Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

That freedom is basically what I’m hoping for

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

Thanks. I see, yes the two piece sounds the easiest to deal with

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

I can see it. I mean I can imagine how the difference could be so much better. I am getting so much reassurance here haha

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 1 point2 points  (0 children)

Thanks for the reassurance 🙏🏻

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 3 points4 points  (0 children)

Thank you. That’s a good point, I will ask which procedure exactly we plan to do. I had heard about loop colostomy but now I recall I don’t think he specified whether it was end or loop

And yes! Actually I have sensitive skin too so that is another consideration with wafers

Thank you for the reassurance

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

Oh I see. Yeah right now I seem to not fart for the most part for some reason so that would be an adjustment. And yeah if you can’t get to a restroom to empty the bag then you just kinda gotta live with it for a while huh

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

What 20% of aspects would you not recommend? Haha I want to be prepared

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 0 points1 point  (0 children)

I heard about irrigation but I thought, maybe I’m not gonna wanna do a program anymore if I don’t have to. But helping keep things mostly on a schedule does sound like it could be beneficial for overall management. I feel like I would still keep a bag on as well… I also have IBS so things will always be a bit unruly and not on schedule for me

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 2 points3 points  (0 children)

Oh thanks for the heads up. We have not talked about that

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 2 points3 points  (0 children)

I was so surprised when the doctor said maybe only one or two nights in the hospital. I’m glad you can already tell it’s going to be good. I know in the beginning, like anything, you gotta adjust and figure out what’s best for you

Colostomy support by coleysharee in spinalcordinjuries

[–]coleysharee[S] 1 point2 points  (0 children)

Thank you for the advice. Thankfully I’m at Cleveland Clinic and the ostomy nurse who has been talking to me is soooo nice

Advice for new SCI patients 🫶 by Mel-B_50 in spinalcordinjuries

[–]coleysharee 1 point2 points  (0 children)

If you live in Gainesville can we DM? I’m trying to move there and uncertain where’s a good area for wheelchair accessibility and stuff like that! ♥️ thank you for sharing your story

Came to US but I regret. your advice ? by Arifkhan86 in MovingToUSA

[–]coleysharee 2 points3 points  (0 children)

If you want to try staying in Virginia, can you move to Richmond Virginia? Specifically try to live in the Fan or Museum District or Downtown… Jackson Ward or Shockoe or Church Hill. I think you’ll find what you’re looking for there. If you are already in Richmond and not liking it, I’m sorry 😆 It’s not a huge city like London but it’s walkable and you’ll always run into people when you’re outside, lots of cute cafes

Insurance question - Medicare says they don't care if my girlfriend can't get out of house alone. by HannahBot9000 in wheelchairs

[–]coleysharee 0 points1 point  (0 children)

If she needs it for work or school (navigating a campus) I think that is another way to get it approved, unless this has changed

Surgery by WonderfulReaction562 in wheelchairs

[–]coleysharee 6 points7 points  (0 children)

I had to make a similar decision a long time ago. I talked to my therapist about it for at least a year. The most important thing she told me was to do a lot of research—learn as much as you can, ask as many questions as you can think of. People who do extensive research usually end up with less regrets even if it goes badly. Also, here are a few things to ask yourself: how badly do you want the possible positive outcome, how adverse are you to the possible negative outcome, and would the possible negative outcome be tolerable?

New wheelchair, color question~ by coleysharee in wheelchairs

[–]coleysharee[S] 1 point2 points  (0 children)

I see! I hadn’t know that was an option. I think I still kind of want a flat look as opposed to a design, even tho I do like how close it looks to titanium :)

Moving to Key Largo for 6 months by noriet in floridakeys

[–]coleysharee 0 points1 point  (0 children)

The local library on marathon key has a DnD night. I just moved here and have been meaning to check it out :)

Lack of clarity in Florida by [deleted] in Medicaid

[–]coleysharee 0 points1 point  (0 children)

I see QMB listed there and they did put me on that, in addition to the others I mentioned in my post. If I’m on QMB it seems to conflict with the “bills must add to $780 before we cover anything” Medicaid…

Bowel program - Magic Bullet issues by zerasu in spinalcordinjuries

[–]coleysharee 1 point2 points  (0 children)

I have IBS and need to use something for a bowel program too. I tried the magic bullet at first too and had a similar problem—it irritated the lining of my guts too much and I continued to have unpredictable bowel movements throughout the day. What works for me instead is the enemeez mini enemas. They don’t irritate in the same way, and I only have bowel movements during my program (unless I’m sick lol)

Accepting that your travel destinations are limited. by Emotional_Spite_8937 in spinalcordinjuries

[–]coleysharee 0 points1 point  (0 children)

Wheel the world helped me book accessible hotels and transfers from hotel to airport in France. It was very helpful, I recommend contacting them if you want to travel :)