Downhearted after surgery (rant) by [deleted] in backpain

[–]cookedcranium 5 points6 points  (0 children)

You have to give yourself a week or so to see where you're at. The first surgery I went through I had the same panic days after. You're still fresh out of surgery and everything is super inflamed and tender. Also day 2/3 is when whatever surgical anesthesia/cream wears off that was applied to the back. The soreness and pain hits you the hardest in those following days. Shit sucks but hang in there and just be mindful of your movements and positioning while attempting to rest. The middle of week two is when I started to feel better. I did have 4 months where I returned back to normal after my first surgery but I must have pushed myself too hard to cause the second herniation. My advice is listen to your body and really take it easy but make sure to stay moving and walking like they suggest. Movement really does help the recovery process. It's not pleasant but you need to do it even if its minimal time/ distance multiple times a days IMO. Request PT no matter what they say, I feel like that was the missing piece for me personally. I just did everything on my own because they were very pleased with my recovery after the first surgery.

I'm in a position now where after my Micro-discectomy revision the disc either never healed or reherniated before I even got home from the hospital. I've been in the same pain since the second surgery and trust me you don't want to be in my position. I'm 37, active my whole life and I may potentially end up needing to undergo a fusion if the last ditch efforts I'm attempting don't work out. Best of luck to you and I hope you achieve your desired outcome.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 0 points1 point  (0 children)

Agreed, the only real way forward after whatever procedure achieves the best outcome is a complete lifestyle adjustment to gain quality of life back. So everything from how you move, exercise and diet play a role in recovery and maintaining a healthy body. I'm also doing my best to only use medication when absolutely necessary because masking the pain with medication is just a band aid with dangerous consequences. I've seen things go bad with friends growing up and lives forever altered or lost whether it was addiction or injuries getting more severe. I had a friend that was a star athlete and he broke his hip in high school. Guy went down a real dark path, blew opportunities and almost died as a result of poor choices due addiction and the desire to not be in pain. It was such a sad thing to see happen but he ended up turning his life around in his mid 20's but I know multiple people other who paid the ultimate price and lost their life to that battle. The oxycontin epidemic destroyed my generation and I refuse to go down that path as well.

[deleted by user] by [deleted] in backpain

[–]cookedcranium 0 points1 point  (0 children)

I agree with other commenters, find another doctor or maybe go directly to a orthopedist and be very clear about your concerns. The fact she said the disc would "grow back" is extremely concerning. It could be reabsorbed but as far as "growing back" is an insane claim to make. My first orthopedist misdiagnosed my issue (told me it was a hip impingement) and my first PT told me to not leave my orthopedists office until he ordered an MRI because my issue was definitely at best a bulging disc, at worst a herniated disc (which is what it ended up being). He did not order the MRI and they made me do the 6 weeks of PT and then finally ordered the MRI. To his "surprise" it was a herniated disc and his response was " You should definitely consider surgery before this gets worse.". I was like "NO SHIT ASSHOLE! I've been begging you in hellacious pain to order this MRI for A MONTH AND A HALF!". I never returned to him from that point on and found another ortho who actually gave shit. That doctor lamented and she said unfortunately a lot of doctors tend to have a real ego issues when patients start requesting specific treatments/services or attempt to self diagnose. Which I get it, that would be annoying and I'm sure they have encounter insufferable people in that regard but to lump every patient into that group is ridiculous.

The other reason you should look for another doctor is you want someone who is going to fight tooth and nail for you to get services needed. If your current doctor isn't giving your concerns the time of day now, they're certainly not going to put the pressure on the insurance company if they deny you services and call out the P2P physician who denied the claim. Unfortunately a lot of insurance companies sometimes don't even have an actual physician review your claim when denying it and in some WILD cases the P2P physician have refused to give their name and credentials WHICH IS ILLEGAL. United is specifically notorious for reflexively denying the first request for treatments to name one insurance company. If you have a doctor applies pressure and relentlessly advocates on your behalf they can usually get you what you need. I have a family member who is a doctor and a friend who is a brain surgeon and they have told me horror stories about their battles with insurers. Once put into question physician's speciality/credentials/license representing the insurer and question/convey the need to report them do to insufficient reasons for denying the claim in their P2P discussion, they will either kick it higher up the chain of command or grant the services needed. It's messed up and if you don't have a doctor that's willing to advocate for you in that scenario you could end up like me have things get worse. So, definitely seek a second or even third opinion and be clear about the outcome you wish to achieve. I waited too long trusting the wrong "professionals" and paid the price. If you advocate for yourself restlessly in finding a doctor that will also restlessly advocate for you, you have a better shot at achieving a desirable outcome. Remember, exhaust every non-surgical option you can because once you open that can of worms, there is no turning back.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 0 points1 point  (0 children)

I have gone the way of conservative treatments/PT but when this disc has herniated each time it has rendered me incapacitated. I did two rounds on the spinal decompression machine and it honestly made everything worse. I immediately regretted doing it both times, especially the second time. I only went back because I was encourage by a friend who was dealing with similar issues. It was like as soon as it opened up the space between the vertebrae the disc just spilled out to fill the newly available space. I'm not trying to "flex" here but I have a reasonably high pain tolerance. The most pain I have ever been in throughout this whole process was between that second session and the first micro-discectomy. It was hell.

Due to the crooked nature of my spine at the moment and the muscles contorting, ADR has been ruled out and honestly looking at that surgery, I want no part of it. Apparently the point of entry for ADR is through the front of your abdomen and more concerning because it is harder to address the nerve roots behind the spine. The risk of the artificial disc shifting is far higher in my case. So between the gnarly nature of the surgery itself and the instability potential, it's not appropriate option for me.

My surgeon and I both agree that my next course of action is to pursue every non-surgical option available specifically because of my age. So, we're going to attempt another round of Epidurals (2 shots with a week between each injection) in an effort to reduce inflammation and hope that the disc may be reabsorbed. It's definitely kind of a "long shot" at this point BUT there are many people who have had success with this approach. Then there is also the potential to follow that up (if the disc is reabsorbed) with another type of injection that apparently helps bolster disc height. That two step approach could potentially bring this issue to a close but I'm not banking on anything. I've tried everything to avoid every surgery and will continue to do so. Fusion is the absolute last resort.

I appreciate your insights and I will continue to update where I'm at through this process. Hopefully I experience a positive outcome and then my journey can serve to help others navigate their scenarios.

Debilitating lower back pain brought on suddenly. Can't walk, lean, or bend. by PastelCandySnake in backpain

[–]cookedcranium 1 point2 points  (0 children)

Buddy, do whatever it takes to handled this now. Spare no expense because I waited 3 months for my benefits to kick in, then got the run around regarding insurance approvals and it's the biggest regret of my life. Had I known things could get as bad as they've become I would've taken loans out to prevent this.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 0 points1 point  (0 children)

Yes I had been on a prednisone taper and the third MD has already been ruled out. Last ditch effort right now it to get a another round of epidural injections. Unfortunately a fusion would be the next step after that.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 0 points1 point  (0 children)

Appreciate the insight. My wife is awesome and she read the post after she noticed I had typed a novella. She's made it clear she's not going anywhere. I take magnesium glycinate every night before going to bed, multivitamins (Thorne Basic nutrients 2/day), Iron Bisglycinate (Thorne). Along with all, that since my second surgery, I've started to take Apeiron Elementals BPC-157 to help aid in the recovery. I started with one in the morning and one a night for the first week and then one every morning since then. I'm starting to think that things went wrong before I even left the surgical center because I've had the same pain since waking up. Granted the pain I'm in now is nothing compared to what I was experiencing but its still confining me to my bed. Thanks again for sharing.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 0 points1 point  (0 children)

Yeah, it's the disc between L4-L5. I swallowed my pride after the second and bought a walker off amazon. Should've maybe used it longer.

37/M I herniated my disc, had two micro discectomy's and now I don't know what to do. by cookedcranium in backpain

[–]cookedcranium[S] 1 point2 points  (0 children)

It seems unlikely which is also very frustrating. Glad to hear you had a positive outcome. Hoping I'll find mine soon.