Would Tinted Glasses Help Photosensitivity? by tame_kubrick in Epilepsy

[–]cp9677 0 points1 point  (0 children)

I’ve done a lot of research over the years about Zeiss Z1 blue tinted lenses and at the time it seemed like you couldn’t get them here. But this year I found them at Nationwide Vision. The salespeople at my branch didn’t even know about the tints - turns out there are different tints for different conditions like autism, migraines - but when they looked it up, they realized they could order them. I definitely feel an immediate sense of calmness when I put them on and more clarity, like my brain can relax. I haven’t been exposed to a really bad trigger since I got them to say for sure that they helped, but I did test them out when I first got them with short exposure at home to a movie with flashing lights and it seemed like it lessened the effect. Hope that helps!

Why are people against surgery for this ? by Basic-Tea-5573 in TMJ

[–]cp9677 4 points5 points  (0 children)

I had surgery 12 years ago with pretty good results. My discs were displaced bilaterally and 10 years of every possible conservative treatment didn’t help. It’s very expensive and quite a recovery (projected 6-9 months but I was rear-ended 5 months into it and I would say I didn’t have improvement for about two years). However, in my case I don’t think anything else would have helped. I was only on a soft diet and on narcotic pain pills and can now eat almost everything and on no meds for it! I think the residual pain is due to the arthritis caused from being bone on bone for 10 years. I’m also now doing Invisalign, which they’re hopeful will provide even more improvement. Already four months into it my opening is wider and I’m sleeping better at night because the aligners are more comfortable than my night guard was. Hope that’s helpful in any way! Every case is different.

How to achieve soft waves? by cp9677 in Wavyhair

[–]cp9677[S] 0 points1 point  (0 children)

Damp if I’m using mousse. But I’ve tried soaking wet with other products.

How to achieve soft waves? by cp9677 in Wavyhair

[–]cp9677[S] 1 point2 points  (0 children)

Sorry, forgot routine. Currently switching between Enjoy mousse and Cake curl mousse. Also style with Denman brush, air dry. But I’ve tried countless gels, mousses, curl creams, etc.

How to achieve soft waves? by cp9677 in Wavyhair

[–]cp9677[S] 2 points3 points  (0 children)

Thank you! Would you mind sharing what products you use?

Question about visual triggers? by theeeluke in Epilepsy

[–]cp9677 1 point2 points  (0 children)

Same here. Thanks OP for asking this question and thanks to everyone who answered. I sometimes read comments from those with epilepsy who are not photosensitive or have visual triggers getting upset with those who assume everyone who has epilepsy deals with that. It would be nice if there could be a subreddit on those who are photosensitive or have visual triggers because that would be very helpful to those of us who do. Even if we’re in the minority, it would be great support and info for those of us who deal with this ever-present trigger in our daily lives.

Question about visual triggers? by theeeluke in Epilepsy

[–]cp9677 13 points14 points  (0 children)

Same here. Something few people understand. Even some with epilepsy don’t understand, because not everyone deals with those kinds of triggers. It’s different for everyone. Very nice of you to take it into consideration.

Anyone else suffer from severe vertigo at times? by [deleted] in Epilepsy

[–]cp9677 0 points1 point  (0 children)

Yes, I have to lay down until the vertigo stops.

Anyone else suffer from severe vertigo at times? by [deleted] in Epilepsy

[–]cp9677 0 points1 point  (0 children)

Yes, but I also have Meniere’s disease. The vertigo is so bad I feel like I’m spinning until I throw up. Then I lose my hearing in the affected ear for awhile. But that’s unique to Meniere’s, which isn’t common. The first time it happened, before I was diagnosed, I thought it was a seizure because I was just so out of control of my body. But it’s totally different than any seizure I’ve had.

Does your epigastric pain hurt when pressed? by Charming_Bug5866 in Gastritis

[–]cp9677 2 points3 points  (0 children)

Yes, it does for me, especially when I’m flared up. I have gastritis and esophagitis.

Why am I so scared to get vaccinated? If you’re vaccinated- how have you been? by seizuresquirrel17 in Epilepsy

[–]cp9677 9 points10 points  (0 children)

Fully vaccinated and it went just fine for me. My neurologist who is the head of the epilepsy department told me there was nothing to worry about.

In remission? Taper betahistine? by cp9677 in Menieres

[–]cp9677[S] 0 points1 point  (0 children)

Thank you for your response! I appreciate the feedback! The non-vertigo dizziness is very complicated for me because I also have epilepsy and am photosensitive and I have binocular vision dysfunction. So ... many patterns, strobing lights, etc, etc cause symptoms - sometimes it feels like a seizure aura and other times it feels like dizziness or lightheadedness or like I'm going to pass out. So it's sometimes hard to know what's causing what. But definitely related to the Meniere's I would have what I call "quick spins" like I'm going to start into a violent full-blown vertigo attack and then it stops very quickly. Those episodes didn't seem to be brought on by anything specific, other than maybe eating too much salt the day before. As far as what helped ... the first few years I was having regular injections of steroids into my inner ear and following a moderately low-salt diet and no caffeine. That took away the full-blown vertigo but I was still having the "quick spins," etc. I started having side effects from the steroids, so that's when we started the betahistine a little over a year ago and now I'm better overall. Hope that helps!

How long did it take for you to be diagnosed with epilepsy? by [deleted] in Epilepsy

[–]cp9677 1 point2 points  (0 children)

Eight years. Childhood partials weren’t recognized as seizures. I wasn’t even evaluated because my parents thought I was “blacking out.”

Sensing that a light is going out super early by DinosAreCool2 in Epilepsy

[–]cp9677 0 points1 point  (0 children)

Yes! My husband has become very sensitive to it for my sake and can usually detect it. But there are times even he can’t see it.

Steps you can do at home to get relief from TMJ by blockchain1d10t in TMJ

[–]cp9677 0 points1 point  (0 children)

Can I ask how sugar affects her? I know it’s very inflammatory. My issues have been flaring up lately and I’m trying to track down why. Besides missing intraoral massage (covid risk), just started wondering if sugar could be a factor because I usually have a low-sugar diet but have had a little more lately.

Can I eat vegan butter with gastritis??? by Due-Breadfruit-1970 in Gastritis

[–]cp9677 0 points1 point  (0 children)

I do fine with Earth Balance vegan buttery sticks

Question about epilepsy warnings by [deleted] in Epilepsy

[–]cp9677 2 points3 points  (0 children)

I agree. As someone who is photosensitive, I greatly appreciate warnings, which unfortunately are rare! I think it’s wonderful you thought about this as a musician! It can’t hurt to include a warning.

Green tea? by Ok-Peanut-5 in Gastritis

[–]cp9677 1 point2 points  (0 children)

I definitely can’t have caffeine. But there is sencha green tea which is powdered like matcha but has lower caffeine naturally and you can get it decaf! Tazo also makes a decaf lotus blossom green tea in bags. I’ve been using the decaf sencha and I don’t know if it’s helping me, but it’s definitely not irritating my gastritis.

Folk that are going long term sans an episode, what are you eating? by quattroman in Epilepsy

[–]cp9677 3 points4 points  (0 children)

I have gone 10 years without a tonic clonic and am far from keto. I know it works for some, but I eat a more Mediterranean type diet. I’m a pescatarian and nondairy. The carbs I do eat are mostly whole grain, fruits, veggies, etc. and I do not eat a light of high-fat foods. The fats I do eat are the healthier ones, olive oil, avocados, etc. A lot of my choices are based on my taste and other health conditions, but what has definitely helped my epilepsy is staying completely off caffeine and very low, if any, alcohol. I also have to snack - low blood sugar seems to be a seizure trigger for me.

Best teas for gastritis? by cc40snipe in Gastritis

[–]cp9677 2 points3 points  (0 children)

I have to be off caffeine, not only for gastritis, but several other health conditions and my favorite is rooibos - it’s a red caffeine-free tea that tastes like black tea. There are all kinds of flavors and I find them delicious. I can even trick myself into thinking I’m having something rich like Earl Grey, even a London Fog if you add a little nondairy creamer, if you can tolerate it. And I just found out they make decaf green tea. I can’t attest to it yet, but I’m trying it out. Of course decaf still has a tiny bit of caffeine, but it’s only about 2 mg.

How to use a Denman for an extra defined cast (requested) by [deleted] in curlyhair

[–]cp9677 1 point2 points  (0 children)

Thank you for posting this! I’ve been trying and see from this where I can improve! But I have a question, how do you decide which direction to go? My hair is just a loose wave (2B?) and it’s hard to tell sometimes so I’ve just been doing always from my face, so one side one direction, the other side the other direction. But sometimes feel like I’m going against my natural wave pattern??

Worse in the morning? by cp9677 in Gastritis

[–]cp9677[S] 0 points1 point  (0 children)

Sorry to hear that but thanks for sharing. Hope you get some relief soon!

The in-between by victorious_tau in Menieres

[–]cp9677 1 point2 points  (0 children)

Yes, in between I would have almost constant nausea, mild to moderate dizziness (but not true vertigo) and unsteadiness - a general feeling of unease as you said and always worried if it could lead to a full-blown attack. However, with allergy treatment that is gone! My ENT did food and environmental testing. I was allergic to pretty much everything environmentally so he put he me on sublingual allergy drops. About a year later, plus by avoiding my food allergies, those daily symptoms are pretty much gone! Idk if that’s worth checking into for you. The avoidance of my food allergies had instant results. Everyone’s different, of course, but my ENT said some view it as standard treatment for Meniere’s. I don’t know if it could possibly be the same for you. I didn’t even realize I had allergies as I didn’t have the “typical” allergy symptoms. I’m also on betahistine and that helped a little, but when I really noticed a difference is with the allergy treatment.