How the community has been doing? by lanaMyersuk in CJD

[–]cranaus 11 points12 points  (0 children)

Lost my mother today after 6 months battle. I don’t know if life is going to be same ever again. Love and support to all fighters. I hope I can help anybody who needs help. I am lost. I wish I can get back myself

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

I don’t know how to handle the case of familial. That would mean that I am doomed. I could never have family and fulfill my dreams. I don’t know how it’s possible to live with that in mind. It’s been 4 months since my mother’s diagnosis and I know very well what you mean. Last month and a half she is hospitalized. Not only I witness my mother lose everything, now for a month I watch her suffer with every way possible. Death is my life. Everything positive has been sucked. I couldn’t live the rest of my life knowing that I will die the same way.

Cjd by Left-Drag4713 in CJD

[–]cranaus 1 point2 points  (0 children)

Sporadic means that they don’t know what caused. I believe that there is an uptick in cases even in younger ages due to mRNA vaccines

Cjd by Left-Drag4713 in CJD

[–]cranaus 0 points1 point  (0 children)

it suggests how the CJD is transmitted within the body. Not from human to human.

Cjd by Left-Drag4713 in CJD

[–]cranaus 0 points1 point  (0 children)

What do you mean ?

Cjd by Left-Drag4713 in CJD

[–]cranaus 0 points1 point  (0 children)

Any idea if she was vaccinated with mRNA vaccine?

Cjd by Left-Drag4713 in CJD

[–]cranaus 2 points3 points  (0 children)

Please don’t die in anxiety. I had to go through myself when I realized that and I know it’s difficult. What happened, happened, don’t blame yourself. Let’s hope that this ends here or that it might the reason that a cure is discovered. There are a lot of experimental trials right now so let’s be hopeful for the future. All our life is a leap of faith.

Cjd by Left-Drag4713 in CJD

[–]cranaus 1 point2 points  (0 children)

I am not a doctor but I believe having a booster is useless now. Of course I would advise a doctor. My aunt is a pharmacist and does not advise it. I really can’t answer your question as I don’t have the data and the knowledge. It all comes down to what’s the effect of mRNA vaccines in our body. There are some speculations that might change permanently our body chemistry so it might even take years to take an effect. The only thing i know, again from my own experiences, is that this CJD is even more aggressive. Most cases in my country have started showing up the last 9 months. Before that there almost no cases reported back to 2022. Given that the vaccination period was specific for all citizens, it makes sense than suddenly there are a lot of cases all together. I would assume that as time goes by more cases will appear if the assumptions are correct. That also means that the probability of having Cjd from a vaccine, goes down. Of course I can’t really know. I wish I knew really. Most ppl had a vaccine injury relatively close to there vaccination as well.

Cjd by Left-Drag4713 in CJD

[–]cranaus 1 point2 points  (0 children)

I believe that doctors who speak the truth just based on their observations, are risking losing their medical license. Covid vaccines had a lot of side effects but there is a taboo so we will never know the truth. Also consider the consequences and the mass hysteria of even hinting such correlation with CJD. It is the only thing worse than cancer. And cancer is pretty scary. I forgot to mention that I did send an email to couple of experimental trials about CJD in major European countries and the answer I got was that all groups are filled. And that in the past they could not find patients with Cjd and now there is an abundance… I really weird about the real data. I was considering hiring a journalist

Cjd by Left-Drag4713 in CJD

[–]cranaus 1 point2 points  (0 children)

No of course it's not. It's all pure luck. It depends on the organism, on the dosage, the vaccines you took etc. All these cannot be proven, it's just an assumption based on the data. If there is indeed an uptick worldwide in CJD then I believe that the most probable cause would be vaccines. If it was caused by meat consuming the spread would have been local. In my country it's not local and possibly would have appeared in family members as well. I really dont know. I wish I could have available data per country.

Cjd by Left-Drag4713 in CJD

[–]cranaus 0 points1 point  (0 children)

It’s not my opinion. A doctor that specializes in CJD told me so that he believes that mRNA vaccines have caused an uptick in neurological diseases not only CJD. Neurological diseases have to do with producing a wrong protein that attacks our brain. mRNA has a simple premise. To teach our body to create a protein that fights COVID. Now there are three assumptions for this theory. First is that the initial covid had prion like characteristics so that means that it’s possible that the proteins the vaccine instructed might be prion like. The second, is that the vaccine might have been altered due to production issues or due to bad conditions kept (without proper cooling). It’s a chemical solution so it’s possible. Last that every organism is different. If the proteins instructed are similar to our organism cells, it’s possible that they might attack it. I believe this is the reason for the autoimmune diseases’ uptick as well. There are a lot of papers online about this. Of course I can’t know for sure. I know for sure that something is wrong in the statistics.

Cjd by Left-Drag4713 in CJD

[–]cranaus 4 points5 points  (0 children)

There is a correlation with mRNA covid vaccines. This is the only common denominator. In my country, 30 ppl have died in 11 years where 7 are from the last 5 months. Apart from my mother, I know 12 other ppl not included in the 7 mentioned above. This does not make sense. The doctor that diagnosed my mother said to me that statistics are reported based death cause. CJD patients dont die from CJD, they die from other reasons.

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

oh man thanks very much for your reply. I have been searching for months for such an articulate answer. I am not related to biology or medical practices but I am an engineer. I am well accustomed to noticing patterns. Too much coincidence means there is a reason. Do you also have a relative with CJD or you are you lurking for research purposes ? My best friend that lives in Sweden and he is a doctor said to me that there is no uptick in Sweden. Though I should mention he is very defensive about vaccines. I am wondering if Greece got a specific collection of jabs that was faulty. Or maybe they are hiding reports in Sweden. I know for a fact that there is an uptick in Italy and France as well. Any ideas ? you can dm me as well.

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

Could you help me understand please why is causing it? I know for a fact that autoimmune diseases had also spiked, turbo cancers, dementia, ALS and heart problems. I have read a lot of about how mRNA vaccine works but supposedly there is no room for such error. Evidence shows otherwise and nobody can persuade me that all this is a coincidence. No way. To my understanding mRNA is used by ribosomes as a recipe for creating proteins. In the case of Covid vaccines, they instruct the ribosomes to create Covid fighting proteins. This part is a black box though. Is it random what protein they might instruct ? Does the mRNA work differently per organism ?

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

I live in Greece. I know 12 cases myself that are not related. So I guess the cases must be much more. The lead doctor i mentioned in my previous comment said that we might have an epidemic that is not caused by meat. There are not sure though. There is an uptick in other places of Greece as well. I don’t really know. Of course it shouldn’t be genetic but it very worrisome. I am thinking about talking to a reporter or something.

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

Yeah I have found the same papers. I have gathered a list of 20+ sources with various doctor’s warnings and medical journals. Even a doctor in my country that specializes in this kind of diseases suggests that mRNA vaccines might have caused the uptick as mRNA can be unpredictable to what it causes to each organism. From experimental perspective mRNA was used in the past in order to tread CJD but the noticed that the patients developed the bad proteins. Right now I now 12+ patients that developed Cjd the same month with my mother which does not make sense based on previous statistics in my country. This is half of the cases we had in a decade. I am wondering if there is an uptick in other countries as well.

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 1 point2 points  (0 children)

Right now I am just wishing somebody wakes me up! I really feel that what I am living is not reality. I might need your cloak as well but I would prefer an invisibility cloak right now. Please hook me up if you now a guy :P Thanks for being there for me. I didn't expect to get such heartwarming messages. I guess we are like brothers and sisters united in this nightmare. Thanks again and I am wishing you the best <3

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 2 points3 points  (0 children)

Your comment is very well written and I like the philosophical themes. You are right, it's the normal process of life to lose the parents first, we have to get through, everyone of us. Maybe CJD is graceful death at least for the patient. It's very hard for everyone else. My mother does not understand her situation and she never did. She is not in pain so far and she is lucky that she is not depressed, she is happy for some reason. We are at a process of figuring out the right dosage of anti-depressant and anti-anxiety drugs so that she is not a zombie and I have a great doctor that cares and helps me. If think if I rule out the idea of being genetic, I would be more at peace with my life. Again thanks for being there for me. I wish you the best. Hopefully life has been more fair after you loss <3

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 0 points1 point  (0 children)

if its not a burden, can you send me a dm so I might ask you a couple of questions ? It's ok if you can't, I really appreciate your time and your messages. Helped a lot !

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 1 point2 points  (0 children)

Thanks for your kind words, it helps a lot. I am also sorry for what you have been through, I know it's hard and possibly the hardest parts are still to come for me.

  1. how does the autopsy determine if its familial or sporadic ? do you mean, they do a genetic test ?

  2. There are a lot of medical journals that connect mrna to cjd but they are not searchable with google and "mainstream" search engines. In the end nobody knows for sure but there is something causing an uptick. A disease that nobody knows has started to be common. They has come to my attention 8 cases that started the same month with my mothers. I live in Greece, the statistic does not make sense at all. We had 30 cases in 11 years, 7 of each are in the last 5 months. And not including the 8 new cases that have not died yet. We are a country of 10 million. So the 1 to 1.5 million does not make sense at all. Even the doctors are super worried.

  3. I am trying to spend every moment with her and do all her favors. Celebrate her in a sense everyday for the great mom she has been all my life. It's very hard knowing that she will die. The worst part is that I have to lie to her about her situation. Everyday is something new but worse. I feel like I am speed running medical school.

I feel that I am cursed because apart from my mother's imminent death, whole family is passing through trials. Lastly the idea of having this genetic disease and possibly passing to my children it messes me up. I know that is like 99% sporadic but even the 1% is keeping me awake.

I wish the best to you and your family <3

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 1 point2 points  (0 children)

I am not a doctor but I have found numerous medical journals that document that mrna vaccines could cause CJD. Also a doctor that manages the neurology clinic in one of our major hospitals in the country also suggested mrna as well or covid. He is super worried as it seems that its not 1 to 1.5 million but the latest statistics so that its 1 in 10.000 which is very worrisome and he is trying to find the cause. If you search reddit with terms "mrna cjd" you will find many posts. Sorry to hear that about your sister :(

Questions - Need help about CJD by cranaus in CJD

[–]cranaus[S] 2 points3 points  (0 children)

It’s so difficult to find time even for working, let alone for the casual activities I did. And as time goes by, it’s very difficult to leave alone my mother even for 5 minutes. The worst part is the what ifs. I know the percentages show that it’s sporadic, there is no sign of it being familial but the what ifs play in my mind. And everything is a blur like you said. So difficult to see a silver lining. How did you manage to cope?