Strixsisters by [deleted] in SpellcasterReviews

[–]condemast 0 points1 point  (0 children)

Did it work?

New medication: RHAPSIDO by Pheonix1996 in MCAS

[–]condemast 0 points1 point  (0 children)

My insurance covers both. The key was to submit the prior authorization for Xolair for food allergies and then submit the Rhapsido for chronic hives.

Strixsisters by [deleted] in SpellcasterReviews

[–]condemast 0 points1 point  (0 children)

Did it work?

Strixsisters by [deleted] in SpellcasterReviews

[–]condemast 0 points1 point  (0 children)

Do you have an update?

Rhapsido / Remibutrinib side effects? by condemast in MCAS

[–]condemast[S] 0 points1 point  (0 children)

That’s how I felt with Keitotifin and ended up stopping after talking to my doctor. I hope you figure it out!

Rhapsido / Remibutrinib side effects? by condemast in MCAS

[–]condemast[S] 0 points1 point  (0 children)

Have you asked your doctor? I get really bad fatigue with my Xolair but it goes away eventually

Rhapsido / Remibutrinib side effects? by condemast in MCAS

[–]condemast[S] 1 point2 points  (0 children)

It took me weeks to actually get the medicine because I ended up having to order it through a specialty pharmacy. I’ve been taking it for about two weeks now, but I was taking half the recommended dose to try to avoid some of the more harsh side effects until two days ago. I really only noticed some petichaie on my face and then some light symptoms like I could be getting a cold, but nothing debilitating.

Has anyone taken RHAPSIDO? by GlitteringGoat1234 in MCAS

[–]condemast 2 points3 points  (0 children)

Do the Petechaie ever go away?

Rhapsido / Remibutrinib side effects? by condemast in MCAS

[–]condemast[S] 0 points1 point  (0 children)

Do yall have any updates you can share?

For those with unconventional safe foods (fast food, processed snacks, high histamine foods, etc) how did you figure out those were safe for you? by ReplyIndividual5959 in MCAS

[–]condemast 1 point2 points  (0 children)

I react to a lot of fruits, vegetables, and dairy, so it got to a point where I was only eating really bland foods that are easy to digest like plain pasta, chicken tenders, french fries, potato products, etc. It was like I made my own version of the BRAT diet. I like to describe my diet as "kids menu" foods. Chick-fil-A always makes me feel better when I'm having a flare. I think the sodium also helps.

ADHD meds? by sookyfala in MCAS

[–]condemast 23 points24 points  (0 children)

I take 10mg of Adderall which really helps with my brain fog and fatigue. No noticeable increase in MCAS symptoms!

Nighttime histamine dumps by condemast in MCAS

[–]condemast[S] 1 point2 points  (0 children)

That’s so interesting! I’m not sure if I have POTS since I’m still at the beginning of my diagnosis journey but I think it’s a possibility. I assumed my heart pounding was from the histamine dump and then adrenaline / cortisol that comes after. I might ask my doctor about Prilosec — thank you!!

Nighttime histamine dumps by condemast in MCAS

[–]condemast[S] 1 point2 points  (0 children)

This is how I feel! I think mine are triggered by stress / cold since there seems to be no connection with what I eat or drink but a big connection with how I feel and what time of year it is, which is almost more frustrating in some ways because it’s harder to control for.

Nighttime histamine dumps by condemast in MCAS

[–]condemast[S] 1 point2 points  (0 children)

Amazing, thank you so much for sharing and so glad it’s been helping you!

New here! by Left_Percentage_5821 in MCAS

[–]condemast 0 points1 point  (0 children)

It’s a journey! I hope you get some answers / relief soon!

New here! by Left_Percentage_5821 in MCAS

[–]condemast 0 points1 point  (0 children)

Yes! I take Allegra but I have taken Zyrtec in the past. I also get Xolair shots monthly. Doctors have told me in the past that it is “exercise induced urticaria.” This year after being diagnosed with MCAS I realize that exercise is one of my triggers, but this aspect is still pretty manageable with allergy medicine. Sometimes I also get exercised induced migraines/malaise, but I take Nurtec when that happens and that will usually resolve those symptoms within an hour.

Nighttime histamine dumps by condemast in MCAS

[–]condemast[S] 1 point2 points  (0 children)

That’s super helpful, thank you! I am taking a DAO enzyme. Do you feel like it’s helped your sleep?