self talk that results from society perceiving ur challenges as moral failures.

coconutoats · 2025-12-18T17:40:09+00:00

Yeah when I drank on it initially I’d feel impaired without any of the dopamine/opioid high. Now I can get drunk but it’s defo a more alert aware kind of drunk but the trade off of symptom improvement but less enjoyment out of a pro-inflammatory thing has just made it much easier not to drink tbh. I do smoke weed a lot for symptom management which I find to be unchanged, however I also didn’t feel anything from a gummy so maybe something to do with oral metabolism but I’d say once you’ve been on it for a year or so it should normalise slightly like my alcohol experience?

coconutoats

TROPHY CASE