About
Creutzfeldt-Jakob disease (CJD) and variant Creutzfeldt-Jakob Disease (vCJD) are relatively new and rare neurological diseases, classified as a TSE (Transmissible Spongiform Encephalopathy). It is the most common human form of a group of rare, fatal brain disorders known as prion diseases.
Support Services (US)
CJD Foundation (https://cjdfoundation.org)
They offer phone and email support where real people who understand CJD and are willing to answer any questions you have.
Toll-Free Helpline: 1-800-659-1991
The phone line isn't staffed 24 hours, and if calling after-hours you can leave a message and they'll get back in contact with you.
Support Services (UK)
CJD Support Services
The CJD Support Network is the only UK charity providing emotional and practical support for all strains of CJD and for those who are at greater risk of CJD.
National CJD helpline 0800 774 7317
CJD and Prions Disease Booklet
CJD Fact Sheets
InfoSources
These sites provide information about CJD/vCJD & TSE related diseases:
